• CaptainBob's Avatar

    CaptainBob posted an update

    Had a CT scan last week and went to chemo yesterday coupled with a visit with the oncologist to review results. It appears that the chemo is beating the cancer in my lungs, spine, and lymph nodes. The radiologist who wrote the report on the scan states that he sees "innumerable" new lesions in my liver though. The oncologist showed us the scan and none of us can see anything there that is new. We can see the improvement in the area where I had the chemoembolization but nothing else. I guess it is like Mark Twain said Opinions are like XXX ...everyone has one and everybody else's usually stinks.
    We are going to continue on the same chemo regimen for the next month and see what results are to be had in December when I get my next PET scan. Hopefully that will clear up the disagreement and we will get a consensus on what to do next to keep me up and running

    1 Comment
    • FreeBird's Avatar
      FreeBird

      Partial good news anyway, it seems. I hope your liver panel blood test still looks good.

      almost 7 years ago
  • CaptainBob's Avatar

    CaptainBob posted an update

    have just progressed to the point that I am now diagnosed as a diabetic. Am on fast acting insulin and have been keeping my blood sugar under control mostly by diet using the insulin only once this week. I am on my recovery week from chemo and will be back in on the coming Wednesday. Does anyone have any tips for dealing with this new facet of my challenge or info regarding how insulin interacts with the chemo drugs?

  • CaptainBob's Avatar

    CaptainBob posted an update

    I have had three different chemo "cocktails" in treating my disease. Each one had it's side effects and benefits. I would hesitate to recommend any treatment as I am not a healthcare professional. I will say that your brother should not waste any time in getting treatment started. With Cancer speed can make a huge difference because a treatment will have a better chance of success with a smaller, less progressed, and less spread disease. Write to let me know how your brother progresses. The entire community on "What Next" will always be there to offer help and suggestions.

  • CaptainBob's Avatar

    CaptainBob posted an update

    Just got the results of my latest PET scan from this past Saturday. It seems that the cancer is trying to mess with us. The tumors in my liver have shrunk but have a bit more activity in them. The doctor was not certain how to take this but we spoke a while and decided that smaller tumors are better even with the increased activity. So we are considering this a small victory. I will be going to see a specialist next week to see if I am a candidate for a procedure called chemoembolosis. In short they stick a feed in my veins at the groin area and go directly to the tumors in my liver and inject them with chemo drugs in an effort to concentrate the chemo directly in the area where it will do the most good. We have an appointment for next Monday at the Reading Hospital. Then that specialist will be part of the Tumor Board at St. Joe's Hospital where I have been treating and that group of doctors will discuss if this is the best plan of attack. Apparently there are one or two other ways to approach my present condition but the oncologist didn't want to go into too much detail about them since he believes that this is the most likely path to further our fight against the disease. Best part of this treatment is that there are little if any side effects and I will be able to go be out and about without any of the crap that I have had to deal with from chemo treatments. We will see the oncologist on Thursday next week to get the Tumor Board's decision so we can keep the treatments moving and not give the cancer a rest. The nice thing is that I will have this week off from chemo and be able to enjoy the 4th holiday a little better. As always I will keep you all posted how we are doing in the great cancer battle of 2012.
    Hope everyone enjoys a safe and happy holiday

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      Smaller sounds good. Keep fighting and moving forward. Wishing you and yours a wonderful holiday, too.

      about 7 years ago
  • CaptainBob's Avatar

    CaptainBob posted an update

    Just home from a chemo treatment today. On 5FU for the 13th time and will have a PET scan before any further treatment. Very dizzy need to be careful when standing up or moving around. Also having a battle with an ongoing headache. Wondering if anyone else experiences those side effects. Only mildly nauseous which is always helpful but am expecting constipation to follow the next several days. Greatful for the support and caring of my wife and the nurses at the infusion center they keep me up a running and help me keep a positive outlook.
    Have been hoping to find a face to face support group in my area for either general cancer or specific pancreatic cancer but have not been successful. Am seriously contemplating starting one on my own but would like to hear from anyone who has undertaken that task to discuss challenges and details. If anyone would be able to help/suggest ideas for the process I would be greatful for the help.

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      Hi CaptainBob. Have you tried the American Cancer Society for local support groups? Their phone number is at the right and bottom of the page. Also, the Pancreatic Cancer Network is a good resource, too: http://www.pancan.org/. Please keep us posted and let us know if we can point you toward other resources.

      over 7 years ago
  • CaptainBob's Avatar

    CaptainBob posted an update

    Just found this site Have been searching for a support group in my area but have been unable. Would like to communicate with others in my situation to discuss how others deal with side effects, loss of energy , loss of income, the basic feeling of worthlessness you get when you can't work and provide income to the family. Things that bother me when I take the time to think about something other than surviving. I hope that I can connect with others that can share their experiences and how they are coping