• BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Things have been quiet lately

    45 answers
    • legaljen1969's Avatar
      legaljen1969

      @BuckeyeShelby and @KB2013- I cannot imagine how scary and frustrating it must be to have to undergo things when you live alone. Sometimes we rely on another set of eyes or someone else's judgment- especially when we are not feeling well. We seem to need someone else to confirm we aren't completely losing it and the symptoms and pain we feel are all too real.

      I am glad both of you have been sprung from the hospital and inpatient care.

      Best wishes for continued event free recovery for you both.

      3 days ago
    • legaljen1969's Avatar
      legaljen1969

      @Pauline- I wasn't requesting or expecting an explanation or an answer. Obviously you know this, but you are under no obligation to answer or explain anything to me. I was merely offering to be a sounding board if you ever need someone to talk to or you would like to discuss anything further or privately off the board. No expectations dear, just an offer (and a sincere one at that).

      3 days ago
    • PaulineJ's Avatar
      PaulineJ

      I know .It was just a general answer from me.Nothing personal to you personally.I have a bad habit of explaining things on circumstance and not a individual.I guess it's a problem since others take it otherwise.I wish I knew how to say things like you.LOL!

      2 days ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    I am no longer homebound!

    11 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Yeah, but Bug, Ruskin is THRILLED those nurses won't be invading HER house..

      18 days ago
    • JustForToday's Avatar
      JustForToday

      Shelby, I am so happy for you. It constantly amazes me how things like a cancer journey (or a pandemic) humbles us. I was housebound for 3 months during chemo. When my immune system recovered and I could go out for walks, all the neighborhood dogs raced to me and wanted to be friends. I think my gratitude for the small joy of being able to be outside and walking was so palpable that the dogs recognized it. I hope your joy is so evident that you are welcomed to the world again, as well.

      17 days ago
    • Jayne's Avatar
      Jayne

      That is such great news, I'm sure you feel like a new woman!

      15 days ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Urban fantasy author passed away over the weekend

    4 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Maybe it has to do with her insurance. Working in the industry, I know some policies are touchy about stupid stuff.

      22 days ago
    • Bug's Avatar
      Bug

      BuckeyeShelby, I'm sorry about Rachel. That would have been nice to meet her in person.

      22 days ago
    • Carool's Avatar
      Carool

      I, too, am sorry about Rachel.

      21 days ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    My turn for a medication question - Megace

    • cards7up's Avatar
      cards7up

      Megace is not a cancer treatment. Might want to recheck the drug name.
      "Megace is a prescription medicine used to treat the symptoms of loss of appetite and wasting syndrome in people AIDS-Related Cachexia, breast cancer or endometrial cancer. Megace may be used alone or with other medications."
      https://www.rxlist.com/megace-drug.htm

      about 1 month ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      It is also used for endometrial and ovarian cancer. Chemocare.com/drug-info.

      about 1 month ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    CT results

    16 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @JaneA, i am glad i was misreading!!!! Will be praying for continued good results!!!

      For me, it is a little scary not to have scans as often, even though it is way better for us to get less radiation.

      As far as getting results right away, i know my doctor is not going to like that one bit. I understand his perspective. But, i will be glad to get the results quickly and before i see him.

      about 1 month ago
    • banditwalker's Avatar
      banditwalker

      Good to hear. Hope the Megace is kind to you.

      about 1 month ago
    • legaljen1969's Avatar
      legaljen1969

      Shelby, I am so glad to see some good news. Glad your wound is healing well too. I don't even know what "MyChart" is- I assume it your chart. LOL I know my doctors would not be loving it if this was a thing here. Maybe it is, but I just don't know it.

      Hello, my name is Jennifer. I am an Overthinker and Worrier. JUST the kind of person who doesn't need to see her results BEFORE the doctor sees them (or before I have a chance to see the doctor). I mean, I am definitely curious and want to see my results but I get crazy hyped up and start asking questions down to minute details that are not even things I probably need to know about. I think my oncologist may be thrilled that COVID kept me out of his office. He's very nice. Don't get me wrong, but I ask a LOT of questions and I feel sure some of them probably aren't terribly relevant.

      Anyhow, best wishes to everyone with pending test results and near dated appointments with your doctors. My next mammogram is scheduled for November 3rd. Yes, election day. They are both necessary evils and both must be done. I don't know which one scares me more right now. Don't want to make this political. I just don't like anything going on this year and having my scary test on the same day as scary voting... well. LOL

      I think I am going to early vote so I don't have to do both of them on the 3rd.

      about 1 month ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Good news and bad news

    16 answers
    • legaljen1969's Avatar
      legaljen1969

      Shelby, there really are no adequate words for this situation. I am sorry for your loss. I am sure it was a shock to find out so many months later about your father. I pray for wisdom that helps you know how to heal from this loss.

