• BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Have any of you taken the drug Zarxio to keep your WBC up?

    • GregP_WN's Avatar
      GregP_WN

      I searched our data and found a few responses where that drug has been talked about. Here is the search

      https://www.whatnext.com/search/experiences?utf8=%E2%9C%93&search%5Bquery%5D=zarxio&commit=Search

      about 1 month ago
    • po18guy's Avatar
      po18guy

      If not Zarxio, then bio-similar Neopogen and/or Neulasta. during stem cell collection and after one of more of my chemo regimens. Some have bone pain, as the drug induces your marrow to produce excess neutrophils, which are a high percentage of your white blood cells. However, the production rate is so high that your marrow is packed full to overflowing with these white blood cells. From the Wiki:

      "Neutrophils (also known as neutrocytes or heterophils) are the most abundant type of granulocytes and the make up 40% to 70% of all white blood cells in humans.[1] They form an essential part of the innate immune system, with their functions varying in different animals."

      This increase in production puts pressure on the nerves lining the insides of your bones and can lead to soreness or pain. Many have said that the over-the-counter allergy medication Claritin provides relief. No one knows why, but there are far too many positive stories for this to be coincidence. If you experience soreness or pain, it is certainly worth a try.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      Thanks PO, good information as always.

      about 1 month ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Pain killer effectiveness - I am on some what I think are mild dose hydrocodone pain killers 300 mg. i think they are

    • Teachertina's Avatar
      Teachertina

      There seems to be a fine line for me to be either knocked out or have relief. My doctor had to find what would work best for me. Maybe yours can tweak things a bit for you. Wouldn’t hurt to ask. Hope you can get something that helps!

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      I have a weird super tolerance to pain meds. I can take a strong pill, one that others will be knocked out by, and it doesn't do much for me. Years ago when I was having radiation every day and had severe burns, sores in my mouth and throat, and lots of pain, I was on 500 Lortabs. They didn't take care of it. They bumped me up to 750mg every 4 hrs, that still didn't do it. They changed that to 750 Lortab elixir, which is liquid Lortab with Tylenol mixed with it. That's supposed to be the strongest thing I could get before morphine. That still wasn't doing it. I would be OK for 2 hours but after that, it wore off. I started taking it every 2 hours instead of 4 hours. That helped but still wasn't like you would think it would be.

      I told my doctor that it still wasn't working and he shrugged his head and said that I was like some people they studied in med school who have a condition that the body uses up the pain meds like it's attacking the pain meds, and does away with them before they can kill the pain. He just said this is interesting. After that, he was interested in how I was doing and watched my progress closely. He eventually bumped me up to morphine. So, we all take these meds differently, what works for someone else may not work for you. Be sure to tell your doctor exactly what's going on. The more information they have about you and how things are going, the better they can manage your case.

      about 1 month ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    "We're all in this together" seems to be the corona catch phrase adopted by everyone advertising on TV

    9 answers
    • PaulineJ's Avatar
      PaulineJ

      We're not in this together
      Here's your truth
      Talking to People at Gas Station While Going to the Beach
      https://youtu.be/eiz1Ltyk6ac

      2 months ago
    • Bengal's Avatar
      Bengal

      1. Red Green! Now that's a flash from the past. I loved that show. The epitome of mindless stupidity. Great when you just need to laugh.

      And, B. I choose not to get my factual information from YouTube.

      2 months ago
    • PaulineJ's Avatar
      PaulineJ

      We're not in this together .Some of us have Jesus....

      2 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Just in case any of you have been swept up by the inept suggestion that you should all start taking hydroxychloroquine

    13 answers
    • meyati's Avatar
      meyati

      I read this morning that the Kansas poison hotline is getting lots of calls about this issue. What really upsets me is the NC protest leader for opening NC up has tested positive for COVID 19, but she doesn't have any symptoms. She does not wear a mask or stay home. She leads her protests-goes to church, she shops, etc. I'm not a great fan of the ACLU any more, for a few decades I was a member-but the mental health problems that doesn't care for these poor souls, and now, this woman.

