Consultation - so4getful

Other Care Associated with Hemangioendothelioma. Posted on April 8, 2012 View this journey (10 Experiences)

Doctors here never heard of EHE. Through research I found a hospital with some experience with this type of sarcoma: The Dana-Farber Cancer Institute in Boston, MA. Called them, made an appointment with a specialist there for mid March 2012. Gathered medical records from past 10 years (at this point, suspected past Renal Cell Carcinoma from 2003 was EHE and misdiagnosed) had all images, studies, and slides sent to DFCI.

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