Researchers and physicians estimate that over 80,000 people in the United Kingdom are living with a brain tumor. Brain Tumour Research also suggests that 16,000 people in the UK are diagnosed with a brain tumor each year. As brain tumor deaths rise, but the five-year survival rate remains at just 12%, the need for research and treatments is more present than ever.
That’s why braintrust (a registered charity) and myTomorrows (a digital platform which assists with support in clinical trial access) are partnering to improve clinical trial access within this community.
According to braintrust, there are more clinical trials and potential treatments available for people with brain tumors than we have ever seen before. But considering inclusion criteria, brain tumor diagnoses, and different trial locations, it can be difficult for individuals and their families to learn about, research, and find the right trials.
Within this partnership, braintrust and myTomorrows will bring information on clinical trials, research, and other important elements to the brain tumor community. As shared on the “Brain Tumour Clinical Trials” page spearheaded by braintrust, the organizations will help people understand:
- What a clinical trial is and what it might study, such as whether a drug is as effective as an existing one, whether a combination of treatment works better than a monotherapy (one treatment), or whether giving a drug in a certain way might increase its effectiveness
- How clinical trials work, the different phases, and terms people might hear such as placebo or randomized
- Where someone can find brain tumor clinical trials, including information from myTomorrows, which offers trained patient navigators to help guide patients and families on their jouneys
- What people should think about before joining a clinical trial, such as how long the trial will last and how it might affect daily life
- The benefits and risks of a clinical trial
This partnership will be truly invaluable in improving understanding and access to clinical studies for the brain tumor community. Learn more about brain tumors in adults here and in children here.
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Last modified: May 9, 2024
