• BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Have any of you heard of the drug Someta?

  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    My doctor said they can't give anything that will stop the pain in bones.

    4 answers
    • po18guy's Avatar
      po18guy

      Couple of things. A second opinion and/or a consult with your treatment facility's pain clinic. I cannot imagine that there is untouchable pain. Some doctors are fearful of prescribing opioids - and that is understandable, but at some point patient care must enter in!

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      I had a bone marrow biopsy once, way back in 1988. The oncologist that did it told me that they couldn't deaden the bone, but could give me meds that would make me forget that period of time. I know this isn't what you are looking for, it's a different type of pain you are having. But he did mention something similar.

      about 1 month ago
    • meyati's Avatar
      meyati

      Have you tried acupuncture? My son has a spinal injury-lots of pain- no feeling in his feet. The first few years he fell a lot. Acupuncture helps him a lot. I use self-hypnosis, and it usually gives me relief. Sometimes the relief lasts only for a few hours, so I do it again.

      Have you tried Gabapentin? Massages are good. Can you be referred to a pain clinic? Probably massages and Gabapentin would work? or massages and self-hypnotism. A pain clinic saved my life. The Air Force prescribed different hard operating room meds, which didn't work at all- I took them back and threw those at a Colonel. A pain specialist would know if a nerve block could give you relief..

      about 1 month ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    We hope all of you have a great Christmas day!

    4 answers
    • JaneA's Avatar
      JaneA

      Amen to that - being alive is gift enough. Merry Christmas everyone!

      2 months ago
    • Bengal's Avatar
      Bengal

      Like po said, regardless of beliefs, definitely a day for slowing down, reflection and just taking stock. The rat race will start up again soon enough. I have an appointment tomorrow!

      2 months ago
    • BugsBunny's Avatar
      BugsBunny

      Po, true words they are, some days are just days while other days are special. We need special days to make us realize that those other days are special too, especially for us.

      2 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    After you're done with treatment how long before your immune system is built back up?

    5 answers
    • meyati's Avatar
      meyati

      I finished intensive radiation treatment Valentine's Day 2013--I got pasteurella multocida about 60 days after that . I got a tetanus shot before treatment, and I came down with tetanus anyway-3 years after the tetanus shot. A woman in @ Costco pharmacy coughed in my face and I got Whooping Cough for almost a year. I lost my voice and everything. I wear a mask when I vacuum or do yard work.

      Part of this is luck-- Have good luck-- try to not get bitten by a dog or cat-the pasteurella thing Try to send a family member to the pharmacy for you that was 2017.-4 years after treatment ended. I was considered to be in very good health, even though I was in my 70s

      2 months ago
    • GregP_WN's Avatar
      GregP_WN

      The doctors keep telling me to be careful about being around sick people, get a flu shot every year and just be aware that my immune system is weaker than a "normal" person's system is. So I am not sure we ever get back to what used to be normal.

      2 months ago
    • meyati's Avatar
      meyati

      greg- I also recommend getting a booster shot for the childhood things-Look a tetanus Booster is supposed to be good for 10 years, but I got tetanus 3 years after my booster. The stupid doctors kept saying--she made a mistake-she didn't get a booster-but they saw there own record. Medicare wants seniors to get the booster for whooping cough, measles, etc. The shot is free.

      get the Shingrx shots for shingles. Your family has to chase the shot down-apply at different pharmacies--the Zoster shot is live vaccine and cancer patients are not supposed to take those. I went to 6 different pharmacies and got my name on their list. They don't notify you, but it makes sure you get the shot when the vaccine is in. I applied at Walgreens, Smith-Kroger grocery, Walmart, Costco, CVS, and Smith grocery. It took me 6 months to connect-I was checking out at Smith's and saw a notice the pharmacy had 10 doses in. I took my groceries and ran to the pharmacy. They looked up the waiting list. It cost me $50. I had to wait 90 days for the booster. After 90 days I checked with the pharmacy while shopping. I got my booster a week after the 90 day wait.

      It reduces so much anxiety to have my shingles and baby shot boosters. I have less fear. I still live a rather secluded life now, but I'm doing what I can.

      Next- get the pneumonia shot. It protects you from a bad type of pneumonia, and reduces the chance of complications if you get the flu or even a cold.

      Speaking of the flu- there is a super duper flu vaccine out for people with compromised immune systems and older people-hey, I'll be 78 in a few weeks---and that didn't keep me from being treated badly by Walgreens and my Advantage plan. They told me that I had to pay $80 for the super duper flu, but the regular one was free. The next week-the TV had ads on how medicare paid all of the super duper for seniors. I feel cheated and scammed again by my Advantage Plan.

