• Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Possible skin cancer???

    28 answers
    • Ashera's Avatar
      Ashera

      Good luck Bengal! You and I seem to run on the same train schedule when it comes to tests! Next week is my 5 yr 3D mammo. there's a nice little clinic minutes away from me that I discovered I could do my big labs and...they do the 3D scans. I've been in once for a thyroid blood draw and felt safe there.
      I there learned my oncologist and entire cancer dept moved out of St Joe's hospital right after I had my 6 month check early March. They moved the entire dept into an older clinic what only has drs offices....no urgent, or ED - so no chance of covid air in the elevators. All right in the door, temp, questions - then 20 feet through another door and it opens right into the cancer dept. So my face/face real visit with my beloved oncologist will be the next day after my mammo and labs.
      So...I'm doing the high-anxiety, extra lorezapam pre week scananxiety. This is the 5 yr mark with no AIs or Tamoxefen. Triple positive..

      Anyway - about your weirdness on your face. Glad you're getting a biopsy. I developed a quarter size...thing on my forearm after chemo. told it was nothing - 'urticaria of unknown origin' - compounded steroid type of cream to rub on forever. Crusty, peeled, never went really down or away. 2nd dermo visit with more concern for my hair that didn't come back (Taxotere) and he said the lesion on my arm sometimes takes a long while to heal. I started using argan oil, and pretty much anything. I'm in MN so winter is hard on all skin so I seriously watched this spot. I was going this year to see the dermotologist again - please do a biopsy? But Covid made me rethink a lot of ideas I had. It's no worse - just...there.

      Anyway - much positive everything being sent to you for your upcoming fun stuff! Please post so I know the outcome, I will as well!

      10 days ago
    • Lorie's Avatar
      Lorie

      Ashera, I had my 5 yr. 2 weeks ago. Same train....no Al's or tamox. I know the anxiety. Turned out clean. Yours can too. Waiting to hear that of yours.

      10 days ago
    • Ashera's Avatar
      Ashera

      Thank you Lorie! I'll post next week.

      9 days ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    For those with ER+ breast cancer diagnosis re: soy in everything these days

    15 answers
    • legaljen1969's Avatar
      legaljen1969

      @Ashera, never mind. I just looked some of it up. Wow!! There truly is soy in almost everything. I am going to be having a major change in my nutrition. I think I am going to have to throw out almost everything in my kitchen.
      I know healthcare is expensive, but so is eating completely soy free. One of the sites I saw had eggs @$9.95/dozen in 2017. I can only imagine they are closer to $12 now. Nothing is inexpensive for sure. I think my grocery budget is going to increase 500-700%. I guess I better get a second job. LOL

      2 months ago
    • MarcieB's Avatar
      MarcieB

      You know, we could scare ourselves to pieces if we aren't careful. (!) I never really thought that much about it, but now I just checked my favorite chocolate bar and sure enough - soy lecithin. What the XXX is soy lecithin? Even my popcorn cake, that is topped with dk chocolate has soy lecithin on the label (probably in the chocolate). I have to admit it kind of freaks me. So I just re-read ChicagoSandy's post and am relieved to note it was not one of the first four ingredients...still...I never realized it was ever there. I think balance is the key here - fresh food and splurge every once in a while with chocolate (for the soul). When you think about it, it's the best way to go anyway. I suspect the worry and anxiety about what we are ingesting could be more harmful than a few soy lecithins here and there. ;-)

      2 months ago
    • Ashera's Avatar
      Ashera (Best Answer!)

      Just this morning, heard something on a food show that made a bunch of sense to me : "If you look at the ingredients on the label of something...and there are items listed on that label, that you could not go to the shelves and find by themselves, why would you let the food manufacturer put it into your food?" Back to my statement about trying to eat single ingredient - real - foods.

      2 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Are any of you finding as this crisis goes on you are staying up later and later at night ?

