Experiences with Oh No experiences

    • bbane1970
    • Experience with Myelodysplastic Synd...
    almost 5 years ago
    bbane1970's Avatar

    Diagnosed

    Oh No

    Hi, I was diagnosed with MDS 2 weeks ago...I guess I will probably be having a few questions. Any experience/wisdom is welcome. Thanks

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    0 Comments
    • maryl
    • Experience with Myelodysplastic Syndrome...
    about 5 years ago
  1. over 5 years ago
    exlibris0201's Avatar

    Oh No

    Diagnosed in August 2013. They couldn't figure out what was wrong with me for the longest time. At first they thought I was bitten...

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    0 Comments
    • NeilNZ
    • Experience with Myelodysplastic Syndrom...
    over 5 years ago
    NeilNZ's Avatar

    Oh No

    How one day can change everything! I've decided to write about my experience having being diagnosed with MDS in the hope it will hel...

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    1 Comment
  2. over 5 years ago
    VickieGelso's Avatar

    GVHD of gut

    Oh No

    In January of 2013, I had a GVHD episode for the intestines...I was in the hospital for 2 weeks, treating diarrhea, nausea, abd pain...

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    1 Comment
  3. almost 6 years ago
    VickieGelso's Avatar

    have Jak 2 mutation with the mds, and myeloproliferative disease as well.

    Oh No

    When I was diagnosed in May 2010, bone marrow biopsy showed not only mds, but Jak 2 present, which is a rare complication assoc with...

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    1 Comment
    • merry
    • Experience with Myelodysplastic Syndrome...
    almost 6 years ago
    merry's Avatar

    Oh No

    After 3 years of being tired and blood levels being too low to donate blood, my Doctor finally referred me to an Oncologist/Hematolo...

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    1 Comment
    • samcat
    • Experience with Myelodysplastic Syndrom...
    about 6 years ago
    samcat's Avatar

    Oh No

    Diagnosed with myelodisplastic syndrome ,not really sure of all the ramifications

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