• Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    What Next for someone told they are cancer free

    6 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Both, celebrate and continue to be cautious. There are survivors who never reach NED and are on maintenance for months and years after frontline chemo, I celebrated with my husband when my post chemo CT scan showed NED. Your doctor said NED however and did not use the term cured. Going forward stay vigilent. Follow up blood tests and exams are common for sirvivors, especially the first two years post chemo. About your wife’s fatigue , this is a very common side effect with chemo. Her strength should slowly return. It is important for her to keep slowly but steadily increasing her daily activity to tolerance . Getting up, out and about, is often the best medicine once treatment ends. Wishing you continued better days ahead.

      8 days ago
    • Gumpus61's Avatar
      Gumpus61

      I am a care giver and we have had the NED declaration 4 times in the last 5 years. That cycle repeating has left us with a simple philosophy. The Bucket list is simply a life well lived, so we live well awaiting the day they say there is nothing more we can do. Perhaps NED might mean this to you. Cancer will not take you this day, this month, this Year........who gets that guarantee ? Approach what is next that way and have a great year !

      7 days ago
    • macfightsback's Avatar
      macfightsback

      I have been through having cancer, receiving chemo and then being declared NED twice. I am cancer free now ( as far as I know.). Many people feel weaker and not back to their "normal" as it was before cancer. It takes time to get your strength back. This happened to me both times and I felt more like my old self after a couple of months. I agree with cancer there is never a guarantee it will not return sometime after treatment. I held my breath for 2 years when I was cancer free, fearing reoccurrence. Then it came back last year. I won't do that again! I suggest you both celebrate her NED diagnosis. Start making some plans for fun activities you enjoy. You can start small. I put bird feeders up in my front yard because I love birds. I do some very amateur photography of animals and plants. Next week I am off to a 5 day winter vacation. I have a companion Siamese cat who gives me joy everyday. I treasure good times spent with family and friends. Carpe Diem! Seize the day. Yes, certainly continue to be vigilant regarding your health. Go to your follow up appointments. Report any new symptoms. Yes, sometimes what seems like a symptom of reoccurrence is not. I decided I had melanoma in my left foot because it was a strange lesion I had never seen before. It must have been an insect bite because it disappeared in a week. Your life is changed forever once you are diagnosed with cancer. The secret is that information should not prevent you from finding joy in your life.

      2 days ago
  • Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    Weak and tired all the time

    13 answers
    • Gymmom's Avatar
      Gymmom

      I would ask them to keep a close eye on her hemoglobin count (Hgb). I dealt with several episodes of anemia which required blood transfusions. I was told it was pretty common. Here are a few symptoms of anemia: hearing your pulse in your ears, pale inside the eyelids, dizziness, heart pounding when you walk from point A to point B. There are lots of others that you can Google. I was transfused when my Hgb was 7 or 7.5. Some people are transfused sooner.

      Chemo is exhausting in itself, but anemia is also a possibility. Remind her that she's 2/3 of the way through treatment. That's always great news.

      about 1 month ago
    • HeidiJo's Avatar
      HeidiJo

      I had small cell type B Lymphoma. I had R-CHOP chemo. I was also very weak and tired. It did get progressively worse with each treatment. My advice would be to take it as easy as she can...and that it will take a long time to bounce back after treatment. At least it did with me, Tell her to be kind to her body and to listen to what it is telling her. Thoughts and prayers to you both

      about 1 month ago
    • Buddyritz's Avatar
      Buddyritz

      Thank you everyone. More water may be the answer. She was drinking water less than before for obvious reasons.

      about 1 month ago
  • Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    radiation vs chemo

    8 answers