• CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Are there any long term survivors here? For 5 10 or 15 years?

    22 answers
    • KB2013's Avatar
      KB2013

      I was diagnosed with nslc Nov. 2012, Stage 3 then Apr. 2014, stage 4.

      25 days ago
    • SandiA's Avatar
      SandiA

      Hi! Six years for me!

      14 days ago
    • Richardc's Avatar
      Richardc

      I was diagnosed in January 2009 with school. Surgery, chemo and radiation-still here.

      14 days ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Have you considered that your outlook on your entire cancer situation will affect how you view each of the pieces of your cancer journey?

    7 answers
    • legaljen1969's Avatar
      legaljen1969

      Being positive is huge in this journey. I haven’t gone through hardly anything compared to most of you, and I catch myself being negative. I have to really work at being positive some days. I have a very empathetic personality and sometimes I just have to back off when I start feeling responsible to take on the pain of others.
      This group helps me turn my attitude around more often than not.
      Someone came into my office today to bring me some scarves because she found out from someone that I had breast cancer. When she walked in, she looked so sad. She seemed almost disappointed that I hadn’t lost my hair or that I didn’t “look sick.” I felt bad for her, but I was very thankful she wanted to be so generous. She asked what she should do with these scarves. I told her I hated to take advantage and if she wanted to return them she could, or if she wanted me to pass them on, I would. On Monday, they are going to my nurse navigator and donated on behalf of my friend.
      We agreed it would be nice to have her gift go to someone who could use it.

      about 1 month ago
    • Kp2018's Avatar
      Kp2018

      I couldn't agree more!

      about 1 month ago
    • schweetieangel's Avatar
      schweetieangel

      I agree always try to look at each part of the journey in a positive way.

      about 1 month ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Just curious about the wait times to get in to have blood drawn or treatments?

    • LiveWithCancer's Avatar
      LiveWithCancer

      I'm not sure I understand your question. The way my appointments went was blood draw, wait an hour for results, see the doctor. When I was getting Opdivo, I then often had to wait another hour or so for the pharmacy to fill the order for the Opdivo, which was given after the oncologist had a chance to review the blood test results. (Once I got out of the trial, getting the drug didn't take nearly as long - maybe half as long.)

      about 1 month ago
    • JaneA's Avatar
      JaneA

      Mine was always about 45-minutes to an hour from arrival, blood draw, lab results to oncologist, see oncologist, and then back to the chemo room - then it was was another 20-30 minute wait for the pharmacy to get my chemo ready.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      Most of the time, in this ride on this roller coaster, it's usually pretty quick. 15 minutes or less. I've been pleased overall with that part of this.

      about 1 month ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    No, I've never smoked, the answer to my most asked question!

    10 answers
    • Jayne's Avatar
      Jayne

      It's amazing to me that people still ask that question!

      about 1 month ago
    • JustGrateful's Avatar
      JustGrateful

      Add me to that list too, never a problem.

      about 1 month ago
    • Paperpusher's Avatar
      Paperpusher

      There has to be some kind of genetic component. My dad was Type 1 diabetic and had CAD. He smoked from the time he was teen until he had to have bypass surgery. No cancer. It was his diabetes and CAD that took him out bit by bit.

      about 1 month ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    This has probably been asked before but I couldn't find it here. Does CBD oil work for pain?

    15 answers
    • Jayne's Avatar
      Jayne

      Ditto everyone above - didn't do much at all for pain.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      And.....as of today, still no response from this company. But in the meantime, we did get another email from another company asking the same thing. And, I sent them the same response. I will probably get the same NO response from them.

      I am not against CBD, I was actually hoping that it was something that would work, I have a significant amount of pain from my current DX, I would love to have something that worked besides pain pills. But like a lot of things we run into and/or are told about cancer. If these things worked the doctors would be suggesting them or prescribing them. Of course, the conspiracy theorists won't have any part of that, they are still on the "there's a cure but they won't let us have it" theme.

      about 1 month ago
    • Mensacowgirl's Avatar
      Mensacowgirl

      My oncologist recommended that I try CBD oil but not the kind you buy on Amazon or in regular stores. He recommended going to a marijuana dispensary and getting CBD/THC salve.

      about 1 month ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    How long does it usually take to get your results back from a CAT scan?

    12 answers
    • DIlly39's Avatar
      DIlly39

      I usually get my cat scan result in a few days when I see the dr.for a follow up appt. It may be they are short staffed at this time because of the virus. Remember no news is good news.

      2 months ago
    • MyLungCancer's Avatar
      MyLungCancer

      I have had the results in the same day before, and I have also waited a week before. I guess it has a lot to do with what the facility, doctor, and radiologist has on their schedule. The waiting is terrible though.

      2 months ago
    • Paperpusher's Avatar
      Paperpusher

      It usually takes two weeks for my husband to get the results of his scans. That's a long wait when you know the onc usually has the radiology report at least by the next day unless the radiologist is getting input from someone else. We've had that happen. Hubby doesn't even have to go back in to see him to get the results. If they're ok, he may call or he may just release it to the portal

      2 months ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Being outside in the sun after being diagnosed? Do you avoid the sun at all costs? Or not take any precautions?

