• Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Resource for natural cancer strategies - Thought of @geekling and @barryboomer especially when I saw this

    5 answers
    • BoiseB's Avatar
      BoiseB

      Thank you E Journeys for the links. I am a great follower of "integrative medicine" I have bookmarked Annie's site and signed up for newsletters from the both sites. I noticed the article about Idaho. My brother has been fighting this bill in its many incarnations for several years not. We were discussing this a few days ago. It seems that my brother will not get his three minutes to address the legislature this year.

      2 days ago
    • Lola27's Avatar
      Lola27

      Don’t forget this is natural combined with conventional therapies!

      1 day ago
    • BoiseB's Avatar
      BoiseB

      @Lola27 Natural + Conventional = Integrative. I am so glad my medical system is committed to Integrative Medicine several Dr.s have that listed as their first interest.

      1 day ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Free webinar on Feb. 20, 2-3:30 PM Eastern: Cancer as a Disability: Your Rights in the Workplace

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: What does advocacy mean to you?

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Developing a practice of mindfulness

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Metastatic Prostate Cancer Project launched

    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting!

      about 1 month ago
    • Skyemberr's Avatar
      Skyemberr

      I can't wait to see whay other solid cancers they go after! Good luck to everyone in this study!

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    FDA patient engagement collaborative call-in on Jan. 12 at 2PM ET

    11 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @Ejourneys, I have participated, as you know, in some of the Twitter chats at #bcsm ... but boy, do I have trouble keeping up. I don't know when to retweet, like, follow ... just plain comment :) :) :) I was doing the lung cancer chats, too, but i just got lost. Things move sooooooooooo fast!!

      I listened to a book by Greta Van Susteren that I enjoyed - All You Need to Know about Social Media (without having to call a kid) or something like that. It was good. She loves Twitter, too. I think maybe she loves it so much that she feels like everyone knows what she knows so she didn't spend an inordinate amount of time on how to use it ... or I make it harder than it is, which is entirely possible.

      I love the description that Jay Rosen uses ... I have forsaken FB over the last 6 months or more. One day, I got tired of it. And, I didn't go back until my mom said I just had to go give a health update because people were starting to contact her and my brother for information :) I would enjoy the mindcasting far more than the lifecasting.

      about 1 month ago
    • Ejourneys' Avatar
      Ejourneys

      @LiveWithCancer, if you haven't done so already, I recommend following the chats using
      http://www.tchat.io/
      Once you sign in, you can choose a "hide retweets" option. You can also pause it if you need to catch your breath.
      Another chat tool is
      http://tweetchat.com/
      Both make the chats much easier to navigate than just using Twitter alone.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I do use tchat.io. I couldn't do Twitter at all :)

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    ProPublica article: Seven Ways Patients Can Protect Themselves From Outrageous Medical Bills

    11 answers
    • BarbarainBham's Avatar
      BarbarainBham

      Thank you, Ejourneys. Corporations like Tenet that own hospitals have previously been in trouble for billing practices. I again recommend going to a large medical center run by the local government, such as university-affiliated.

      2 months ago
    • cllinda's Avatar
      cllinda

      I recently had a health scare that sent me to the hospital. I didn't have any choice of what tests there were, and the doctors that saw me. And I didn't think of all these questions to ask. It sounds good to have this list,but not always practical to put in use.

      2 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      As the face of a medical TPA... For most of our groups, our CSR's do NOT have access to the CPT (medical procedure) codes. They quote benefits from description, not code. And the caller is not going to get an exact "this is how much you owe", as in our instance, we "rent" pricing networks from the big boys, like Aetna or Cigna, so we don't hold the contracts. We don't know that code 99212 = $xx. We can tell you the % coverage after deductible is met, how much your ded is and how much your maximum out of pocket for the benefit year is. Granted, that is only one of the 7, but I thought I'd point that out. Thanks.

      2 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    9-year-old cancer patient asks for cards to celebrate 'last Christmas' early

    7 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thanks for the info. Will share and get a card off to him.

      4 months ago
    • Tobysmom's Avatar
      Tobysmom

      Thank you I will be send a card to this child and his family at this unfortunate time.

      4 months ago
    • andreacha's Avatar
      andreacha

      I'm in as well. Will buy a special card for him and send.

      4 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    U Miami conducting survey on cancer screening for LBTQ women

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Senate Finance Committee hearing on Graham-Cassidy ACA repeal bill: where to email your comments

    5 answers
    • geekling's Avatar
      geekling

      Great work Ejourneys!. I got a note back from Rubio, of course; an email with the subject "interim response" which, I assume, means he has his fingers in his proverbial ears and is chanting "nyah nyah nyah nyah nyah".

      5 months ago
    • Ejourneys' Avatar
      Ejourneys

      Yeah, that's Rubio's boilerplate, @geekling -- and thanks for calling! I have enough "interim response" emails to paper the whole house and then some. :-) Eventually he sends a longer boilerplate letter that is equally tone deaf. But at least it's standard letter format. My congressman (Webster) sends boilerplate letters that are *centered* -- you know, as in party invitations -- and they look hilariously juvenile except that they're also legislatively destructive. Better (worse) yet, one of his letters stated how honored he was to serve District -- and he gave the *wrong number*. He used to "represent" that district, but he doesn't anymore. His staff couldn't even be bothered to check for the correct district.

      I've called Rubio's offices every weekday this past week, and each call generates that interim response. But one call made my day, when I spoke with one of his aides who AGREED with what I was saying -- because he was ALSO very concerned about Graham-Cassidy and the effect it would have on his family. It definitely says something when one gets that response from within Rubio's office.

      5 months ago
    • andreacha's Avatar
      andreacha

      I spoke with "Elizabeth" in Senator Isakson's office this morning. I asked if she was inundated with calls and she answered affirmatively. Of course I told her how I felt about the bill and she said that all staff in the various offices are logging each call and whether the caller for was in favor of the bill or not. I got the distinct impression that the majority of the calls were against it. If they had the same insurance as us we wouldn't have this problem. We'd be well covered.

      5 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Update on the Metastatic Breast Cancer Project

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Power's back on and we're good! (Hurricane Irma update)

    12 answers
    • banditwalker's Avatar
      banditwalker

      I got power this morning. Boy, am I spoiled. As soon as I got electricity I started the dishwasher, washing machine, and took a good warm shower. I am 2 miles from the beach now instead of 2 blocks. I still stayed at a friends house.

      I'm so glad everyone is OK and no one experienced damage to home or life.

      5 months ago
    • andreacha's Avatar
      andreacha

      I'm usually like Greg and his electric service, however, with this storm coming through my end of the street had power and so many thousands of others didn't. It was considered a Tropical Storm in the N. GA mountains. My family in Kissimme and Tampa went to Disney in Orlando. Almost all of their hotels are deemed hurricane proof now that the new codes have been completed. Each has huge generators to keep them going with power. Full breakfasts served and boxed lunches. A couple of the hotels served limited dinners. Animals were accepted at a very nominal cost. They said that Disney staff were great and catered to their every need. So glad to see you are all ok. I know some of you have had some damage but it sounded minimal compared to what could have happened. My big decision after this storm is to have many trees close to my home removed completely. A lot of pines with shallow root systems. Surrounding communities and south of Atlanta had far more damage than we did in our town. Downed trees and power lines were prevalent here. I'm thankful for my Blessings.

      5 months ago
    • fiddler's Avatar
      fiddler

      Glad you guys made it through! Lots of prayers your way....

      5 months ago