TJM's Avatar

Cancer is back/Recurred - TJM

Oh No Associated with Lymphoma, Colorectal Cancer. Posted on November 3, 2011 View this journey (6 Experiences)

In my 50's. I had a TEM procedure in 2008. No big deal. Was not offered Chemo or radiation. Not told of the high recurrence rate 20% and most show up in 1st 3 years. Follow up was for 1 and 1/2 years. !st 6 mo signoid. 2nd 6 mo colonoscopy and 3rd 6 mo another sigmoid. Margins clean as of July 2010. In June 2011 I suddenly felt pain on left side that wouldn't go away and intensified on deep breaths. Went to hospital. Misdiagnosed as cardiac and had full workup including heart catheter. Discharged. Began having gastro symptoms before discharge that rapidly became worse until I began suffering excruciating rectal pain that totally disabled me 2 weeks later. Another week and I was back in the hospital with a massive blood clot in my left neck and rectal pain so bad i thought I was goig to die. So did the Doctors. Good news was that the blood clot didn't give me a stroke and they could treat it. Bad news was they had to scope me and pathology analysis showed the cancer had returned and matasticized in lymph nodes up to my aorta...stage 4. Probably wouldn't leave the hospital. However, i did survive and I'm on the protocol for advanced rectal cancer. * cycles of chemo...done! On to radiation and surgery consisting of lower anterior resection. The Doctors however, are stumped with the pathway of the spread...have never seen it before going this way. It is contained in the lymph nodes and not affecting other organs. But, radiating the 10-20 lymph nodes n the upper abdomen has risks and surgically addressing them is not an option. I'm going for a 2nd opinion at Dana Farber. I'm hoping someone has seen this pathway spread and so treatment /outcome can be more predictable than it is now.

Read more Lymphoma, Colorectal Cancer experiences about Cancer is back/Recurred .

Read and answer Lymphoma, Colorectal Cancer questions.