Experiences with Misdiagnosed

Being misdiagnosed can cause a lot of anger and “Why me?” questions for cancer patients. It is already difficult to hear that you have cancer; if a cancer misdiagnosis leads to delayed treatment plans, that misdiagnosis can put you in danger and leave you with a lot of “What if?” scenarios. Maybe your primary care doctor missed the signs, maybe you failed to get a second opinion, or maybe you overlooked routine tests you could have had done due to a family history of cancer. Whatever the reason for the cancer misdiagnosis, you cannot blame yourself. It is important to focus on today and what can be done now that you know about your cancer.

A lot of WhatNexter’s who have dealt with a cancer misdiagnosis have experienced anger, however they all agree that the only thing to do is focus on the present. Other than that, there is little you can do when dealing with a cancer misdiagnosis. Advice WhatNexter’s have gleaned from their misdiagnosis include seeking a cautious doctor, keeping family history in mind, getting a second opinion, and following your gut instinct. Anger is a big result of misdiagnosis. Albeit hard, it is important to deal with the anger you have. Share how you have overcome obstacles in your journey, ask, and answer questions below.

    • judys3cats
    • Experience with Triple-Negative Bre...
    1 day ago
    judys3cats' Avatar

    Misdiagnosed

    Oh No

    I initially went to the first medical facility where I was treated for my first breast cancer. Sadly, that institution deteriorated...

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    0 Comments
    • Loraine
    • Experience with Adenocarcinoma, Prosta...
    1 day ago
    Loraine's Avatar

    Misdiagnosed

    Oh No

    I was called in early in the morning by my family physician who was off for the day but came to see me. He said I had a PSA of 43. ...

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    2 Comments
    • Simon
    • Experience with Kidney Cancer
    8 days ago
    Simon's Avatar

    Misdiagnosed

    Oh No

    Stage 3 Kidney Disease w tumor on right kidney

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    0 Comments
    • Katwmn63
    • Experience with Colorectal (Colon) Ca...
    26 days ago
    Katwmn63's Avatar

    Misdiagnosed

    Oh No

    I went to the ER thinking I was having a gall bladder attack and preparing for emergency surgery. Came out with the knowledge I had ...

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    1 Comment
  1. about 1 month ago
    kendalm's Avatar

    Misdiagnosed

    Oh No

    I went to the ER after my first seizure and they accused me of being drunk and sent me home.

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    0 Comments
    • Jane42
    • Experience with Adenocarcinoma, Colorec...
    about 1 month ago
    Jane42's Avatar

    Misdiagnosed

    Oh No

    I had pain in my right, lower abdomen. Went to urgent care, who sent me to ER for a CT Scan. In and out of ER for several weeks, t...

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    1 Comment
    • KarlaZ
    • Experience with Breast Cancer
    4 months ago
    KarlaZ's Avatar

    Misdiagnosed

    Oh No

    After lumpectomy, was told not Her2 and 6 months later came back because I was. Went to a new Hospital. I was very angry that the fi...

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    0 Comments
  2. 4 months ago
    Jolicross' Avatar

    Misdiagnosed

    Oh No

    October 2010, Age 40. Gave birth to 6th child with husband. Had extreme pain in ribs and found lump in left Breast. Doc said Breasts...

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    0 Comments
  3. 4 months ago
    PattyT6565's Avatar

    Misdiagnosed

    Oh No

    Not necessarily a misdiagnosis, but my symptoms all pointed to some type of anemia. It wasn't until I had a bone marrow biopsy that ...

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    2 Comments
  4. 7 months ago
    MaggieB58's Avatar

    Misdiagnosed

    Oh No

    First the mammogram, then the repeat mammogram with ultrasound. 1 lump. Then Dr office misplace my pre-auth paperwork for MRI. P...

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    2 Comments
    • LJJ
    • Experience with Breast Cancer
    8 months ago
    LJJ's Avatar

    Misdiagnosed

    Oh No

    Testing for HER2 biomarker was not conclusive and almost started chemotherapy. I insisted on sending my tumor sample to an outside ...

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    0 Comments
    • Cyn61
    • Experience with Pleural, Mesothelioma
    8 months ago
    Cyn61's Avatar

    Misdiagnosed

    Oh No

    It is mesothelioma not adenocarcinoma. Took a throrascopy and biopsies during the pleurodesis (which put him in terrible pain) to r...

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    0 Comments
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