• Bug's Avatar

    Bug asked a questionBreast Cancer

    How long did you have your port?

    16 answers
    • LiveWithCancer's Avatar

      Hi Bug, I've had mine since July 2013. I've recently gone a couple of months without having it accessed ... I may have issues with it when I go to the doctor in early August ... but, until now, it has been a true blessing. I guess I'll keep it for a while, even on the outside chance that I don't have to go back to regular treatments.

      10 days ago
    • Lynne-I-Am's Avatar

      Like LiveWithCancer I have had my chest port in for six years . I get it flushed every five weeks and have had no issues with it. My doctor would have removed my port three months post frontline chemo, but I have elected to keep it in.

      10 days ago
    • kalindria's Avatar

      I didn't have mine removed when my oncologist said I could simply because of scheduling issues but then I had a recurrence and was glad to still have it.

      9 days ago
  • Bug's Avatar

    Bug asked a questionBreast Cancer

    Nervous at Other Types of Doctor Appointments

    24 answers
    • ChicagoSandy's Avatar

      Sasukesuma, does the health system to which your PCP belongs have an online patient-portal? I message my PCP, orthopedic surgeon and oncologist when I need a prescription refill--and often, the refill is granted automatically and I get a notice or robo-call that it was approved.

      You have every right to ask your PCP as to why every refill requires an office visit. For some meds, like antidepressants, dosage may have to be adjusted or even a different drug prescribed based on your doctor's evaluation of its effectiveness via your interaction with him. For others such as diabetes, cholesterol, or hypertension meds, dosage may also need adjustment based on periodic blood tests--and if you're coming in to get a blood draw, it's a good sign that your PCP wants to touch base with you in person.

      5 months ago
    • Sasukesuma's Avatar

      The medication he won’t give me is for my arthritis. He has never even talked about it at our visits. Just won’t refill unless I go in. Right now I am too overwhelmed to start over with a new doctors, nut I can’t keep seeing this one.

      5 months ago
    • Molly72's Avatar

      Well Sasukesuma, you have a choice in this matter. Either get a new doc or put up with the old one. You could start up a conversation with Dr. McNasty and ask him why you need to come in for refills.

      But- I have Rheumatoid Arthritis and can't take any of the new biological meds for it because all of them are contraindicated if one has had cancer--- I know this after listening to the unending ads for them on television. My rheumatologist agrees as well. So could this be the reason he has kept you on a tight leash? You really need to find out, he won't bite!
      Good luck & stand up for yourself, be brave!!!!

      5 months ago
  • Bug's Avatar

    Bug asked a questionBreast Cancer

    How to Find a Conversation

    5 answers
    • GregP_WN's Avatar

      If it was a question you can go to the questions page and enter your username, or the other person's username, or the title of the question and search using one of those. Or go to the people page and search for the person's username there.

      The algorithm the site has needs some tweaking, but it's a huge undertaking to adjust it.

      6 months ago
    • Bug's Avatar

      I’ve tried that, po18guy. Sometimes I can find the conversation that way and sometimes not. Thank you, though.

      LWC, I hear you.

      Okay, thank you, Greg.

      6 months ago
    • po18guy's Avatar

      OK, try this, from the top of the page:
      Take Me: Home > People > My Profile > Questions
      Then scroll down and down and down until you find the conversation. Unfortunately, questions are in-line with conversations, so if it was awhile ago, you will have to do some scrolling.

      Hate to say it, but the site has few 1980s features...

      6 months ago