• Carolscheff's Avatar

    Carolscheff posted an update

    I have just completed clinical study at
    Washington university in St. Louis Mo and my CA125 is at it lowest point ever. I just wanted to let you all know that I am doing quite well a year and a half after being diagnosed. I am living proof that a diagnosis of ovarian cancer is NOT a death sentence.

    2 Comments
    • carm's Avatar
      carm

      Carolscheff. Congratulations and the best of luck to you, Carm RN.

      over 8 years ago
    • GregP_WN's Avatar
      GregP_WN

      Way to kick it Carol! Glad to hear your doing well, please check in often, you may be able to help some of the others that are just now starting their journey. They can always use advice from the "pros".
      Hope you continue to do great.

      over 8 years ago
  • Carolscheff's Avatar

    Carolscheff posted an update

    I have been in a clinical study for three months and am responding (in my doctor's words) exactly as expected. My CA 125 is now 9.7 and I was told that my tumors are shrinking. I am in a double blind study so even my doctors do not know if I am on a placebo or the real drug.
    I am also receiving Doxil as part of the study. I am just happy that whatever is working IS working. Yay!

    1 Comment
  • Carolscheff's Avatar

    Carolscheff posted an update

    I have been accepted into a clinical trial, but my insurance company is refusing to pay for the treatments that the study sponsor does not cover. Has anyone had this problem and how did you resolve it?

    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      This is a good question. I suggest that you click on Questions in the purple bar above and click it there so more people can weigh in. Additionally, you might consider calling the American Cancer Society at the phone number listed at the bottom of this page.

      almost 9 years ago
  • Carolscheff's Avatar

    Carolscheff posted an update

    Thanks to Joantri for offering her help. I learned a lot from you about clinical trials.....thanks.

    Has anyone had recurring primary peritoneal Carcinoma in the lymph glands in the chest? My doctor said it is very unusual for it to leave the abdominal area.