My Eyeball kept falling out of my head - Nursesknow

Side Effects Associated with Intraocular Melanoma (also called Melanoma of the Eye). Posted on May 3, 2015 View this journey (9 Experiences)

OMG, it sounds like a country song, doesn't it. To understand why my eyeball kept falling out of my head, it's important to understand the surgery I experienced. I went to MD Anderson after flying to Philadelphia became cost prohibitive. I saw Dr. Gombos at MD Anderson. I wanted my right eye taken out. I know the risk for mets is the same. I've read everything written, digested it, read it again, synthesized it. I understand risk/benefit. I had the honor of teaching healthcare ethics at the University of Texas at Austin. The choice was mine. I "felt" better with the eye out; I felt better emotionally. Unfortunately, when I woke up, I felt like someone was stabbing me in the head. After copious amounts of narcotics and Gabapentin 2400 mg in divided doses, I was able to control the pain enough. The, about a month later, the pain stopped pretty much. I don't take narcotics and take gabapentin 200 at bedtime for some little twinges. Who knows why, but it was the worst pain of my life. The mastectomy pain with 10 hour surgery was a 8 and the eye thing was a 10 and if you would have told me that it would stay forever, I would not be able to handle it at all. So all three times the ocular melanoma was found was through Tom Henderson in Austin, it's the eye clinic of Austin and he is THE MAN!!! The retinologists disagreed with him so I flew to Philadelphia again for a 3rd, 4th, 5th, and 6th opinion by THE TEAM and Henderson was CORRECT. I owe my life to him a thousand times over. I did my genetic testing last week. I'm finally up north in Oregon and not in Texas anymore. I miss my friends and family, especially my sister, but the heat was killing me. Her husband has SLE too so I hope they move up here soon. It will benefit him too. Anyway, way the doctor cut my eye out, something happened that caused my my lower lid to not have tension or muscle strength. it happened over time...like the nerve cut or something. So over time, my prosthesis started to fall out of the socket, especially when I would lean over (which I do as someone who assesses people regularly. I went to a plastics guy in Austin and i thought he was going to cry when he saw what the ocular oncologist had done. That's when I got sick with what turned out to be lupus and lost my insurance etc etc. I moved up to Portland and my new system fixed my eye lid. I have to say, that I have the best healthcare I have EVER had here in Portland. I wish i could be a nicer patient but I know too much so I take laziness personally. For the last month, my eyebal had stayed in my head and the great part about having that nerve cut is I felt NOTHING when the wonderful Dr. Koo fixed my lid. Nothing. My jaw got tense someone but I took tylenol and ibuprofin. No nerve-no pain! There is always a silver lining.

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