What will I do next? - MiriamMarino

Decision Point Associated with Multiple Myeloma. Posted on March 15, 2019 View this journey (7 Experiences)

When I began treatment for relapse Myeloma in January 2018, I was told it would run through June 2019, a total of 18 months.
Now, I am advised treatment must continue beyond that time with the goal to stay in remission.
While I am so very thankful the treatment has worked to attain remission, I am wondering how long I wish to endure the side effects of chemo in order to stay in remission.
The treatment has been modified to once a week infusion every other week, as opposed to twice a week for three weeks in a row and one week of rest. The modification of treatment is par for the course. It was expected. But ongoing treatment beyond 18 months was not expected.
So, it is decision time.
I have to decide if it is ok for the quality of my life to be impaired moderately by treatment, or stop treatment after June as originally planned.
Praying about this as I breathe.
Thank you for letting me share my thoughts.
Your feedback is appreciated.

  • MiriamMarino's Avatar

    If I may add, the use of the word moderate to describe the impairments I currently experience is just my way of staying positive through it all.
    It's more challenging than I want to admit out loud.
    I am fighting back.

    over 2 years ago
  • Bridgettj's Avatar

    I'm at a decision point now too. Should I have the transplant now or not. I hate feeling sick. Five years in and having tried every oral drug... Bridgett [email redacted]

    about 2 years ago
  • MiriamMarino's Avatar

    What did you decide Bridgettj?

    almost 2 years ago

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