• brizzjo's Avatar

    brizzjo asked a questionLung Cancer

    Hair

    4 answers
    • 2943's Avatar
      2943

      What chemo did you have? I am seeing a dermatologist due to hair loss with alimpta and carboplatin that could possibly been avoided with cold cap therapy. I lost about 75%. He feels I will get it back as one’s not appear I have ‘scarring’. May be worth a consult.

      3 months ago
    • wmsavs' Avatar
      wmsavs

      @brizzjo, some may or may not notice this difference in their hair growth pattern. Also, please realize that just as everyone's cancer is unique for treatment purposes, their reactions may specifically be also unique to them and be fewer for the treatment population. I state this not to diminish the severity of this recognized outcome for you but only to educate with limited responses of a posed question.

      3 months ago
    • Paperpusher's Avatar
      Paperpusher

      My husband lost all his hair during treatment but it grew back in thicker and darker than it was before with a bit of a wave in the back. So now he has less gray hair than he did before treatment.

      3 months ago
  • brizzjo's Avatar

    brizzjo asked a questionLung Cancer

    Has anyone had a problem with itching on their upper body from Keytruda? The rest of my body is dry but doesn’t itch.

    7 answers
    • wmsavs' Avatar
      wmsavs

      My wife is also a treated cancer patient who receives Keytruda among her treatments for her lung cancer. She has always had severe dry itchy skin and has intensified with the introduction of this treatment option. She has used an Aveeno moisturizing product which her doctors, her oncologist and the pharmacist all approve her using this product to alleviate most discomforts with her dry skin.

      I hope this helps you but before trying this, pass your consideration by your doctors and pharmacist prior to using this or any other means for controlling this very uncomfortable condition. I urge this since everyone on this forum has to communicate all new medications and any considered over-the-counter products. I hope this may also help you and please kee us posted.

      3 months ago
    • coffeecarole's Avatar
      coffeecarole

      Because of the Keytruda itch, the doctor at CTCA put me on two Benadryl tablets daily. It helps a little.

      3 months ago
    • 2943's Avatar
      2943

      I was told by Dr. To use Cetaphil liquid soap and Sarna anti itch lotion (over the counter). Has helped with itching and dry skin. I had major flaking! It is better!

      3 months ago
  • brizzjo's Avatar

    brizzjo asked a questionLung Cancer

    Transportation

    4 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      When I called the American Cancer Society about something else, they were pushing gas cards. I didn't feel comfortable accepting, because I was only like 3 miles from my treatment center. But you could try there.

      4 months ago
    • cllinda's Avatar
      cllinda

      The ACS also has volunteer drivers who will drive you to appointments.

      And many hospitals have a bus or van service that will pick up and take you to chemo or radiation. Mine had a van service that would pick me up and take me to radiation and then home again. It was so nice to get in a nice warm van and be driven to treatment. And the service was free!

      Just throwing this idea out there. I know money was very tight after my son's accident and my cancer.

      4 months ago
    • brizzjo's Avatar
      brizzjo

      I have a 2 hour round trip for my treatments. The American Cancer Society doesn't have any drivers available where I live, nor does the Office of the Aging. I drive myself both ways. (live in a very country area)

      4 months ago
  • brizzjo's Avatar

    brizzjo asked a questionLung Cancer

    No family support

    25 answers
    • Lolly916's Avatar
      Lolly916

      I understand how heartbreaking it is to feel that you are in this fight alone. Being young and having cancer, my family and friends don't understand. And I've realized that they just don't want to... Because discussing our own mortality reminds them of theirs, and that's too much for many people. I have many "healthy time" friends, but only a few that stay when things get rough. Cancer is a terrifying diagnosis to start, and facing it alone makes it even harder to deal with the emotional toll it takes. My advice is to find a support system elsewhere, online, from a professional, or at a local support group. You can also ask for an Imerman Mentor Angel like me, and then you'll have someone to talk to about all the gross details that somebody that hasn't been there doesn't want to hear! We are all in this with you... Please don't feel alone!

      6 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      It took my son awhile to get past the anger he had at me having cancer. He was nowhere to be found the first year or so that I fought it. I think the idea of losing me to cancer was so hard on his emotions that he estranged himself from me before i died. After a year or so, he got his feelings under control ... or it was apparent I was not going to die right away ... and came back to the fold and was more supportive than ever.

      My husband, his dad, had quadruple bypass surgery a few years ago. Our son was with him every step of the way, taking on all responsibility for caring for him. I think he was more solicitous than ever because of how he had treated me initially.

      Hopefully, your family will come around. I will say that i have driven myself to treatment for the last 3 or 4 years. No one goes with me. I am happy to go alone. I, too, have to drive an hour each way, through metropolitan traffic. The fact that no one accompanies me doesn't translate to me that they don't care. They just don't like spending a whole day at the treatment center. Honestly, neither do I!

      6 months ago
    • Larae55's Avatar
      Larae55

      I am so sorry. When I was diagnosed with breast cancer I had virtually no family there for me one sister and my daughters an occasional text. Someone I hardly knew took me to hardcore chemo infusions the ones that last six + hours!!! It was for four times I took myself to the other two. It's hard without family support I hope they come around but if not, I know you can do it!!!

      6 months ago