Experiences with Misdiagnosed

Being misdiagnosed can cause a lot of anger and “Why me?” questions for cancer patients. It is already difficult to hear that you have cancer; if a cancer misdiagnosis leads to delayed treatment plans, that misdiagnosis can put you in danger and leave you with a lot of “What if?” scenarios. Maybe your primary care doctor missed the signs, maybe you failed to get a second opinion, or maybe you overlooked routine tests you could have had done due to a family history of cancer. Whatever the reason for the cancer misdiagnosis, you cannot blame yourself. It is important to focus on today and what can be done now that you know about your cancer.

A lot of WhatNexter’s who have dealt with a cancer misdiagnosis have experienced anger, however they all agree that the only thing to do is focus on the present. Other than that, there is little you can do when dealing with a cancer misdiagnosis. Advice WhatNexter’s have gleaned from their misdiagnosis include seeking a cautious doctor, keeping family history in mind, getting a second opinion, and following your gut instinct. Anger is a big result of misdiagnosis. Albeit hard, it is important to deal with the anger you have. Share how you have overcome obstacles in your journey, ask, and answer questions below.

  1. 2 months ago
    MaggieB58's Avatar

    Misdiagnosed

    Oh No

    First the mammogram, then the repeat mammogram with ultrasound. 1 lump. Then Dr office misplace my pre-auth paperwork for MRI. P...

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    2 Comments
    • LJJ
    • Experience with Breast Cancer
    3 months ago
    LJJ's Avatar

    Misdiagnosed

    Oh No

    Testing for HER2 biomarker was not conclusive and almost started chemotherapy. I insisted on sending my tumor sample to an outside ...

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    0 Comments
    • Cyn61
    • Experience with Pleural, Mesothelioma
    3 months ago
    Cyn61's Avatar

    Misdiagnosed

    Oh No

    It is mesothelioma not adenocarcinoma. Took a throrascopy and biopsies during the pleurodesis (which put him in terrible pain) to r...

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    0 Comments
    • Potta
    • Experience with B-Cell Lymphoma
    4 months ago
    Potta's Avatar

    Misdiagnosed

    Oh No

    I was an EMTS and my boss was sending me to a hematologic, and to the hospital for blood transfusions, I was on prescriptio...

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    0 Comments
    • Kdrw
    • Experience with Transitional Cell Carcino...
    5 months ago
    Kdrw's Avatar

    Misdiagnosed

    Oh No

    Spent over a year seeing doctors. My husband was told "you look to healthy to have cancer" and never ordered a scan, although we be...

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    0 Comments
    • LoraL
    • Experience with Small Cell, Lung Cancer
    6 months ago
    LoraL's Avatar

    Misdiagnosed

    Oh No

    Needle biopsy missed it... I was told I was cancer-free and told to return in 6 months. Two weeks later my sodium bottomed out and w...

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    0 Comments
  2. 9 months ago
    seekthealth's Avatar

    Misdiagnosed

    Oh No

    I misdiagnosed myself thinking that I had hepatitis B. So I took herbal medicines for 8 months. Symptoms were very similar. Big surp...

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    0 Comments
    • Renee72
    • Experience with Non-Hodgkin Lymphoma (...
    10 months ago
    Renee72's Avatar

    Misdiagnosed

    Oh No

    Was told I had phnemonia

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    0 Comments
  3. 10 months ago
    roLindeman's Avatar

    Misdiagnosed

    Oh No

    went in in April due to suspicions things were not good, was sent away with an "all is fine" diagnosis, even after mammo. Good thin...

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    2 Comments
    • Phylte
    • Experience with Primary Central Nervous...
    10 months ago
    Phylte's Avatar

    Misdiagnosed

    Oh No

    Was sent home after ER CT scan clearly showed location and specificity of cancer.

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    0 Comments
    • Blaze
    • Experience with Adenocarcinoma, Cervical...
    11 months ago
    Blaze's Avatar

    Misdiagnosed

    Oh No

    I never had a questionable Pap smear and had never been co-tested for HPV. At the time I was diagnosed I didn't know to ask for HPV ...

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    0 Comments
    • coravix
    • Experience with Adenocarcinoma, Anal C...
    11 months ago
    coravix's Avatar

    Misdiagnosed

    Oh No

    Initially the doctors beleived my wife had an extreme case of hemeroids and a rectal fissure. It took a little over a year for them ...

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    0 Comments
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