    9 answers
    • Dianem's Avatar
      Dianem

      I was always cautioned to use sunscreen, at least 30. And I’m definitely a sun person, so this was a big change. Now, I’m reading that 20 minutes of unfiltered sun a day is a good source of vitamin d which is important. Go figure!

      3 months ago
    • Kp2018's Avatar
      Kp2018

      Some types of chemotherapy, like anthracyclines, cause over sensitivity to sunlight. I was advised to cover up any areas of skin exposed while outdoors while I was on adriamycin (an anthracycline). Being covered had the added benefit of protecting me from insect bites.

      3 months ago
    • centered1's Avatar
      centered1

      I've had 4 cancers in a 6 year period...one of them was malignant melanoma. My doctor told me to cover up while in the sun. I also take a vitamin d supplement.

      3 months ago
  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Covid saved my life. Maybe?

    15 answers
    • meyati's Avatar
      meyati

      My X was walking his girlfriends little dogs down some beach stairs. They saw a cat, he got wrapped up in the leashes. He fell and broke his shoulder and collar bone. They found advanced cancer in both lungs. They removed one lung, and he passed 8 moths later. What's sad is that he tried to get the AF, Navy, VA, and civilian doctors to X-Ray his lungs. NIH and Medicare say that non-smokers can't have chest X-Rays unless there is a specific problem- It is so chepa and unfair to everyone but insurance companies.

      He started having heart trouble, and the coroner listed his death as heart failure. The whole family-8 adults took his cancer treatment to the coroner. The coroner modified the death certificate to died from heart failure caused by lung cancer-

      This is one reason I am so mad at Medicare and NIH. They should serve the public-patients-not serve the insurance-congress-money people.

      3 months ago
    • legaljen1969's Avatar
      legaljen1969

      @meyati. I can certainly understand your anger and frustration. One look at my most recent EOB left me shaking my head in disbelief that what hospitals bill so that insurance can justifiably whack away at the bill. It's really repulsive.
      Healthcare should not be doled out based on the bottom line and profits. Granted, I know doctors and nurses pay LOTS of money to get their training. They certainly deserve to be paid for their knowledge and expertise. Insurance company executives are paid NOT to pay claims. The less they pay out and authorize, the bigger their checks are at the end of the year. Meanwhile, people die because it's not in the interest of the profit margin.
      I am so sorry this happened to your ex. What a terrible situation.

      3 months ago
    • meyati's Avatar
      meyati

      @legaljen. My comments are with federal government control of my hrslth care. The tell the doctor what he/she has to do, and what they cannot do.

      My husband tried to get chest X-rays from the military and VA in 2 different states. He begged civilian doctors, and that is because NIH says that older people that don't smoke cannot get chest X-Rays unless they have an injury as my husband did..

      2017-I woke up from a combination Colonoscopy and Endoscopy, routine exam, and my temperature and Blood Pressure was all over the place. I couldn't speak, almost couldn't breath, couldn't swallow, etc. I live in a TB state, and we wondered if something was damaged during the endoscopy. My family was spoked after their father was left undiagnosed for about 10 years.Finally, we said--SUE-and I got my chest X-Rays. The X-rays helped my doctors too, they said so. After many ER, Urgent Care, and family doctor, they realized that I had Whooping Cough. Another issue is that the feds said that Seniors couldn't have booster shots. It was a waste of money. After caretakers realized I had Whopping Cough, they gave me the vaccines.

      A year ago to the day, I went in for antibiotics for a bad sinus infection. Medicare care and NIH said that antibiotics caused seniors to have bad stomach problems--SO NO ANTIBIOTICS-
      My doctor prescribed Montelukast. generic Singular. It causes hives, angioedema of lips and eye lids, swelled throat, stomach pain, increases heart burn, causes some to lose their voices, sleep problems, really weird nightmares, hallucinations, suicide, excema,, depression. and a few more goodies.

      It took a year before 2 doctors-specialists-found out what was wrong, and patch work health plan. If I get feverish my lips and eyelids swell up. If a hair touches my face, my whole face starts itching. I still have olfactory hallucinations- I smell lots of vinegar and some chemical smell..I don't know why, but my lips turn way black-I'm Irish. Also, I ended up with my whole face infected

      Doctors are no longer allowed to remove a mole or even do one stitch. One must wait months and months for an opening with a dermatologist. The chances are that a dermatologist won't biopsy the problem too. Think-- How do I know this. Then if a mole or something is removed, doctors are no longer allowed to stitch it up. A senior goes around looking like a torture victim that escaped. Ask me how do I know that.

      I can go on and on about me and the NIH and Medicare problems. I had about 6 incidents. since I turned 65. Before I could talk to doctors and have them listen, now they are thinking about getting paid and not being investigated by medicare-not thinking of me, thank you Medicare for ORDERING doctors to mistreat me-not give me antibiotics for infections. I think that NIH, Congress and Medicare are trying to kill us off.

      Thank you Congress for this, thank you NIH for not considering that I need an antibiotic

      3 months ago