• Carool's Avatar

    Carool asked a questionBreast Cancer

    August 2021 Book Club Question

    13 answers
    • meyati's Avatar
      meyati

      Well, the tests for cancer and tumor markers are negative. I'm still holding my weight at 129 to 130 lbs. The only secondary problem is Alkaline Phosphatase . it is super high- and there doesn't seem to be anything much that can be done. I'm not sure what this does. I don't think that I've been tested for this before. My GI is hoping that it's the result of the hospitalization and resulting stress, besides I was trying to eat healthy for awhile and had diet changes. It's pretty much that my body absorbs about 10% of nutrients in food-part of this is that Igg4 reduces fat being absorbed into the body. I've dealt with this all of my life by eating French fries, and other greasy foods and taking vitamins- I am 79-and take care of 2 large coonhounds. I've craved and wanted greasy food all of my life- now I know why.

      about 14 hours ago
    • MarcieB's Avatar
      MarcieB

      Meyati, I am very happy to know your cancer results are negative. I don't know the significance of Alkaline Phosphatase either, but it sounds better than cancer! I don't think I would mind having a good excuse to eat french fries...and throw in a milkshake now and then...;-)

      about 10 hours ago
    • meyati's Avatar
      meyati

      Thanks, Marcie. I think everybody can understand how distracted I have been. Alex Trebek had pancreatic cancer, and it seemed really bad, besides the fact he died. He certainly had the money to get some of the best care in the world. I think he was stage IV when diagnosed.

      about 7 hours ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Why aren’t questions going to Questions?

    14 answers
    • PaulineJ's Avatar
      PaulineJ

      THEY'RE FREE

      Why aren't you all want a bracelet on your arm so they won'tuse that arm?

      I've been getting bracelets from this company since 2012 to have on my left arm so they know not to use that arm for anything .It's called Atert Lymphedema the telephone number is 1-800 293- 3362.He will send 5 bracelets to you. If you're interested call this number between Tuesday and Friday..If they don't answer leave a message and he will call you back asap.
      You can put it on any arm.The staff at the hospitals or doctors office don't pay attention most of the time..More than likely you might have to show them the bracelet and tell them what it's for.The bracelets last a long time if you take it off to shower.

      5 days ago
    • MarcieB's Avatar
      MarcieB

      Pauline, thank you for the information about the bracelets. Like I said, I ordered on on amazon, but when it arrived it was pretty clunky and I knew I would never wear it. But, I wouldn't mind popping on one of those colorful band types when I am going somewhere. To be honest - I will probably forget! But, it really is a good idea, especially if one is traveling and could need medical assistance in an unfamiliar place.

      5 days ago
    • PaulineJ's Avatar
      PaulineJ

      MarcieB Why are you paying when these are free and very light to wear.You don't even know you have it on..I bought one a long time ago from Medic alert and I prefer these instead.When I spoke to the owner last week I was telling him they lasted me a long time.Yes, he said they lasted you 3 years it looks like It could have been longer ,but I never was taken them off when I showered. they went from pink to purple.And as fussy as I am I would exchange them more often.So now I believe they w2ould last me much longer.

      5 days ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Fuscia Friday

    10 answers
    • meyati's Avatar
      meyati

      @ Marcie-- good for you. I bet you are very excited.

      Carol- I didn't take this as -homework- I'm taking this as being able to talk to others and enjoying it.

      3 months ago
    • legaljen1969's Avatar
      legaljen1969

      @Marcie- I know you are looking forward to the family visit. Clue is one of my favorite games. I loved it as a child. There was a lady in front of me buying stamps today and they were Scooby Doo stamps. She shared with the postal worker that when her nieces and nephews used to visit they would ask her how far from her house to the beach and she always told them "About four Scooby Doos." She said they are in their 40s now but she was sending them each a letter with a Scooby Doo stamp. I thought that was really cute and sweet.

      @Carool, my only "goings on" for today was a COVID shot #2. Yuck.

      3 months ago
    • Carool's Avatar
      Carool

      Meyati, I guess I felt it was homework for ME to find a question to ask. My imagination runs dry, but I like asking a weekly question. I didn’t mean to imply it was a burden for you (or anyone) to answer.