      Call medicare before you get any shots, so you know if you can get them free.

      So, avoid cats and dogs
      Keep your tetanus up to date
      Get Shingrx so you don't get shingles
      Get your baby shots updated-medicare pays all
      Get the super duper flu shot
      Get the pneumonia shot-it lasts for years and years---when I had Whooping Cough 2 years ago- I kept saying Thank god I won't get pneumonia. That knowledge helped me beat the WC- but I had asked for a complete booster when I had my new series of tetanus shots, and I was told that I didn't need them. I still asked every year-and I was told -no- they all lied to me. MY Advantage Plan cuts corners so it doesn't charge medicare so much.

      I buy masks in big lots on Ebay--use them when you vacuum or sweep-germ laden dust-or rack leaves or what ever. I carry spare a spare mask in my purse in case I run into an odd situation

      Good luck

      2 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Nose Bleeds

    6 answers
    • GregP_WN's Avatar
      GregP_WN

      That's one of the very few side effects that I haven't had over the years.

      2 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm prone to nose bleeds anyway, especially in the winter with the dry air, and I had chemo Sept - Jan. I had 2 massive nose bleeds. True gushers. Gushers that last over 30 minutes. I was w/in 5 minutes each time of heading out to my car to take myself to the ER. My onc was not concerned. I was, but he wasn't. I've also heard that nasal spray (the medicated one, not just the saline spray) will stop a nose bleed. The stuff constricts the blood vessels in you r nose. A good thing when trying to stop a gusher. Good luck.

      2 months ago
    • JaneA's Avatar
      JaneA

      I had morning nose oozes due to Avastin, a targeted therapy. You might also have a low platelet count. Best wishes.

      2 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    We all have a right to be kind of ticked off because we have cancer.

    8 answers
    • po18guy's Avatar
      po18guy

      Consider a free webinar: https://www.lls.org/events/understanding-the-emotional-effects-of-cancer
      Even though it is the leukemia and lymphoma foundation, the psychological effects are the same. A few details:

      Topics Covered

      1. The impact of a cancer diagnosis on your physical, psychological, spiritual and social health
      2. Benefits of psychosocial care for cancer patients and their loved ones
      3. Psychosocial resources for cancer patients

      Speaker

      Daniel C. McFarland, DO
      Medical Oncologist/Psychiatrist
      Department of Psychiatry and Behavioral Sciences
      Memorial Sloan Kettering Cancer Center
      New York, NY

      3 months ago
    • Molly72's Avatar
      Molly72

      So, what's wrong with a little anger, or sadness, or any other "negative" feelings?
      They are simply a normal part of the game of life. Of course if these feelings get out of hand,
      then something needs to be done.
      Most of us can handle these hopefully, SHORT lived spells without running to an expensive therapist. We can kvetch all we what right here.
      We have been thru enough @*$& and are pretty tough.

      Leuky, love your posts, they are quite succinct and I wish more folks had your attitude!

      3 months ago
    • cards7up's Avatar
      cards7up

      I've learned that since going through my cancer journey, I don't take or listen to any BS! sorry but that's the only way I can describe it. I will try my best to be tactful but there are just some people that push you over the edge. I'm not mean by any sense of the word, I enjoy helping people and being friendly to one and all. So thankfully, it's not like an every day occurrence!

      2 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Do you ever feel bad for your spouse for having to deal with everything you are going through?

    8 answers
    • GregP_WN's Avatar
      GregP_WN

      My wife and I will be married 40 years this Feb. We had been married for 8 years when I was diagnosed the first time. I always say that she didn't sign up for all that comes with being married to a long term cancer patient and having to ride the rollercoaster that is being a caregiver for a cancer patient. I do worry about her and the stress that I know it puts on her.

      3 months ago
    • Carool's Avatar
      Carool

      When we decide “this person is THE ONE,” we all sign up for whatever will happen, and we know that eventually, something bad will happen to one of us. Through thick and thin. I’m no angel with my partner, but he and I are getting along better as we grow old together, and I’m very thankful for that. He was lucky with my cancer so far, as I didn’t need much caretaking. However, who knows what’ll befall either or both of us? And we have no kids. I know how hard it can be to be a caretaker, but I think there’s no excuse for abandoning a life partner. Hope I don’t want to eat my words someday.

      3 months ago
    • Bug's Avatar
      Bug

      Yes and no. No one wants to add hardship to those they love. But, like Carool said, when you decide the person is the one (marriage or not), that's what you do. I'd do it for him in a heartbeat.

