• Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    9-year-old cancer patient asks for cards to celebrate 'last Christmas' early

    7 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thanks for the info. Will share and get a card off to him.

      17 days ago
    • Tobysmom's Avatar
      Tobysmom

      Thank you I will be send a card to this child and his family at this unfortunate time.

      17 days ago
    • andreacha's Avatar
      andreacha

      I'm in as well. Will buy a special card for him and send.

      16 days ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    U Miami conducting survey on cancer screening for LBTQ women

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Senate Finance Committee hearing on Graham-Cassidy ACA repeal bill: where to email your comments

    5 answers
    • geekling's Avatar
      geekling

      Great work Ejourneys!. I got a note back from Rubio, of course; an email with the subject "interim response" which, I assume, means he has his fingers in his proverbial ears and is chanting "nyah nyah nyah nyah nyah".

      about 1 month ago
    • Ejourneys' Avatar
      Ejourneys

      Yeah, that's Rubio's boilerplate, @geekling -- and thanks for calling! I have enough "interim response" emails to paper the whole house and then some. :-) Eventually he sends a longer boilerplate letter that is equally tone deaf. But at least it's standard letter format. My congressman (Webster) sends boilerplate letters that are *centered* -- you know, as in party invitations -- and they look hilariously juvenile except that they're also legislatively destructive. Better (worse) yet, one of his letters stated how honored he was to serve District -- and he gave the *wrong number*. He used to "represent" that district, but he doesn't anymore. His staff couldn't even be bothered to check for the correct district.

      I've called Rubio's offices every weekday this past week, and each call generates that interim response. But one call made my day, when I spoke with one of his aides who AGREED with what I was saying -- because he was ALSO very concerned about Graham-Cassidy and the effect it would have on his family. It definitely says something when one gets that response from within Rubio's office.

      about 1 month ago
    • andreacha's Avatar
      andreacha

      I spoke with "Elizabeth" in Senator Isakson's office this morning. I asked if she was inundated with calls and she answered affirmatively. Of course I told her how I felt about the bill and she said that all staff in the various offices are logging each call and whether the caller for was in favor of the bill or not. I got the distinct impression that the majority of the calls were against it. If they had the same insurance as us we wouldn't have this problem. We'd be well covered.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Update on the Metastatic Breast Cancer Project

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Power's back on and we're good! (Hurricane Irma update)

    12 answers
    • banditwalker's Avatar
      banditwalker

      I got power this morning. Boy, am I spoiled. As soon as I got electricity I started the dishwasher, washing machine, and took a good warm shower. I am 2 miles from the beach now instead of 2 blocks. I still stayed at a friends house.

      I'm so glad everyone is OK and no one experienced damage to home or life.

      2 months ago
    • andreacha's Avatar
      andreacha

      I'm usually like Greg and his electric service, however, with this storm coming through my end of the street had power and so many thousands of others didn't. It was considered a Tropical Storm in the N. GA mountains. My family in Kissimme and Tampa went to Disney in Orlando. Almost all of their hotels are deemed hurricane proof now that the new codes have been completed. Each has huge generators to keep them going with power. Full breakfasts served and boxed lunches. A couple of the hotels served limited dinners. Animals were accepted at a very nominal cost. They said that Disney staff were great and catered to their every need. So glad to see you are all ok. I know some of you have had some damage but it sounded minimal compared to what could have happened. My big decision after this storm is to have many trees close to my home removed completely. A lot of pines with shallow root systems. Surrounding communities and south of Atlanta had far more damage than we did in our town. Downed trees and power lines were prevalent here. I'm thankful for my Blessings.

      2 months ago
    • fiddler's Avatar
      fiddler

      Glad you guys made it through! Lots of prayers your way....

      2 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: cancer advocacy

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Cancer Support Community (CSC) statement opposing the Senate health care bill

    18 answers
    • Ejourneys' Avatar
      Ejourneys

      THANK YOU, @Molly72!

      Reminder to all that many (all?) calling plans let you call your legislator's office in DC free of charge. Some of the district offices I've called have been free of charge, too.

      5 months ago
    • geekling's Avatar
      geekling

      I will reiterate, @Ejourneys.

      No one ever has answered the phone when I have called Rubio's office.

      I do admit my great surprise when discovering that these times, over this healthcare issue, I was able to leave a message and in two different sections or options both of which are easily erased. Maybe, however, the staff is taking a count of pro vs anti.

      5 months ago
    • Ejourneys' Avatar
      Ejourneys

      @geekling, thanks for trying!
      Here's my log from the past couple of days re my calls to Rubio - these are calls that I made after the ones I referenced above:

      June 28: Called Rubio's DC office and spoke with Cat.
      June 29: Called Rubio's Orlando office and spoke with Andrew. Then called his Miami office later the same day and spoke with Anna.

      The reason I called twice today was because in addition to again urging Rubio to vote NO on the health care bill, I asked about his town hall schedule during the July 4 recess (he's notorious for not holding them). Andrew in Orlando said there would be a separate sign-up for town hall updates on Rubio's website, in addition to the sign-up for Rubio's newsletter. I'm already signed up for the newsletter. After speaking with Andrew I went onto the site and saw just the newsletter sign-up. I signed up again, and again got the message that I had signed up for just the newsletter.

      I couldn't get through to a live person when I tried calling Andrew back, so I called Miami and explained the above to Anna. Anna checked with her supervisor, then told me that the newsletter sign-up would get me town hall updates. I'm not holding my breath.

      If I can't reach a live person or a way to leave a message (i.e., if the voicemail is full), I just work my way down the line of all his phone numbers. Here they are:

      DC: 202... 224...3041
      Orlando: 407... 254...2573 Toll free in Florida: 866... 630...7106
      Miami: 305... 418...8553
      Tampa: 813... 287...5035
      Jacksonville: 904... 398...8586
      Pensacola: 850... 433...2603
      Tallahassee: 850... 599...9100
      Palm Beach: 561... 775... 3360

      I've inserted ellipses so that the algorithm doesn't redact the phone numbers.

      5 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Do we need cancer survivor categories?

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Pet Peeves, Myths, and Fake News

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Open mic night

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    FDA Approves First Cancer Treatment for Any Solid Tumor With a Specific Genetic Feature

    4 answers
    • GregP_WN's Avatar
      GregP_WN

      I just went through about 6 articles that were talking about this, judging by all the press on it, it must be a big deal.

      6 months ago
    • Rollercoaster's Avatar
      Rollercoaster

      Excited to see this news as well. I had genomic testing recently and my oncologist told me that the new research is based upon what type of tumor you have and not the location in the body. Hope that this helps many people in the future. Godspeed.

      6 months ago
    • Whitey61's Avatar
      Whitey61

      I am benefiting from this exactly.. Genetic profiling has determined my prostate pathology mutation to be a good candidate for PD1/PDL1 checkpoint inhibitor's and I'm doing well..first time in 2.5 yrs that I was told by my Oncologist that I'm now a cancer survivor...nowhere near being out of the woods and Treatment will continue for the indefinite future..but was certainly nice to hear.

      6 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Tumor Boards: Understanding Your Healthcare Team

    • GregP_WN's Avatar
      GregP_WN

      Thanks for the reminders, if anyone wants to drop in on these Twitter chats, they welcome anyone, you can follow along or join in the conversation.

      6 months ago