      Marcie, that’s great! I loved Clue, too, way, way back when.

      legaljen, that’s cute about the postage stamps. I never saw Scoobie Doo (past my time), but of course I know who he is.

      3 months ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Fain Friday

    28 answers
    • Carool's Avatar
      Carool

      Well, I’m a night owl and love being up all night and sleeping days or parts of days. I can’t remember how I slept prior to menopause. Back then I was able to get up in time to go to my day job, so I probably slept pretty well (it’s 21 years ago since chemo put me into menopause).

      I hope you get to sleep soon!

      3 months ago
    • petieagnor's Avatar
      petieagnor

      I had to laugh out loud at Molly 72's response. I also had to look up demarcate. New term for me. I need some brain stimulation. Since I've resigned from Boy Scouts, all of the days are the same. Week ends always presented lots to do. Also, I've avoided crowds since 2016.

      3 months ago
    • Carool's Avatar
      Carool

      petieagnor, thank you! While my days have all been pretty much the same for awhile now — and certainly since Covid — weekends still feel “different.” Old habits, I guess. However, I do love having a seven-day “weekend”! Of course, it then becomes an entire rest-of-life “weekend.”

      3 months ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Has anyone been in contact with Donna Pierce?

    17 answers
    • beachbum5817's Avatar
      beachbum5817 (Best Answer!)

      Donna, I was so excited to see your post. I think of you every time that I get on the site. Losing your spouse or partner is one of the hardest things that we go through. You are so right in saying that you have to take it day by day. I don't think that time really makes it better, but you do get somewhat settled into a new normal. I am glad that you have family close by. Check in whenever you can. Take care.

      6 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Donna, thanks for checking in! I can only imagine how difficult it is to lose someone who was so full of life and love ... and who was a part of your life for so long. I know you are absolutely right that Greg would want you to be happy and I also know how difficult that can be. I'm so very glad you have supportive family nearby (and afar) ... and you have us here, too, of course. You remain in my thoughts and prayers.

      6 months ago
    • andreacha's Avatar
      andreacha

      Donna, it was so great to see your post. Knowing what you are going through we all appreciate hearing from you. Personally, I'll never forget Greg's "Sweetie". Keep in touch when you are up to it.

      6 months ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Thankful Thursday

    8 answers
    • legaljen1969's Avatar
      legaljen1969

      I wish my husband cooked. LOL He can make a good PB&J sandwich or heat some frozen pizza.
      I am thankful though that he is flexible enough to allow me to order out when I have had a long day.

      We were discussing starting to get Home Chef meals again. I like that they are mostly portioned for two people. We were enjoying trying some new things.

      I was sort of enjoying cooking at home early in the pandemic, but by September I was so tired of my own cooking that I would have eaten just about anything as long as I didn't cook it.

      Anyhow, Thankful Thursday last week was that it was the last day of the work week for me. The Heritage Golf Tournament was played on Hilton Head so I was given the day off so I wouldn't have to contend with traffic.

      Thankful Thursday for this week, that I finally decided to be PRESENT even when it doesn't feel comfortable. I am thankful I decided NOT to run away and come back and enjoy the people I have come to treasure here.

      3 months ago
    • Carool's Avatar
      Carool

      legaljen, I’m thankful, too, that you’re with us.

      3 months ago
    • CAS1's Avatar
      CAS1

      I am thankful to be alive, I am thankful for the covid vaccine, which we received in February, I am thankful that we are making real progress to cure cancer and I am thankful I have a roof over my head and food plus my family.

      3 months ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Friday Fuzzle

    14 answers
    • Carool's Avatar
      Carool

      MarcieB, I’m going to post the three works in a few minutes (after I wrote what I did, the magazine asked if they could publish one more of the five I’d submitted).

      I had no idea (of course!) that you’d studied Photoshop or were in fine arts. Now I remember that you have posted some work on our Pinboard. I seldom go there. Going to look daily from now on. My undergrad and grad degrees are in fine art. I never took Photoshop or any other kind of computer graphics classes, just taught myself what I needed of Photoshop (though I didn’t know what I needed). I bet there are many better ways, technically, to do what I do.

