• CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    Hair and scalp

    8 answers
    • Rustysmom's Avatar
      Rustysmom

      Yes, I remember my scalp feeling tender before it started coming out. I couldn't wait to get it shaved. Waking up with hair all over the pillow and in your mouth was not good! ;-)

      2 months ago
    • petieagnor's Avatar
      petieagnor

      I got sores on my scalp when it started falling out. Dr. said it was the Ph balance & to use Head & Shoulders shampoo. Since I was bald, I didn't need much so I got a travel size to try it.
      Cleared it up right away. It has happened several time afterwards & it worked. Chemo does a number on the body.

      20 days ago
    • CathyMurphy's Avatar
      CathyMurphy

      Thanks I shaved my head and bough5ba wig . Thanks to all

      20 days ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    TChp and herpercinChemo

    5 answers
    • cllinda's Avatar
      cllinda

      And then the Herceptin is done by itself every three weeks for the rest of the year. This part isn't as bad as the whole TCH cocktail, and the only side effect was headaches. And your heart has to be monitored during treatments. If your numbers go down, they take you off for a month, retest with EKG and then back to treatments. Hopefully your numbers go back up.
      Cancer is a crazy lifestyle for the next year. Hugs as you start this journey.

      3 months ago
    • CathyMurphy's Avatar
      CathyMurphy

      Thanks

      3 months ago
    • Jouska's Avatar
      Jouska

      It is also the standard of care for HER2+ breast cancer. Herceptin was a blessing to those of us who are HER2+ and it was only discovered about 15 years ago. I did not receive scans during or after my treatment but meet with my oncologist every 6 months - I am 4 years post treatment. There are certain symptoms that they look for and will have you look for post treatment, but happily I am here and kicking. The chemo was not fun, but it is survivable and the Herceptin by itself was a walk in the park. I didn't have headaches, just a bit of a runny nose and my MUGA scan for my heart remained good. Wishing you the best.

      3 months ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    Diahhea

    11 answers
    • CathyMurphy's Avatar
      CathyMurphy

      Yes very helpful thank you

      2 months ago
    • DebbiB's Avatar
      DebbiB

      I was turned onto a probiotic drinks (KeVita Sparkling Probiotic, Organics Fermented Tea, ). Another name for it is Kombucha. My radiologist and oncology infusion nurse both suggested I try the Kombucha as I too suffered diarraha various times. The KeVita and Organics brand have apple cider vinegar in it so it is a little harder to tolerate (I only take a few swallows a day) and it seems to help by putting the probiotics into my system that I normally don't have. I don't want to be taking a lot of pills and all so I have found that these drinks seem to do the job. Be aware and read the ingredients label. See what probiotics are in your "drink of choice". The probiotics help different parts of our body (digestive tracks, heart, etc.) (i.e., KeVita Sparkling Probiotic is fermented with apple cider vinegar and a kefir culture, these sweet-tart, bubbly bottles are smart picks because they're lower in sugar (about four grams per serving) and calories (only 25) compared to some fizzy probiotic drinks. And their sweetness comes from real fruit juice and stevia leaf extract, which so people favor over artificial sweeteners. “I like that it’s a plant extract, and there’s also some preliminary evidence that it may help lower blood pressure”.) I also just read this, as an option: "Pickles (also known as gherkins) are cucumbers that have been pickled in a solution of salt and water. They are left to ferment for some time, using their own naturally present lactic acid bacteria. This process makes them sour. Pickled cucumbers are a great source of healthy probiotic bacteria which may improve digestive health. They are low in calories and a good source of vitamin K, an essential nutrient for blood clotting. Keep in mind that pickles also tend to be high in sodium. It is important to note that pickles made with VINEGAR do not contain live probiotics.

      SUMMARY
      Pickles are cucumbers that have been pickled in salty water and fermented. They are low in calories and high in vitamin K. However, pickles made using vinegar do not have probiotic effects.

      I know I was a little??? (Lot) wordy on this post but it works for me. ***IMPORTANT: No matter what anyone suggests, RUN IT BY YOUR ONCOLOGIST/RADIOLOGIST before you try. What works for 1 or a million, may not work for someone else***. Good luck and I'll be praying for you.

      2 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      DebbiB,
      I just wanted to point out that vinegar is very hard on your teeth, so be sure it's very diluted and not allowed to stay on your teeth (brush).

      You might want to ask your oncologist specifically about supplementing with anything that aids blood clotting. I've had multiple blood clots in my lungs, and when vascular tests/ultrasound were negative on my legs, I was told that cancer patients get blood clots more often than other patients, possibly from their tumors.

      Best wishes.

      2 months ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    Anxiety

    12 answers
    • gpgirl70's Avatar
      gpgirl70

      I got a script for lorazepam in case the anxiety was too much for me to have any peace. I was in chemo for 20 weeks and finished my 30 pills around the time I finished chemo - so just over 1 pill a week. I also kept up with yoga classes and took lots of walks. I was real anxious for about a year after diagnosis but it was manageable once I finushed chemo.