    24 answers
    • legaljen1969's Avatar
      legaljen1969

      Bengal, I fear that is going to be the case for a lot of these elderly people in the assisted and long-term care homes. I fear many of them will die of loneliness and lack of hope. I guess the only good thing is that most of them seldom go "out" anyhow, so they probably don't miss going "out." Unfortunately it restricts the rest of us from moving about freely, so we can't go "in."
      Though my grandmother passed away a couple of years ago, I have no doubt she would have passed away from loneliness within days of the lockdown.
      My mother had to move her a couple of times within the few months that she passed away. The first place was independent living, and she needed more care. The place she moved to was a place she (my grandmother) had always heard was very nice. Once she got there though, she was miserable. It was out in the country. They prepared nice home cooked meals for the residents. It was not the usual mass produced institutional food (though now I wonder if what I saw was just a big show and they really didn't feed them the yummy stuff I saw them cooking). My grandmother was so sad all the time. Any time I called, she would beg me to come and get her and tell me how she hated living out "in the woods." They called my mother and told her that my grandmother was nearing her last days. She got quite sick and my mother took her to the doctor. Once she was at the doctor's office, she told the nurse she was not eating because she wanted to die fast because she was so sad. Of course that bothered my mother, and they moved her to another place so she would not be so sad. When she got to the new place, it was beautiful and bright. The caregivers were in and out of the room frequently. It was easy for her to have visitors. Her phone never worked quite right so my mother was going to visit every day. They did have one "lockdown" but we could go see her through the window. She was so excited that people could see her through the window.
      She died at 101 years old, so she had a good life. She passed away peacefully. I just know that she really did nearly die of loneliness and heartbreak in the second place. It has been my deepest regret that I had helped to move her to the second place. Loneliness can be very hard on some people. It has been very hard on me lately.

      4 months ago
    • Bengal's Avatar
      Bengal

      Legaljen 1969, I have been noticing that the obit. page has been huge lately. And it seems to be mostly the very elderly, folks in their late 80's and 90's, who are passing away. I live alone and this situation is really starting to weigh on me. It must be very difficult for the octa/ nonagenarians. At least residents in senior care have the staff to interact with. Some of these older folks still at home have no one. I hope folks are remembering to phone or text, email, Skype, Zoom or whatever, their parents, grandparents, etc.... Problem is, many elderly people are not up on all the technology.

      4 months ago
    • petieagnor's Avatar
      petieagnor

      We all have different life styles, cancers, issues, etc. I don't have a career, but I do work. My sleep is all over the place, but I try to stick to a routine. I mediate which helps the stress. I read my Daily Word from Unity. I'll check the affirmation several times to ease the stress. Keep busy for some type of exercise each day. I don't watch much news. I get the news on my tablet so I can flip through repetitive stuff. NOT good to hear about what you can't control over & over. I can go to any website & get what only pertains to me. Concentrate on your heath that you can control. A Dr. once told me to find something each that you enjoy & do it. This really helped me through my depressed days. I still do it. It doesn't have to be a big thing, just do it. I really hope this helps

      3 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Anyone else have a family member residing in any kind of healthcare or other type of communal living facility?

    22 answers
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      Bengal, I am so sorry this is happening to your mother and that you are going through such stress. :( I just prayed for you and your mother, and I'm with the others, please keep us updated. HUGS and God bless.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      We have several members of our family that are either nurses, PA's, one is a nurse anesthetist, he tested positive yesterday. His whole family is quarantined now. If those who are in the trenches doing the testing and treating are coming up positive despite their precautionary PPE, then the rest of us are more at risk than we think, if we are out running around through the general public.

      3 months ago
    • Bengal's Avatar
      Bengal

      Yah, this is what terrifies me. If, in spite of all the precautions they are taking in house, the doctor, the one they are supposed to depend on to protect their health, is the one who bringsCovid19 into their midst, what was the use of all those precautions. Hopefully they caught this in time. Everyone at the facility will be tested this week. They are stepping up their protective procedures even more. All we can do it wait. Thanks, everyone for your kind words of support. It does help!

      3 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Are you making use of takeout/home delivery restaurant services?

    12 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      No. I have made every meal since we were quarantined. We used to eat out A LOT and we had pizza delivered frequently ... none of that has occurred since we've been ordered to stay at home.

      Some of the lines at take-out restaurants, in particular Chick-Fil-A, are two deep and way out into the street ... I'm not willing to wait in long lines... The places without long lines are generally places I'm not interested in going...

      My daughter-in-law works for a steakhouse. Some evenings they have a lot of take-out customers and they're kept hopping and others, it is slow as molasses.

      I saw an interview with a seafood restaurant owner last night. They have purchased 5 vehicles and started a big take-out delivery business that he plans to continue after his restaurants are open to the public again. He believes it will greatly increase his (apparently already robust) business for the long-term. I was happy to hear something positive coming out of this. (At my house, the positive is that I have discovered a bunch of new, tasty recipes :) )

      4 months ago
    • Molly72's Avatar
      Molly72

      BuckeyeShelby-- Hope Tommy's Pizza is still open--- best pizza in the world!

      4 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Hey Molly. Of course, Tommy's is open. Granted, pickup or delivery only, but still. Tommy's is a Columbus destination....

      4 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Coronavirus creeping closer. Do you feel it's closing in?

    26 answers
    • Bengal's Avatar
      Bengal

      This does not seem possible but my county in New York, in the north on the Canadian border, has just earned the distinction of having the fastest rate of increase in Covid19 cases in the state including NYC. We have a population of less than 110,000 people. In a week and a half we have gone from 0 to 70 cases. That is a faster per capita rate of increase than the city! So, just goes to show, if you live in a rural area and think that will keep you safe... No, it won't.