      2 months ago
    • BoiseB's Avatar
      BoiseB

      So sad about your father. My children have semi-estranged relationship with their father. Sometimes he reaches out to them and they respond because he is their father. Then he lashes out and verbally hurts them.
      Wishing you the best of luck sending prayers for a speedy healing.

      2 months ago
    • kalindria's Avatar
      kalindria

      I'm sorry for your loss, Shelby. Estranged or not, our parents have a big impact on our lives. May his memory be a blessing.

      2 months ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    To port or not to port, that is the question

    13 answers
    • JustForToday's Avatar
      JustForToday

      One thing I learned after having my port removed and just went in for tests: different sized needles cause multiple sticks on same day. With port: one stick, blood drawn and then CT scan (one stick for the day). Without port: one stick, blood drawn. Second stick, CT scan with dye. The needle used for blood draw is smaller than one used for CT dye. They were kind enough to accommodate my request for one stick. Meant I had to go to CT scan department, have them put in the larger needle and leave it. Then I went for blood draw. Then I went back for CT scan. Much more time involved and would not request it again. Port really streamlines everything.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      I have had so many disasters trying to get a stick for blood draws, scans, etc. that I have told them that when the time came for more treatment, just plan on it. I'll be there for it. I've already been in the hospital twice and no telling how many times I was stuck. So yeah.....go with the port!!!

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Have to strongly echo the advice of many others here and say port. I had my port inserted seven years ago under twilight sleep in the radiology department of the hospital where I had my chemo treatments. It is a Power Port and I have had it now for over seven years. Basically it has been trouble free. I have it flushed every five weeks and over the years it is now slightly tipped. No device is 100% guaranteed to be problem free, but the feedback from those who have had chemo and have had ports is overwhelming pro port. . If you choose the have a port, take into consideration your sleeping habits. I sleep mainly on my left side , for example , so my port is in my right chest area.

      2 months ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Ok, I'm back

    13 answers
    • Bug's Avatar
      Bug

      I was just thinking about you recently. Good to hear from you. It's good to have you back messing with us, too. The wound vac only hurts when you move and is massively disrupting your sleep. Geez, sounds like a ton of fun. Sigh. Hang in there.

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Woohoo , YOUR BACK!!! You have been one missed lady. Crap on all that you have recently been through . I hope your wound heals fast , the wound vac is soon in the rear view and any treatments going forward are a complete success. Look forward to continuing contributions from you on WhatNext.

      3 months ago
    • andreacha's Avatar
      andreacha

      BuckeyeShelby -- So glad to see you are back!! As the others said just try to take it easy even though you've got work to do from home. I have no experience with a wound vac and from what I am hearing I'll pass if given the choice. Many thoughts and prayers going your way for a speedy recovery.

      3 months ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Really was jealous of Greg

    24 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      I am tremendously saddened to read about your recurrence. Blobby has apparently forgotten who it’s dealing with. You have been a cornerstone to this site. I believe you were part of the welcoming committee when I first joined the WhatNext community in 2013. Through the years you have advised, cheered, and sympathized with numerous WhatNexters, myself included. I say time to roll up your sleeves and give Bloppy another lesson in survival and kick it’s xxx to the curb. Sending a hug and dump trucks of support.

      5 months ago
    • Jayne's Avatar
      Jayne

      BuckeyeShelby - so very sorry to hear about the recurrence. Wound vacs are such a pain, I hope that resolves soon for you. Sending warm thoughts your way from NC.

      5 months ago
    • schweetieangel's Avatar
      schweetieangel

      Oh no.. I'm so sorry to hear this. Sounds like you are in good hands with your team of doctors. Always hard to hear of a diagnoses. Stay strong and remember there are so many people here to lean on.

      5 months ago
  • BuckeyeShelby's Avatar

    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Looks like I may be following in Greg's footsteps

    24 answers
    • legaljen1969's Avatar
      legaljen1969

      @GregP_WN, the first time I had an appointment several weeks out I was actually a little relieved because I thought 'Well, if they can afford to make this three weeks out, I guess maybe it's not too serious." Then the nurse from the surgeon's office called me back on a Tuesday and said "She wants it done sooner. Your MRI and PET scan are scheduled for Thursday." That's when I got panicky. LOL
      Granted, my situation has been pretty mild and I hope it stays that way.
      I seem to have a skewed outlook on things.

      6 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Well, the hernia guy isn't available until the 25th, so it's been moved out. My biggest gripe now is I'm having problems sleeping because my stupid navel is still leaking and I keep waking up with a wet nightshirt. I thought I was done dribbling bloody fluid when I had my hysterectomy! And have you ever tried to bandage up your navel....? Yeah, not easy. Ok, I'm done whining, at least for now.

      6 months ago
    • GregP_WN's Avatar
      GregP_WN

      Shelby, I have found some odd things that we have to do, like that navel bandage. My feeding tube was a learning experience

      6 months ago