• carm's Avatar

    carm asked a questionCancer

    NSCLC

  • carm's Avatar

    carm asked a questionCancer

    Multiple Myeloma

    • GregP_WN's Avatar
      GregP_WN

      I hope you find some help Carm, you do good work for your patients!

      about 1 month ago
    • po18guy's Avatar
      po18guy

      Just lost a friend to refractory MM, even after three - yes three - transplants. This was at SCCA/Fred Hutchinson. As to NewYork, it would be either Memorial Sloan Kettering or Columbia. I know that each facility has world-class hematologists on staff.

      about 1 month ago
  • carm's Avatar

    carm asked a questionCancer

    CBD cream for pain

    7 answers
    • Lundmusik's Avatar
      Lundmusik

      We have used CBD hemp oil for both external and internal pain — very effective.

      about 1 month ago
    • debsweb18's Avatar
      debsweb18

      I had a pain patch that I cut in 4ths. You don't even need to put it where it hurts. I put it on the top of my foot and it worked wonders. It was pricy at $16.

      about 1 month ago
    • debsweb18's Avatar
      debsweb18

      If you take any medications that interact with grapefruit juice such as tamoxifen, it's not a good idea to use cbd. I'm in a group on Facebook where an oncology RN does a lot of research and speaks nationally regarding using cannabis for breast cancer. I've learned a lot about using medical marijuana that our doctors don't know. My oncologist said they'll be up to speed in about 10 years.

      about 1 month ago
  • carm's Avatar

    carm asked a questionCancer

    Motorized scooter or electric wheelchair

    5 answers
    • Songwriter's Avatar
      Songwriter

      I wish I did or had the money to send him. I wish some of the money that these fundraising Groups would start a cash part because although research is important so is the lives if us with no or very little money....People ask me what can they get a cancer patient and I say send them cash.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Carm, do you think the American Cancer Society would have funding for that? They told me to call when I needed something like that, just in case, because they do fund wigs and canes, which is all I can remember.

      If he would be helped by a rollator (a walker with a seat to rest), Medicare pays for one if you have a prescription. Medicare also pays for wheelchairs if you have a doctor's prescription. Best wishes.

      P.S. If those don't pan out, you could check thrift stores and churches that have items to "borrow." Since Medicare buys equipment, I wish everyone would donate items to churches for sharing.

      3 months ago
    • meyati's Avatar
      meyati

      Don't forget the Red Cross. A friend was given a used one by Red Cross, but he went back to a regular wheel chair because of the problems in transporting the electric chair for shopping, his job, etc.Electric needs a ramp to get on and off a vehicle.

      A Sport Wheelchair is much lighter to use, and it corners better than a regular one. It is definately easier to use inside a building. It's also easier to load into a car or truck

      3 months ago
  • carm's Avatar

    carm asked a questionCancer

    Prostate Cancer

    • lh25's Avatar
      lh25

      I'm not a guy, thus I didn't have prostrate cancer, but I did have Uterine cancer and radiation for that. And yes, I've had issues with diarrhea from it. Is there anything specific you were wondering about?

      For me, I started by avoiding fresh fruits, raw and some cooked veggies and dairy. That helped a lot. Now I can eat most veggies, dairy and fruit are still issues.

      4 months ago
    • carm's Avatar
      carm

      @Ih25,
      Thank you for responding. Actually I am an oncology nurse but I have a patient who has to make a choice between hormone or radiation therapy and he was told by another patient that diarrhea was sure to happen with radiation. I just wanted to know if it is a common side effect. Thank you for the information. I will make sure to pass it along to him.

      4 months ago
    • PopT's Avatar
      PopT

      I am about half way through 39 treatments and diarrhea has started.Was constipated at first and now at the other end of the situation.Radiologist suggests taking half of a Imodium tablet hasn’t worked yet but will keep trying.Also working through fatigue and incontinence issue’s.

      4 months ago
  • carm's Avatar

    carm asked a questionCancer

    Guyabano

    35 answers
    • geekling's Avatar
      geekling

      I have already told you, carm, that I do have personal experience with guanabana.

      You need to look up my history. I do not have cancer. I had a cancer tumor which a plethora of doctors were unable to diagnose over the course of 13 long years despite my pointing to it and asking what the growth was and if it could be removed. That was 16 years ago.

      I knew something was wrong but I had no idea what. I knew that the happy pills the doctors all wanted me to take were not going to help me. I refused Welbuterin, Lexapro, and a bunch of others. Despite me not knowing what my health challenge was, I knew I was in trouble. I believe that I was hurt because I was breathing poisonous air and being denied enough oxygen. We did not know there was toxic mold behind some of the walls and in the attic crawl space. The house insurer tried to save itself a little money by continuing to give us incorrect instructions on how to prevent mold after storm damage. I was eventually radiated 5 years before the mold was discovered.

      My Mom died in that house. Over the course of those 13 years I not only stayed alive but also kept the tumor at bay. In the end, I had to gain 65 pounds and grow the tumor along with the rest of me in order to be taken seriously by anyone in medicine. Despite that time and weight, the tumor was only, perhaps, a stage 2. I do not require a doctor's endorsement to be my own lab rat. I have always found that, regarding food and nutrition, US doctors are several steps behind me. The few really intelligent and good ones I have found had always tried to help and support me.

      I tried a lot of things of which you have likely not ever heard including guanabana. Of course I had no clue about cancer or mold and thought I was perhaps fighting some sort of parasite or ...

      You can buy guanabana at any market which has a fresh or frozen ethnic section. Outside of the US it is quite well known.

      Look up AHCC. It is a combo of fermented mushrooms. I still use reishi, maitake, shitaki upon occasion. I drink the occasional cup of chaga. I had to stay alive somehow. Medicine was not my friend but Nature was and still is to this day.

      It isnt your job, is it, to tell anyone what they should or shouldnt do? Carool misunderstood that I was doing that to her. When I write, I am only telling my story and pointing out that if it worked for me it might work for someone else too.

      Good night.

      5 months ago
    • po18guy's Avatar
      po18guy (Best Answer!)

      Quackery alert! I look at the cancer rates where people use such things daily - and fine that cancer rates are similar to other populations. If green stuff was so utterly effective, no one who eats it would have cancer. Sadly, we are not seeing that.

      True believers can and do lead others to a premature death at no risk to themselves! Show me the scientific evidence that it has a positive effect!

      It sounds like it may inhibit the liver's production of CYP3A4 - an enzyme which is crucial in making the chemo availble for the body to use.

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hey, po18guy, how do you REALLY feel???!!! :) :)

      (I agree. Especially like this sentence and find a ton of truth in it, "True believers can and do lead others to a premature death at no risk to themselves!")

      5 months ago