      4 months ago
    • BoiseB's Avatar
      BoiseB

      Oh Bengal that is so terrible. The sad truth is that people who live in rural areas are actually more social than people who live in urban areas. I know I was raised in southern Idaho and they don't get more rural than that. There was a circle of acquaintances of 50 or more. When I moved to Salt Lake City after college. I didn't even know the name of the neighbor whose loud music was driving me crazy.

      4 months ago
    • Bengal's Avatar
      Bengal

      We had our first Covid19 death in my county today. County Sheriff's Dept posted travel restrictions today to try to impress upon people they HAVE to stay home. I had a doctor"s appointment today and noticed as I drove by Wal-Mart that the parking lot was full. I had thought I might stop there for a few things but when I saw the number of cars I just drive on by. Apparently peop!e are just not taking it seriously. Maybe the fact we now have a death statistic will impress upon some folks that this is as real up here as in NYC.

      4 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    WhatNexters in the New York Metro, Tri-state area.

    8 answers
    • Bengal's Avatar
      Bengal

      Carool, so glad to know you are doing OK! It has to be frightening to all who are trapped at the hotspots for coronavirus and being told by medical experts and the governor you have to say put to both avoid getting the virus and avoid possibly spreading it to other areas. We have a large summer cottage community here with people coming in from all parts of the country, some from as far away as Hawaii! I' m sure many are anxious to get to the perceived relative safety of their Adirondack getaway. Local governments here are asking them to PLEASE stay away. Our small local hospitals at just not equipped to handle a major outbreak.

      Please continue to stay safe. I see the images on TV of exhausted doctors and nurses at Elmhurst and cannot fathom what they are trying to cope with.

      5 months ago
    • Bug's Avatar
      Bug

      Thank you for asking about our friends, Bengal. It must be particularly scary being there. Be well, everyone.

      5 months ago
    • Carool's Avatar
      Carool

      Thank you so much, Beachbum, Kp2018, Greg, Bengal, and Bug, for your words.

      Bengal, I’ve heard about the situation you mention, and I empathize with the problems — and health risks — being faced by the local people. I think NYC residents should stay home until the eventual all-clear, however long it may take.

      Be safe, everyone.

      Carol

      5 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Has anyone had a personal experience related to coronarvirus yet?

    23 answers
    • BoiseB's Avatar
      BoiseB

      @Dawsonsmom. I am so sad to hear this news.

      5 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      Thanks Carool and BoiseB. I still don’t feel sick but armpit remains swollen so still being proactive. Fingers crossed.

      5 months ago
    • debbien507's Avatar
      debbien507

      Here in California, many places are closed including almost all of our schools. Today, our governor said that our schools may not reopen until the fall.

      5 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    The gift that keeps on giving. Now it's ulceration of the stomach lining

    11 answers
    • Kp2018's Avatar
      Kp2018

      Bengal, I'm with you and beachbum5817 on this. Chocolate is an essential nutrient for mental health when under stress. I sure hope the medication gives you immediate relief.

      5 months ago
    • andreacha's Avatar
      andreacha

      Bengal - I hope your new medication works. There's not too much worse than severe stomach pain. Don't know how I would do about taking chocolate out of my diet!

      5 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Bengal, yeah, stress eating is my friend, too. And chocolate is a necessity of life. I hope your tummy heals soon.

      5 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    What are the little annoyances you 've had to deal with since treatment??

    16 answers
    • Lorie's Avatar
      Lorie

      Flute player, is it that you are not strong enough or the problem isn't bad enough? If it's the aortic valve they have a minimally invasive procedure out now called TAVR. It's not open heart surgery and doesn't involve a pig valve.

      5 months ago
    • fluteplayer's Avatar
      fluteplayer

      It isn't available at our little local hospital and do not want to go to a Pittsburgh one and they say. It isn't bad enough to operate but they are leaking and the radiation is to blame.

      5 months ago
    • Lorie's Avatar
      Lorie

      Flute player, have it checked in future. Mine was just picked up on echocardiogram 3 years ago and now it's bad enough to replaced. If yours does get worse I hope you decide to drive to Pittsburgh. Take care

      5 months ago
  • Bengal's Avatar

    Bengal asked a questionBreast Cancer

    Evening primrose oil

    • GregP_WN's Avatar
      GregP_WN

      I have heard of it but have no personal experience with it. We hope it works for you.

      6 months ago
    • cak61's Avatar
      cak61

      It's been almost eleven years since my lumpectomy and six months after that I had a seroma that opened up.
      I had pain for several years, including those zingers of pain. I used an ice pack in the evenings for a good while.
      That area is still sensitive if bumped or rubbed.
      Don't have experience with evening primrose. Hope it helps.

      6 months ago