Cancer has spread/Metastasized - LauraRem

Oh No Associated with Adenocarcinoma, Lung Cancer. Posted on October 30, 2018 View this journey (7 Experiences)

Results of my second rescan since starting chemo showed the cancer had progressed. Was much more prepared for this possibility this time than I had been after my first rescan. This was the first time, though, that the oncologist asked me if I wanted to continue treatment. I decided that I would do another round ( cycle?). That will get me past Christmas. The prognosis is that when I stop treatment I will live about 2 months. Of course I read all the time of others in similar circumstances who are still going 2, 3, 5 years down the line, but I wonder what the statistics are for even making it past 2 months? I didn't want to die near the holidays and have future holidays saddened at that anniversary for my son. I was expecting the results to come back better, with perhaps no growth of the tumors, or very minor growth, but it seems nothing we have tried yet has done much to it. The good part is that it hadn't spread anywhere new except further along the bones. I am sad and disappointed, but not shocked. Better get myself moving along faster on some legal paperwork. Blessings to everyone who is dealing with this wily disease.

10 Comments
  • ddeangelis' Avatar
    ddeangelis

    LauraRem: What kind of treatment are you currently receiving? Have you been on immunotherapy yet? (Opdivo or Keytruda)

    over 1 year ago
  • Journey's Avatar
    Journey

    LauraRem- Sorry that your scan did not come out better. Cancer is so devious. You seem so organized about your situation. I wish you all the best. You are so thoughtful and courageous.

    I was just told that my cancer appears to be growing in the scare tissue (lower part of middle lobe) where my LR lobe was removed. The interventional radiologist said that he could not do the biopsy because it would be too dangerous. I am waiting to see what I do next. I am trying to stay calm, but I am not. I need to be strong and hopeful like you. Thank you for sharing your journey.

    over 1 year ago
  • LauraRem's Avatar
    LauraRem

    Ddeangelis, I am currently on something called Gemzar. It is a chemotherapy. I did have an immunotherapy drug, keytruda, along with a chemo drug during my first round of treatment, but got an all over body rash reaction and had to stop taking it. Then I was on a chemo treatment called Abraxane, and now the Gemzar. I read lots of good things about the immunotherapies, it seems they are helping a lot of people. I have a history of autoimmune disease and evidently that causes my immune system to go more active than desired, as it attacked my own skin. I hope you have good results if you try one, and I hope your treatment goes well.

    over 1 year ago
  • LauraRem's Avatar
    LauraRem

    Journey, I am so sorry to hear this news. This cancer is something else! you have been through a lot for a long time! Cancer may be amazing, but people are amazing, too. I think the waiting to see what to do next is the anxiety producing part, because while you wait there is no plan and you don't know yet what you are going to do. I hope once you and your doctors decide what your response is going to be, you will feel calmer and be able to focus on doing it the best you can. I just had to go for a month with no treatment to have a scan, and that month made me very anxious because nothing was being done to fight the cancer and it could grow unimpeded. Just waiting for that time to pass made me impatient. But time always passes quickly, no matter what, and I feel better and stronger because I am in treatment again. I am doing something, I am following my plan. I hope you will feel better when you have a new plan in place, too. Please let me know when you do. My heart is with you as you go through this new wrinkle.

    over 1 year ago
  • Journey's Avatar
    Journey

    LauraRem-Thank you so much!

    over 1 year ago
  • ddeangelis' Avatar
    ddeangelis

    LauraRem and Journey: I'm wishing you all the best with your treatments and may God bless you all through your cancer journey.

    over 1 year ago
  • Journey's Avatar
    Journey

    ddeangelis- Thank you!

    over 1 year ago
  • wmsavs' Avatar
    wmsavs

    LauraRem, I want to ask you a question but first I will give some background to you. I am a caregiver for my wife who is presently being treated for Stage IIIA lung cancer with Keytruda and a chemo cocktail of Alimta and Carboplatin. This cocktail has stabilized her cancer for better than 2 years. My question is: Why did you give up the Keytruda because of that side-effect and not considered treating the cancer and treat the rash separately or was it determined as an allergic reaction? If it was not an allergic reaction would you consider revisiting. Doctors test your biopsy to determine effectiveness of immunotherapies.

    over 1 year ago
  • LauraRem's Avatar
    LauraRem

    Wmsavs, the rash was determined to be a side effect of the keytruda for me. I had carboplatin and keytruda concurrently, and when the rash developed they stopped the keytruda. When I finished that first 3 months of treatment and they did a rescan, the cancer had progressed. The next 3 months I was treated with carboplatin and Abraxane, and another scan was done and the cancer has progressed. They have now placed me on a drug called. Gemcitabine or Gemzar. So the rash was seen as a side effect, but the cancer also progressed. Had the cancer not progressed I would have asked to stay on the regimen despite the rash. Your wife sounds like she is doing really well. I am so glad to hear of this. Thank you for your care and concern. I had a biopsy and was tested for different mutations, I did not test positive for any of them, guess it is garden variety adenocarcinoma. If you hear of anything that might be effective for someone like me, please let me know, I will happily ask my doctor about anything. Blessings to you and your wife.

    over 1 year ago
  • DanielD's Avatar
    DanielD

    I'm brand new to this and don't have anything substantial to offer in the way of my own experience or knowledge that I've picked up.
    But I'm blown away by your note. Hard to wrap my mind around dealing with a 2 month window, getting through Christmas.
    I buried my wife after nine years of HepC and a liver transplant. I'm painfully familiar with the other side, with being the caregiver. It's really bizarre, it's mind boggling to be in the role of the one who's being cared for, who's fighting for his life.
    My thoughts are with you, Laura. God bless you.

    about 1 year ago

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