Severe rash, muscle & joint pain, low white cell count, hair loss - Marianne

Side Effects Associated with Endometrial (Uterine) Cancer. Posted on October 4, 2012 View this journey (7 Experiences)

The first side effect I experienced, starting in the evening of the second day after the first treatment, was muscle & joint pain, which lasted three or four days. I used oxycodone sparingly, mostly at night so I could sleep. Otherwise, Tylenol.

The worst side effect, which began around day four, was a rash-- hot, intense itch. Nothing topical touched it. Finally the doctor's office prescribed a steroid pack which consisted of a large dose on the first day and tapered down, over 6 days. I forget what it's called. As the steroid was doing its work, witch hazel seemed to be the best topical remedy, then cornstarch/baking soda mix on top of that. For the next treatments, I took the steroids in advance, starting the day after the infusion, so I didn't develop the rash again. It worked.

For low white blood cell count, I received Neulasta after the 2nd, 3rd & 4th treatments. They told me to expect some bone pain, but to tell the truth, I couldn't distinguish between the pain I was already experiencing in my muscles & joints, so it really didn't make much of a difference.

At first the thought of losing my hair really bothered me. At 64, I maybe had a half dozen gray hairs. My hair was dark brunette, thick, and very curly. I loved my hair. It was my best feature. It began to fall out a couple of weeks after the first treatment. At first my head was quite sensitive to touch, but after awhile it settled down. when a few stragglers remained, I had the rest of the hair shaved off. I had already bought a very cute, spiky, sassy wig, so I was ready. Plus, I developed a collection of head coverings that were lots of fun. I dressed them up with jewelry, pins, glittery buttons, flowers. I figure that if you're going to go through a hard time, you might as well make the best of whatever you've got. Every day, my neighbors, my friends & my parents looked forward to seeing what I would wear on my head. It became quite fun. I got a second wig, a little more subdued than the first, and I had a good time with scarves & headbands.
On the plus side, regarding hair loss, I didn't have to pluck chin hairs for a couple of months.

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