Hospice - Grace11

Other Care Associated with Non-Hodgkin Lymphoma (NHL). Posted on December 25, 2012 View this journey (3 Experiences)

A hospice nurse/case manager is managing her palliative care. She has been getting 5 mg roxanol prn. That turns out to be about 2x/day. Because she is not communicating I don't know what she is feeling. She also gets ativan prn. Wondering how long she might remain in this state. Death is inevitable for her. Would like to hear from others who have been caregivers of persons with Non-Hodgkins Lymphoma and how the final days have been lived out.

  • GregP_WN's Avatar

    Hi Grace, that is a hard, hard thing to do, take care of a parent in Hospice. I have done it twice. One of the hardest things in my entire life, and that includes having cancer myself 3 times. The nurses at our Hospice care were very good at being able to estimate time left. Just ask one of them what they think. They will tell you they can't tell exactly but it's usually signs that show up as the time gets close.

    Best of luck to you

    almost 8 years ago
  • Nanc620's Avatar

    Grace...it is so difficult. Saying prayers for your mom's comfort and for you to be comforted by your memories and her everlasting love.

    almost 8 years ago

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