      3 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Another show on tonight about a cancer related topic.

    5 answers
    • Dawsonsmom's Avatar
      Dawsonsmom

      We have also noticed all the cancer story lines. My husband recently commented on all the BRCA mutation in both the news and on tv programs. He stated that until my family members started testing for this (me, all my siblings and a niece are all BRCA1+) he had never even heard of it. Now it seems we’re hearing about it all the time. I pointed out to him bc of me & fam members, we are probably hyper-aware.

      4 months ago
    • Bengal's Avatar
      Bengal

      I think it's a good thing that maybe final cancer is losing the stigma, that "taboo" subject that nobody talks about. The downside may be that if cancer starts to become too commonplace it will be oh, so and so has cancer, like, so and so has a cold or the flu, no big deal. It is very much a big deal and not something to be dealt with lightly.

      4 months ago
    • Bloodproblems' Avatar
      Bloodproblems

      I have watched that show also. I used to never pay any attention to the storylines and if it was cancer or not. But after I was diagnosed I started noticing them.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Does anyone here have damage from vaping?

    5 answers
    • GregP_WN's Avatar
      GregP_WN

      I have never smoked so I can't speak to how hard it must be to quit. I saw my Mother in law try to quit and never could until she was so sick that smoking didn't enter her mind. The vaping is just beyond me. I cannot imagine sucking in the chemicals that I always thought must be in those things, and now it's being proven to be true. Nobody knew in the beginning what was in them or the long-term effects from them.

      4 months ago
    • andreacha's Avatar
      andreacha

      The 10 week stint in the hospital was responsible for me to quit smoking. If I hadn't gotten sick I would probably still be smoking. I don't even remember an option to vape back in 2006.

      4 months ago
    • Bloodproblems' Avatar
      Bloodproblems

      It's on the news every night where we live, people are getting serious lung damage. One young man or teenager had to have a double lung transplant.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    How long have you had cancer?

    13 answers
    • andreacha's Avatar
      andreacha

      My first diagnosis was 13 years ago, my second was 12 years ago, and 3rd was 7 years ago. I've been in treatment since 2012 - oral chemo. Surgeries in 2006 and 2007. Not NED but stable.

      4 months ago
    • Created07's Avatar
      Created07

      endometrial-2011, breast-2014, malignant-2015, non-hodgkins-2016

      4 months ago
    • Molly72's Avatar
      Molly72

      Melanoma was in 1963!!
      Angiosarcoma & GIST was in 2013
      Here we go again with yet another Basal Cell Carcinoma this month.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Time change coming! Time to adjust again.

    12 answers
    • meyati's Avatar
      meyati

      I just feel that I can't take the time changes anymore. Congress is cruel.

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I wish they would decide on one and stick with it.

      With that said, i enjoy falling back and getting my hour back... but, while i enjoy light earlier in the morning, i hate night coming so early.

      Hard to make me happy, I guess..

      4 months ago
    • Carool's Avatar
      Carool

      Don’t hate me, but I don’t mind the time changes. Now that I’ve been forcibly removed from the work force, I sleep day or night and the changes are no big deal. And I don’t much like the sun so I welcome early darkness, until I get tired of it as winter continues and am heartened when it begins to get lighter earlier.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Does the first line of treatment usually get us to NED?

    6 answers
    • meyati's Avatar
      meyati

      I had initial surgery. Then radiation wiped it out-which was a miracle. What I had usually didn't respond very well to anything. In week 4 the tumors started growing big again. The machine was cranked higher. try that and see if I lived-I did live--my ghost isn't typing this--I don't care about the other 2 options, as they were p(iss) poor. I've been sleeping under a radioactive under ground miners hard hat--my son's since the '90s

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Nothing has gotten me to NED. I think it depends on your cancer and how your body reacts to treatment.

      4 months ago
    • meyati's Avatar
      meyati

      I had a rare one considered incurable. For some reason, I tolerated the radiation well. The normal treatment was to cut my nose out, right eye and the right side of my face out-be in a nursing home for at least a year with my brain exposed- well covered with sterile dressings that are painfully changed several times a day. I refused to do that-- death was preferable. Life of only 3 to 5 years after the surgery certainly wasn't an enticement for me to cooperate. All I can say is -God works in mysterious ways.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    How long does the shooting pains that come from around the surgery scar last?

    • GregP_WN's Avatar
      GregP_WN

      I had surgery on my neck 11 years ago and I fought with those pains. My doctor said they were nerve pains and as soon as the nerves grew back to connect each other then the pain would stop. That took about a month for me.

