Chemotherapy - hilary

Drug or Chemo Therapy Associated with Pancreatic Cancer. Posted on January 15, 2012 View this journey (17 Experiences)

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  • hilary's Avatar
    hilary

    1 month since his last radiation treatment, 4.5 months since Whipple: Dad is feeling better than EVER. The effects of the radiation lasted 2-3 weeks beyond his last treatment, 12/22/11. But, now - Dad is feeling great. He had 2 beers the other night and has since had a glass of white wine! (things he never thought he would touch again as of October!... when I asked the surgeon if alcohol was okay now...) Dad met w/ Mayo oncologist...CA19-9 is 58, a little higher than they want to see at this point which concerns me, but Dad is happy... it's less than 270! 54 is the norm Mayo expects at this point. HOpefully the chemo will help bring this down more. His tumor was completely removed - with negative margins... but had affected 3 of the 24 lymph nodes they tested... so, there is some reason for concern. Dad's endocrinologist commented that Dad may not be diabetic too much longer. We learned ****A LATE ONSET TYE 2 DIABETES DIAGNOSIS ON NON-OBESE PATIENTS MAY NOT BE DIABETES< BUT RATHER A PANCREATIC TUMOR **** THis seems to be the case w/ Dad... Dad is surprised by how well he feels - it's been a long time. Sadly, he'll start chemo in a couple of weeks - which will last till mid-April. 3 rounds of Gemzar (3 weeks on, 1 week off ...3 times). I pray only his WBC count is affected and he won't be nauseas, etc. His weight is soooo low... he is embarassed by his skinniness. 134 for a 5'11" man... Dad's going to start taking CREON to see if this helps him pack on the pounds faster... He's eager to regain his weight and strength so he can get back on the golf course.
    Continuing to take it 1 day at a time... it's so hard - I want to know my dad is back to his normal health and can continue living as he was before his diagnosis...

    over 8 years ago
  • hilary's Avatar
    hilary

    Dad had his 1st round of Gemzar this past Tuesday. He'll have 3 weeks on, 1 week of times 3 ... completing mid-April. The first infusion definitely affected more this time than it had PRERADIATION. The medical oncologist explained that his body has been through war - so where Gemzar may not have affected him before the radiation, now he should expect more side effects. It has zapped his energy some and he feels a little off ... but he's still working on projects around the house - like painting cabinets and trim! (things he thought he was going to accomplish last summer when we learned about the Whipple!) Great news - the blood work he had done the day before showed his CA19-9 had decreased to 48, from 58 12 days before. It's dropping... and that was without any chemicals/toxins... it went down on its own. Oh please - come on 37!!!! We'll see... I don't know how frequently the Dr will check his CA19-9, but I do know his blood is checked weekly for chemo. He is doing the 12 weeks of Chemo AT HOME in SC... he's really enjoying being back at home and HAVING ENERGY again...anything is better than the DEATH HE WAS LIVING during RADIATION...

    over 8 years ago
  • DaveWaz's Avatar
    DaveWaz

    Sounding good! Please keep us posted!

    over 8 years ago

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