Diagnosed - so4getful

Oh No Associated with Hemangioendothelioma. Posted on April 8, 2012 View this journey (10 Experiences)

Pathology comes back Epithelioid Hemangioendothelioma. Surgeon never heard of it, didn't even know it was cancer. I was told about it over the phone at work; figured I'd look it up later. Wife looked it up sooner and called me back and told me I needed to read what this was... It's a rare cancer of the lining of my vascular system; slow moving; incurable; in both my lungs. Scans showed indeterminate masses in the liver and on the poles of my left (partial) kidney as well. Stage 4 with hemorrhagic symptoms.

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