      I knew the rudiments of chess when Bernard and I met, but nothing more. Way back when we met in 1977, he and I played maybe a few games. He then suggested I read some chess books. I wasn’t interested so that was that.

      4 months ago
    • legaljen1969's Avatar
      legaljen1969

      @Carool. Friday went okay at work. The work day was less painful than my COVID first shot, so there's that. LOL The absurdity of what caused the Thursday blow up would explain a lot of my frustration, but as I explained to Marcie, I am not open to the rantings and ravings of certain other lunatics outside my work situation at this time. Best to keep things on the down low.
      The whole situation is crazy. One day it's "you can't do anything right" and the next "Here is a bonus. I couldn't run this office without you." The bonuses are always very generous. I think sometimes things just have to hit a boiling point for the situation to resolve. I hate that. I really hate conflict. I would rather do almost anything that have to pitch a fit to get my point across, and believe me I try EVERYTHING at my disposal. I try everything in my bag of tricks. And the point just doesn't come across, but when I reach the boiling point- it's like everything resolves.
      I have decided that he just misses going to court and having someone to fight with on occasion. He can't fight with his wife, so I am the one who gets the brunt of it. Not really fair to me, or good for my mental health, but it is what it is. I just have to decide how much more I can endure.

      4 months ago
    • Carool's Avatar
      Carool

      @legaljen, I just noticed your reply to my question (as you know, we stopped getting WN notices of replies or other comments; this lack is very annoying).

      Thank you for writing. I did read your follow-up of Monday. I hope he somehow starts reining himself in; however, as you, I, and most other people know who haven’t been born yesterday, people don’t change (unless they really try to, and most people don’t try to, especially if they’re in power).

      Hanging in until you can’t sounds smart.

      I’d still be at the job I disliked, other than the work itself, if my sadistic boss (female) hadn’t laid me off (with some severance and unemployment insurance benefits). Laid off after 17 years of working hard. It still hurts and makes me angry when I think of it. Apology for repeating myself.

      4 months ago
  • Carool's Avatar

    Carool asked a questionBreast Cancer

    Hi, WhatNexters, how’s everyone doing?

    24 answers
    • Dltmoll's Avatar
      Dltmoll

      Thanks Beach I'm. I had a hip replacement in 2018; everyone tells me this will be worse. But the hip wasn't all that bad, so am plowing ahead. Expect to be fully bionic soon.
      Ironically, early in his career my brother did R & D on cancer drugs. The one he is moving to now was his baby, start to approval. Life can be so unbelievable sometimes.
      Thank you all for your good wishes.

      4 months ago
    • Ashera's Avatar
      Ashera

      MarciB - you stated exactly what I felt like after my second Pfizer vaccine! I even had an issue right after when I went into the waiting area. I sat for 30 minutes - as I had the with the first - because they said I was a cancer survivor and 'special' - with a smile! this time, around the 25 min mark - I stood up and suddenly got tunnel vision like I was going to pass out. One of the nurses keeping watch over this waiting area noticed me sit quickly back down and came over. Checked my pulse, strong, and I asked for water. She had another nurse return with a cup of tap water and I stayed another 15 minutes. She sat with me. Then I slowly stood - things seemed clear and good and I walked out. That night and the entire next two days or so - the fog, the great fatigue, the intense achiness...and then poof - all gone.

      4 months ago
    • MarcieB's Avatar
      MarcieB

      Ashera, nobody gave me the *special* treatment because I am a cancer survivor, so I think I will be moving to YOUR neighborhood...! (lol) I did not experience the tunnel vision thing, but my husband did. But, it was the only reaction he had. He had a bad moment when he thought he would pass out, but that was all. I had a friend who survived cancer and a week later she experienced her lymph nodes swelling In her left arm, even though she got her shot in the right arm. Well, that happened to me too. It will be a week tomorrow since I got the shot and all day yesterday I was aware of swelling under my left arm. I couldn't feel actual lumps, like nodes, but I was swollen. Today it is gone. I'm just glad it all behind me.

      4 months ago