Experiences with Decision Point experiences

    • MWaldrup
    • Experience with Cancer of Unknown Pri...
    1 day ago
    MWaldrup's Avatar

    chemo or not?

    Decision Point

    I began this journey taking Revlamid then subsequently wrapped up that. I've progressed and now, it's chemo time yet I've always sa...

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    0 Comments
  1. about 1 month ago
    Tspitzley63's Avatar

    To have surgery and lose my job or take a year to wait and build up FMLA time before surgery

    Decision Point

    I chose to go back to work so I didn't lose my job and my insurance. I need up with a bowel blockage and after surgery I was termina...

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    1 Comment
  2. about 1 month ago
    legaljen1969's Avatar

    Prosthetic or Reconstruction

    Decision Point

    The longer this "shelter in place" goes on, the more time I have to look in the mirror and see the part of me that is missing. Rig...

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    8 Comments
    • Dppm1124
    • Experience with Transitional Cell (Ur...
    3 months ago
    Dppm1124's Avatar

    Stopping chemo after 5 rounds instead of 6

    Decision Point

    The chemo was impacting my kidney and was no longer worth the risk

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    0 Comments
  3. 3 months ago
    Birdwatcher2363's Avatar

    Decided to try Moffitt Cancer Center in Tampa, FL

    Decision Point

    Saw medical oncologist last week. Have an appointment next week for CT scans and to see PA and surgeon.

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    0 Comments
  4. 3 months ago
    Birdwatcher2363's Avatar

    Second opinion at Baptist MD Anderson in Jacksonville, FL

    Decision Point

    Saw surgeon, medical and radiation oncologists. Surgeon said to amputate the leg. Medical oncologist said chemo is out.

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    0 Comments
    • Honeygirl
    • Experience with Triple-Negative Brea...
    4 months ago
    Honeygirl's Avatar

    Where to seek treatment.

    Decision Point

    I'm very lucky to live in Seattle and be close to great sources for care.

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    0 Comments
    • Clarko
    • Experience with Chronic Lymphocytic Leu...
    4 months ago
    Clarko's Avatar

    Decided to leave family alone. Completely alone.

    Decision Point

    No support from family and friends

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    0 Comments
  5. 4 months ago
    legaljen1969's Avatar

    Second Opinion Time?

    Decision Point

    Based on how fast this trajectory is changing, should I get second opinion? I feel so stressed with everything else- the prospect of...

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    0 Comments
  6. 4 months ago
    legaljen1969's Avatar

    If anything shows up in right breast, proceed immediately to double mastectomy?

    Decision Point

    Surgeon said no signs this was invasive in initial mammogram. I asked are we going to look at right breast. She says will look with...

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    0 Comments
    • gttngd
    • Experience with Bone Cancer
    4 months ago
    gttngd's Avatar

    Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survival.

    Decision Point

    It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my streng...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    5 months ago
    pompeysh1a's Avatar

    Change medical care.

    Decision Point

    I decided in June 2019 to move from University of Michigan Medicine to I Stanford University Healthcare in Stanford, California. M...

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    0 Comments
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