Just Diagnosed - advice4me

Oh No Associated with Adenocarcinoma, Colorectal Cancer. Posted on June 7, 2019 View this journey (3 Experiences)

This is my 2nd primary cancer. I just celebrated 5 yrs in remission for Stage 3 breast cancer and thought I could start doing activities on my "bucket list". Instead, I was diagnosed with a cecal mass that is cancerous. DNA tests showed I have 2 proteins missing that protect against cancer: mlh1, pms2. That may be why I have another primary cancer in addition to my breast cancer.

I am to blame for this. My doctors tried to get me to do a colonoscopy, but I refused because the prep was unpleasant. Now, look at what I'm facing: the dreaded colonoscopy, CT scan (both done), major surgery, possibly more chemo, and a life filled with medical app'ts. An experience that is far more than "unpleasant". My bad.

I'm crossing my fingers the surgery will designate it as only Stage 1 or 2 which means no chemo, but I doubt I will escape with no side effects.

  • Jayne's Avatar

    I'm so sorry to hear this but don't blame yourself. Hindsight is 20/20 and we all do things (or don't do) that we regret once we have all the facts. It's easy to look back and recognize our mistakes. But it is what it is - so the best thing you can do is pass along your lesson to others that might feel the same way. At least you can make something productive come from your experience. Keep us posted on the surgery - and hoping for the best outcome possible.

    6 months ago
  • medale's Avatar

    Very sorry to hear that you are going through this again. I had stage IIIC colon cancer, partial colectomy and then adjuvant chemo with FOLFOX.

    Don't blame yourself for your cancer. No sense in trying to worry about the past. They probably did CT scans five years ago and nothing was showing at that time. So maybe a colonoscopy would not have found anything either. But either way, that's passed and nothing can be done about that.

    But as @Jayne says, share that lesson. Whenever I give a technical presentation these days, I include a slide with my "chemo" picture and urge people to get their colonoscopies as recommended and share the Dave Barry "A journey into my colon - and yours" article (https://www.miamiherald.com/living/liv-columns-blogs/dave-barry/article1928847.html) to raise awareness.

    Focus on the good news that the CT didn't show any metastasis and there has been a lot of progress in treating colon cancer in the last five years according to my oncologist. Hopefully, the cancer was caught early, your surgery will go well and there will be good news from pathology. Best of luck and lots of positive energy your way!

    6 months ago

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