Grace11's Journey with Non-Hodgkin Lymphoma (NHL)

Caregiver: Non-Hodgkin Lymphoma (NHL)

Patient Info: Receiving hospice or palliative care, Female, Stage IV

  1. 1
    • Grace11
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Diagnosed

    Oh No

    Finding out on October 4th that my mother probably had lymphoma. Dagnosis had not been confirmed by biopsy. I was eating dinner in the Baltimore airport waiting for my flight back to Ohio.

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  2. 2
    • Grace11
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Rituxan--my mother was too old for chemotherapy. That would have been R-CHOP or CHOP-R. Instead she just had R.

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Grace11
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Whether to continue Rituxan

    Decision Point

    Mom had 2 Rituxan treatments. When she went in for the third treatment there were a number of problems that she had. Her heart was in A-fib and they thought she might have an infection. She was hospitalized for 4 days and released to a skilled nursing facility for rehab. She had one more Rituxan treatment, but she wasn't getting better. She was supposed to have a 4th, but she wasn't well enough to have it. She has eaten very little for weeks, and almost nothing for the last 12 days. We think she is now close to death. She is not responding to us, not speaking. She is cared for in the same nursing home, supplemented by hospice.

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  4. 4
    • Grace11
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Hospice

    Other Care

    A hospice nurse/case manager is managing her palliative care. She has been getting 5 mg roxanol prn. That turns out to be about 2x/day. Because she is not communicating I don't know what she is feeling. She also gets ativan prn. Wondering how long she might remain in this state. Death is inevitable for her. Would like to hear from others who have been caregivers of persons with Non-Hodgkins Lymphoma and how the final days have been lived out.

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