      4 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      BugsBunny, my experience with shooting pains and itching were similar to Greg P’s. Drove me crazy but eventually it resolves. Hang in there!

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    I've been cheering on a dear friend who was diagnosed after me. Now she is going into hospice.

    5 answers
    • GregP_WN's Avatar
      GregP_WN

      If you live many years after being diagnosed you're going to be faced with this at some point. I have 32 years of this and I've had several friends and several family members that have gone down, thanks to cancer. I've felt bad after each one of them. Survivor's guilt sneaks into all of us.

      4 months ago
    • cllinda's Avatar
      cllinda

      Don't back away from her now. She needs you to be strong for her as her days are growing short. We never know how our journey will end. Be there for her. Be strong when you don't think you can.

      4 months ago
    • HardyGirl's Avatar
      HardyGirl

      I have been dealing with cancer for a few years now and during that time I've had a few friends and relatives to be diagnosed and pass away soon after. It always makes me wonder how I've managed to beat the odds while so many others do not.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Does chemo and radiation cause you to lose balance and make it hard to walk?

    8 answers
    • Coloman's Avatar
      Coloman

      I have not had anything that has made me dizzy, yet. I hope I don't, I have enough problems as it is!

      5 months ago
    • meyati's Avatar
      meyati

      Head radiation did that to me. It took me months and months I'd try to get a slipper on, if I bent over-dizziness attacked me. - Later I had to rest before I could get my socks and shoes on without having dizzy and balance problems. That actually took about 2 years.

      4 months ago
    • meyati's Avatar
      meyati

      I had lots of trouble looking up at the ceiling--cleaning painting. I am scared of getting up on a ladder and paint the over head. I duck tape paint to a paint extender stick to cut in. I use mops to wash the ceilings.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Good news to report! Scans are looking like chemo is working!

    10 answers
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    I was in the hospital this week for a couple days and someone brought in a therapy dog.

    10 answers
    • Kylerem's Avatar
      Kylerem

      Both of the cancer hospitals I was treated at had therapy dogs. They were the highlight of my day when I was having treatment. I continue to schedule my follow up appointments to align with the therapy dog schedule!

      5 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      The sweet unconditional love of most dogs is something we can all take comfort in. Our dogs act like we have been gone all day when we come in from getting the newspaper off the front lawn. Makes us smile every time!!

      5 months ago
    • Ydnar2xer's Avatar
      Ydnar2xer

      Two things that really comforted me when I was in the hospital during cancer treatment: hand massage and personal harp "concert". A lady stopped by and asked if I wanted a hand massage and I thought--WHAT? How great can that be? But it was! Amazing how relaxing it was and she used some lotion that smelled lovely, as well. The harp "concert" was from a friend who was working at the time in the alternative therapy section of the hospital. She came by and played for about 30 minutes. It was beautiful and I felt much pampered and loved, afterwards.

      5 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Does HPV have anything to do with other types of cancer besides head and neck cancers?

    5 answers
    • carm's Avatar
      carm

      It is also responsible for most Anal cancers

      5 months ago
    • Skyemberr's Avatar
      Skyemberr

      I was really lucky and got myself checked midway through my 20s on a whim. I had grade 3 cervical HPV which they were able to remove with a cone biopsy. I had zero physical symptoms!

      So now my kids are both being vaccinated, The older one is all done and in 2 years so will my 9 year old. The side effects from the shots were unnoticeable for my kid, so it has worked out well for us and equals a tiny extra piece of mind.

      5 months ago
    • JaneA's Avatar
      JaneA

      Vaginal, vulvar, anal, penile, cervical and the head and neck cancer located in the back of the throat area. Very important to vaccinate.

      5 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    I have started having very vivid dreams, is this caused from the drugs?

    • po18guy's Avatar
      po18guy

      I tend to think so. My dreams are very strange and I/ seem to lapse into a dream-like state while still awake. Clearly, something is going on and I take numerous drugs and have received many others.

      5 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Do you find that when you hear of someone else having another type of health condition you're more empathetic than before?

    • GregP_WN's Avatar
      GregP_WN

      I know that feeling, and yes I do. I have realized that everyone does have their own health problems. I try to look at their life through their eyes but with the knowledge I have gained by living with an illness for over 32 years.

      6 months ago
    • cllinda's Avatar
      cllinda

      I do feel more for the person that is going through serious medical issues now. I'm also very aware of what I say, because I know how hurtful the wrong comments can mean.
      The blog yesterday said it all, with the comments yesterday. The one that got me the most was You look Great! Really?
      So instead of making some off the wall comment, I try to put myself in their shoes. And I offer help and really mean it.

      6 months ago