      The ACLU really fought to reduce the power and authority of public health issues, quarantines, etc. That is fine when there are vaccines to help prevent communicable diseases, and the public uses the vaccines. Then add that we have good medical treatment for most things. Basically, I wish this woman would cough or sneeze in an ACLU office- then see what happens.

      3 months ago
    • meyati's Avatar
      meyati

      ReOpen NC leader tests positive for coronavirus
      WFMY News2· 16 hours ago
      Audrey Whitlock, one of the administrators of the ReOpen NC Facebook group, posted that her two-week quarantine was coming to an end.

      But she's been out and about

      3 months ago
    • Molly72's Avatar
      Molly72

      Karma, Meyati

      3 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    I had a doctor's appointment to be canceled yesterday. Has this happened to anyone else?

    8 answers
    • PaulineJ's Avatar
      PaulineJ

      All of mine were canceled in Febuary My specialists are in a hospital that closed down.And my primary doctor only sees patients on emergencies.I have 3 differnt apps in May that were made 3 months ago and another one with the cardiololgist evey 3 months + ultra sounds and another colonoscopy coming up in Sept.It doesn't look like it's going to happen.This nonsense can go on 'til Nov.or for 2 years

      4 months ago
    • meyati's Avatar
      meyati

      Veterinarian-2 dogs need shots-city isn't doing city license because of COVID-Why dogs can't get shots? .and they don't have paperwork for license because they don't have shots.
      Dentist rescheduled for end of June.
      Primary Care--appointment turned into phone appt, where meds were prescribed-I ended up with every med that are prescribed to hospitalized COVID 19 patients that didn't need a respirator. Super Duper codeine cough syrup-that also helped with the headache and aches and pains. The super duper eye antibiotic-my PCP and Dr. Kwan said their hospital had 2 patients with the red eye and they both died. Then the famous Z-Pak.

      4 months ago
    • Bengal's Avatar
      Bengal

      meyati, you're scaring me. Please be well. You've been through so much don't let this get the best of you now. Please keep us updated.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Do youy ever have people look at you and just say HUH? when you tell them what type of cancer?

    6 answers
    • Molly72's Avatar
      Molly72

      I had an Angiosarcoma & a Gastro intestinal stromal tumor.

      Now Carool, you know someone who has had 2 sarcomas!

      4 months ago
    • JaneA's Avatar
      JaneA

      Not a sarcoma - but I am too embarrassed when I was first diagnosed with rectal cancer to say that word - "rectal." But after my first chemo, it finally dawned on me that cancer doesn't occur in convenient places, and if not me, then who helps tell the stories that we have to raise awareness of the symptoms.

      So I opened up. When I told someone that I had Stage IV rectal cancer, their first question was, "What were your symptoms?" My only symptom was bleeding which my PCP said was "probably hemorrhoids."

      So instead of giving the official name, tell them that you have a rare bone cancer called osteosarcoma. And that might start the conversation of how you found out, aka the symptoms.

      4 months ago
    • Carool's Avatar
      Carool

      Molly72, I guess I do! Wish I’d never “met” either of you on this site (you know what I mean). Hugs.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    Have you isolated yourself at home due to our immune system being weak

    14 answers
    • Dawsonsmom's Avatar
      Dawsonsmom

      Meyati, you are exactly right about an eardrum rupturing when the person is relaxed and doing nothing. I had prophylactic oopherectomy last year and my eardrum ruptured during surgery. You aren’t more relaxed and immobile than during surgery. I had been having what I thought was post nasal drip.....nope, it was that darn ear. It took 2 rounds of antibiotics to clear it up. I hope you feel better soon and get to see an ENT soon. The tinnitus can become unbearable!

