Removal of rectal tumor - JimmyB

Procedure or Surgery Associated with Gastrointestinal Stromal Tumor (GIST), Colorectal Cancer. Posted on December 23, 2018 View this journey (4 Experiences)

I had a ileus which kept me in the hospital for an extra 8 or 9 days. That wasn't too bad except that the doctors couldn't tell me from day to day when I may be able to leave. But I had excellent care!
My entire rectum was removed and I've now had an ileostomy for about 6 months while I complete chemo.
I will have reversal surgery sometime around February, 2019.
It took a couple months to get my stoma output regulated.
I take many meds, including antidepressants, and ADHD meds. My liquid stoma output meant that my meds weren't getting fully absorbed so I had unexpected bouts of depression and anxiety, as well as withdrawal symptoms.
I've lately had a few bowel movements. They are urgent-feeling, painful, and (as I've seen described before) I'll have to go three times in 30 min. often continuing to feel slight pain and the urge to go, for hours after, though nothing comes out - this is while I still have my ileostomy.
I hadn't thought about it much before, but now that the reversal is coming up, I worry about LARS. I've read here about many people who suffer greatly with tens of bms a day and significant pain, for months or years.
I hated my ileostomy (though I've always been incredibly grateful that I always knew it would be reversed - I know I'm so fortunate), but of late, I've felt that the painless ileostomy may be better than LARS.
I'm sorry if that's insensitive to people with irreversible stomas. I know I'm lucky, fortunate, and blessed compared to so many others. Still sucks though :)

Went as Expected: Agree
Minimal Recovery: Disagree
Minimal Side Effects: Neutral/NA
Minimal Impact to Daily Life: Disagree
1 Comment
  • JaneA's Avatar

    I am a Stage IV rectal cancer survivor. I was given a choice between complete removal and a permanent colostomy or a low anterior resection with reversible ileostomy. Since I had pelvic radiation before the surgery to help reduce the risk of recurrence, I felt that there were overwhelming odds that I would have LARS. That was 3 1/2 years ago, and I'm doing fine with the colostomy. I exercise and am active. I believe that the larger centers do a couple of tests to evaluate you sphincter muscle. Ask lots of questions - best wishes for treatment success.

    over 1 year ago

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