• BoiseB's Avatar

    BoiseB asked a questionEndometrial (Uterine) Cancer

    How can I help my children cope

    • carm's Avatar
      carm

      I am an oncology nurse. Can you tell me the name of that blood thinner? I can try to find a way to get it cheaper. When I speak to children I try to make them understand that with a cancer diagnosis, there are always ups and downs. However, it is a process and you have to learn to ride with the setbacks to get to the achievements. Family members are key to success. Their support does so much more than they realize when the patient needs a shoulder to lean on. Great warriors can lose a battle every now and then but they rarely lose the war. Best of luck to you and your family.

      2 months ago
    • beachbum5817's Avatar
      beachbum5817

      @BoiseB, I am so sorry that you are going through all of this. No matter their age, it is always hard for the children. I don't have any advice for you, because I don't know if I did anything special to help mine. Hopefully after your MRI, your son will sleep better. For me, the unknown and the waiting are the worst. I will remember all of you in my prayers. Take care.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Time was what helped my son. Once he realized my demise wasn't going to happen immediately, he seemed to settle down. He still worried, but not nearly as much as he did at first.

      Maybe your son can take a mild sleeping aid to help him get a good night's sleep. Losing sleep won't change your diagnosis/prognosis but could make him sick.

      2 months ago
  • BoiseB's Avatar

    BoiseB asked a questionEndometrial (Uterine) Cancer

    Fear of Falling

    18 answers
    • andreacha's Avatar
      andreacha

      I've had several falls. One new medication caused syncope twice. It's was so strange. I stood up and had no knowledge of what was happening until I felt the crack on the pavement and I became conscious. I don't know if any of you are on blood thinners. If you are and you fall and hit your head go to the ER directly to get a CT of your brain. Brain bleeds often occur. I removed all the small rugs from the kitchen because I've tripped over then more than once. On two separate occasions, I fell and landed on my back. Each time I fractured my spine and had to have a Kyphoplasty each time.
      What many in the group are saying about telephones is true. you've got to keep one on your person at all times. I even take mine to the bathroom! My girlfriend made me a short apron to wear at all times. It has 3 pockets with velcro. It truly has been a lifesaver. I had fallen in my living room which is tiled and my right side of my face and body took the brunt of it. My legs were a little weak and I could not get up. I had to call my daughter to come from the other side of town to get me up. the whole right side of my face was terribly black and blue so that meant another trip to the hospital for that CT.

      5 months ago
    • meyati's Avatar
      meyati

      A stupid doctor nagged me into taking a BP med to reduce my BP (my son has low BP, so he's on meds to increase his BP. He's always cold and takes spells of collapsing when he stands up). My BP was high because my thyroid pills were too high, and I had several primary care physicians that couldn't understand that I needed less thyroid. Anyway, I finally got scared and took BP meds-My BP was 220/ 120. I took the BP meds for a few days-and I felt light headed. I finally got where I felt more grounded, and I climbed on a chair to change a light bulb. I slid down onto the floor. I still have a big scar that runs from my ankle to my knee on my right leg. He wrote another script and I took it to the pharmacy, and they refused to fill it.

      He lost his license--he got into a fight with my radiology oncologist at the same time. He didn't tell his head nurse that I was a cancer patient that finished treatment in the last year, and he had her call me about my non-compliance. I referred her to the radiology/ONC--she called me back crying and apologizing (which seemed to cause a 2nd fight between him and my Rad/ONC), and the pharmacy sent in a complaint because of his BP prescriptions.

      Between having my face and nose pores seep blood from sun block-ER wanted to refer me to Oncology, ENT, hematologist, dermatologist, radiologist-which terrifies me about using creams on my face, Tylenol simulating an inner ear infection that causes lots of falls and fainting, mismanaged thyroid, having side effects from OTC cough syrup, BP meds dropping me like I had been shot in the head, I think that I'm very suspicious and fearful about doctors and meds.

      5 months ago
    • BoiseB's Avatar
      BoiseB

      I do have a mobile fall bracelet. The thing is it really doesn't prevent falls. Of course I did cancel the alarm because I didn't want them to call my son at 3am I am going to the Dr. on Monday I am searching for my medical records. I will definately ask her about my fear of falling

      5 months ago
  • BoiseB's Avatar

    BoiseB asked a questionEndometrial (Uterine) Cancer

    Notifications?

    • GregP_WN's Avatar
      GregP_WN

      Boise, I noticed that my notifications stopped about the same time, and I have been notified by a few others that they have the same problem. It appears to be a problem with our email delivery server. I have asked for some help from our tech people.

      5 months ago
    • BoiseB's Avatar
      BoiseB

      Thanks Greg.
      I thought it was my computer, The storm kicked be off the internet for a couple of days so I thought that was the reason but I checked my profile and all the boxes were still checked.

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I still am not getting the WhatNext Digest. Has the problem been fixed?

      5 months ago
  • BoiseB's Avatar

    BoiseB asked a questionEndometrial (Uterine) Cancer

    Notifications?

  • BoiseB's Avatar

    BoiseB asked a questionEndometrial (Uterine) Cancer

    Is an Integrative approch right for you?