      4 months ago
    • meyati's Avatar
      meyati

      @Dawsonsmom----Thanks for your support. I've had Tinnitus in both ears since I was about 8- 3rd grade. I get all 3 sounds in both ears. It's one reason I hate fevers, NSAIDs, and acetophenone. They make it so much worse. My temp is normal now, so the sound isn't as fierce. It's still like a jet inside my head warming up. I try to inflate my ears -to get the pressure right, but the left ear starts whistling and popping. I feel like I'm going to pass out and vomit from the pain.

      I've had several friends that hunted in rigorous territory--we don't have stands here, and we certainly don't bait deer or elk, but track them down--the real West. Anyway, getting back to camp, drinking a lot falling asleep and POP-- I've had friends this happened to at the end of a hard rodeo.

      4 months ago
    • meyati's Avatar
      meyati

      Oh, I don't think the stress helped your ear either--as you say-- we aren't very active after the anesthetist plies their trade. It's just hard, and we are so helpless when we are under for surgery.

      4 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    I noticed the Red Cross is asking for blood donations on the news.

    • KB2013's Avatar
      KB2013

      I’m giving this one a big ‘negatory’.

      5 months ago
    • GregP_WN's Avatar
      GregP_WN

      I have been told that it depends on your type of cancer, treatment, etc. You can always explain these details to them and let them make the determination.

      5 months ago
    • GregP_WN's Avatar
      GregP_WN

      I have been told that it depends on your type of cancer, treatment, etc. You can always explain these details to them and let them make the determination.

      5 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    The CDC and any health professional that you talk to is stressing that anyone with underlying health issues use caution.

    • meyati's Avatar
      meyati

      Because of where my cancer was, and the damage from radiation, I've been living this way since December 2012. I can't swim all because I could easily get an infection in my brain. I wear masks when I vacuum and work in the yard. I shop mostly online. I do buy groceries once in awhile. I check popular shopping times to shop when Home Depot and ACE are almost empty.

      Some proof of this is that I was hospitalized for 4 days from a dog bite about 6 or 8 weeks after treatment ended. I had tetanus 2 years after that. Then I was basically bed ridden from Whooping Cough for most of 2017. 8 months after I caught it, a Pres office called about me getting a speech pathologist, and they got wheezing. They hung up and called back- They yelled they'd call back, I kept trying to tell them it was me. A few hours later they called and said- Oh my, the tech couldn't fix the phone. I told them it was me from Whooping Cough-call somebody else-see the phone works and call me back. If my son is home then, he can talk for me. They called back, told me they were so sorry- People with hearing aids couldn't hear me on the phone at all. Friends would yell-- I'm coming over. So they came over and visited.

      Welcome to my world. I'm 78, and my family is worried that I'll get the corona- and I don't mean a 6-pack of Corona beer. i reminded them that I've been living this way for 7 years now.

      5 months ago
    • KB2013's Avatar
      KB2013

      meyati, you made me laugh, thank you.

      5 months ago
  • BugsBunny's Avatar

    BugsBunny asked a questionBone Cancer

    How many years/months past finishing treatment are you, if you have finished treatments?

    9 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was diagnosed with stage IV lung cancer in 10/2012. I had continual treatments until April 2019 (I think that is the month of my last treatment). My tumors are still there, but they remain stable as of my last CT scan. We're just keeping a close eye on them at this point. If they start to grow again, we'll resume some kind of treatment.

      Until then, I am living life and enjoying the time I have been given. Stress and worry won't keep the cancer from growing or recurring, but it can take your joy away from the time you have on this earth. And, it could cause the cancer to return or for other problems, like hypertension, to develop.

      Try to quit worrying. You can do that by refocusing your brain. Get busy. Read. Exercise. Make a list of all of the things you're grateful for. Plan something fun to do and to look forward to. Every time negative thoughts come into your mind, consciously put them away. It isn't easy at first, but it can be done.

      5 months ago
    • Jayne's Avatar
      Jayne

      10 years plus and eternally grateful for the opportunity to still be here.

      5 months ago
    • meyati's Avatar
      meyati

      Way to go Jane- Congratulations

      5 months ago