      3 months ago
    • leslie48240's Avatar
      leslie48240

      I know it is all so overwhelming. Just here to tell you that once treatments start you will probably feel a certain amount of control that you are in the fight and doing something about it. Also...the year plus of treatments will be done before you know it! Hope it helps to know that many have done this and are still here to enjoy life....I'm one of them. Over 11 years since diagnosis and now almost 10 years testing clear. Hang in there!

      3 months ago
    • CathyMurphy's Avatar
      CathyMurphy

      Thanks for your great responses

      3 months ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    TChp chemo is it safe I see there’s a lawsuit that your hair may never return

    6 answers
    • MLT's Avatar
      MLT

      Yes, you will lose your hair, but you will have your life! And maybe some curls or waves later. Have lost my hair 3x now. My grandson said he prefers me without hair! Had my grandkids and family shave my head last summer. Wishing you successful treatments.

      4 months ago
    • Ashera's Avatar
      Ashera

      I used Taxotere - my hair - 3 years later - has come back very, very thin - a non-color and poor texture.You can see my scalp all over. It also took nine months after chemo ended to start growing. So, I live in awesome scarves and have wigs if I want to wear them. I did use a very reputable law firm - not one on TV or billboards - and after a year, they contacted me to say that the drug company, although setting aside millions of $ for payouts, were not going to do so. Those that are still advertising would not be doing anything different. The money is not being paid out. When I started my chemo - 3 yrs back - Taxotere was informing pts in Europe that use of their product could cause permanent hair loss. The paperwork at that time in the US did not state this. That changed quickly, and is now part of the possible side effects of this chemo. A conversation with your oncologist would be in order as to whether another type of drug would be possible if you are concerned about this possibility. I had a friend that used Taxol - and her hair came back. I wasn't one of the luckier ones.

      4 months ago
    • Ashera's Avatar
      Ashera

      PS - as cllinda said - NO chemo is safe - it is highly toxic - there will be side effects with any of them. Risk/benefit kind of thing. Ask questions. Killing cancer cells is the goal. Some of the innocent cells on the way are collateral damage.

      4 months ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    TChp chemo is it safe I see there’s a lawsuit that your hair may never return

    • ChildOfGod4570's Avatar
      ChildOfGod4570

      I've seen lawyer commercials about Taxiteer (spelling) causing permanent hair loss, but I had TC chemo in 2013, and my hair came back after the infusions had stopped. Have you brought this concern up to your doctor or infusion nurse? Those lawyer commercials don't tell you the percentage of people who regained their hair versus those who didn't. I surely do hope you are among those who will regain their hair after chemo is over. HUGS and God bless.

      4 months ago
  • CathyMurphy's Avatar

    CathyMurphy asked a questionBreast Cancer

    Ttchp chemo

    12 answers
    • fluteplayer's Avatar
      fluteplayer

      Since I am now on Ibrance and have to wear a wig. My hair never grew back the way it was . Bald spots from tc infusions twice. Can't sue as always will be on something.Was told I never needed it ever by new Dr. Always got the wrong medical advice

      4 months ago
    • LeahNelms' Avatar
      LeahNelms

      Me too. My hair grew back even thicker and voluminous. Good luck.

      4 months ago
    • Ashera's Avatar
      Ashera

      I was on TCPH - taxotere - and it took months after chemo to begin seeing fuzz. A year later - the fuzz turned into sparse, thin strands. I cut those short and had the hair colored, giving it more body - but it was still very sparse and looked bad on it's own. I went the rogaine route - it did make new hairs start to grow, but was expensive and messy and wasn't an overnight 'fix'. I stopped. I got some really cute wigs - but do not like wigs. I feel...fake. I've become a very accomplished scarf user and have dozens coordinating with most everything I wear.
      I was not informed about the possibility of permanent hair issues when I started chemo in June of 2015. By the time I was through, one year later with Herceptin - the lawsuits against the drug company for Taxotere were all over the place. I talked with a very reputable firm in New Orleans and filled out dozens of papers, providing tons of records. It was very legit. They were up front from the beginning - saying that the company had set aside tons of money to settle these kinds of suits but were not doing anything so far. After a year - I received word it was a lost cause. I know there were many 'ambulance chasing billboard types' making it sound easy - like we're still seeing the very same mesothelioma, vaginal mesh, and many more years later.

      So - I accept, sadly, I'm one of the women that had permanent hair issues - alopecia areata? I believe it's called in my chart. I'd asked the hair fairy for beautiful, wavy long red hair...she screwed up royally. I'm not saying the blliss-ninny response of "at least this or that..." I want both. To have no evidence of disease - NED - AND... hair.

      4 months ago