BEGUN 12/3/13 WITH CABOCITABINE, AN FDA APPROVED DRUG FOR USE INTREATMENT OF MEDULLARY THYROID CANCER - moxie

Clinical Trial Associated with Bile Duct (Cholangiocarcinoma) Cancer. Posted on December 24, 2013 View this journey (9 Experiences)

THEY STOPPED THE CHEMO FOR 30 DAYS AND ROSY BEGAN A CLINICAL TRIAL ON 12/3/13 WITH AN FDA APPROVED DRUG CALLED CAPCITABINE USED IN THE TREATMENT OF MEDULLARY THYROID CANCER. SHE HAS BEEN PARTICIPATING IN THE TRIAL FOR 4 WEEKS. WE JUST CAME HOME FROM A FOLLOW UP VISIT TODAY; DUE TO A RISE IN HER LIVER ENZYMES, EXCESSIVE TIREDNESS AND SKIN REACTION[COMMON SIDE EFFECT: SENSITIVITY/SENSATION CHANGES, NEUROPATHY IN HANDS/FEET]...THEY ARE HAVING HER DISCONTINUE THE MEDICATION FOR 1 WEEK. WE GO BACK NEW YRS EVE FOR ANOTHER BLOOD TEST TO CHECK THE LIVER ENZYMES. PROVIDED THEY ARE BETTER AND HER FATIGUE AND OTHER SIDE EFFECTS ARE IMPROVED, THEY WILL RESTART THE CLINCIAL TRIAL DRUG AT A REDUCED DOSAGE. IF NOTHING CHANGES IN THE BLOOD TESTS OR SIDE EFFECTS, THEY MAY SUGGEST THAT SHE HAVE ANOTHER PET SCAN SOONER RATHER THAN WHEN IT IS NEXT SCHEDULED FOR 1/26/14. DESPITE THE SIDE EFFECTS, ROSY MAINTAINS HER SENSE OF HUMOR, AS DO I. TWO WEEKS AGO WE WORE CLOWN NOSES TO THE FIRST FOLLOWUP VISIT AND ASKED IF WE SHOULD HAVE CALLED TO REPORT THE NASAL CHANGES AS A SIDE EFFECT SOONER. WE GOT A LOT OF LAUGHS FROM THE STAFF. [AND BESIDES, WE BOTH LOOK REALLY GOOD WITH CLOWN NOSES].

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