I have many side effects from FolFox - PattyF

Side Effects Associated with Colorectal (Colon) Cancer. Posted on June 12, 2019 View this journey (2 Experiences)

fatigue, thinning hair, neuropathy, muscle spasms/cramps, tingling in fingers, blisters on hands and feet, nausea.

1 Comment
  • medale's Avatar

    @PattyF sorry you have to go through all this! I was also diagnosed with stage IIIC colon cancer in 2017. I was 47 at the time and luckily the tumor started bleeding and I went to the doctors. After a partial colectomy I started 12 rounds of FOLFOX.

    After 8 rounds the neuropathy in my fingers and toes was permanent and my oncologist stopped the Oxaliplatin. I still don't have all the feeling back but it's better than during the treatment. So make sure you discuss the side effects with your care team so they can adjust as needed. They can help with so many symptoms but only if they know.

    For me, the fatigue got almost exponentially worse towards the end. But keep moving any way you can (nature walks?) which somewhat counter-intuitively helped with the fatigue and might have made the treatments more effective.

    But I was so exhausted after my last treatment that I was in bed for days and then developed a blood clot (deep vein thrombosis - DVT). Apparently, that was not an uncommon side effect and I wonder if I could have avoided it with more movement but I did not feel I had the energy at the time.

    Eventually, it all got better and I have been fortunate with clean scans for the last 1.5 years. You will get there too! Right around the half-way chemo mark I scheduled a vacation in my favorite location for after the treatment and found that looking forward to that helped me stay optimistic and focus. Sending you lots of positive energy!

    4 months ago

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