• Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Dept of Health and Human Services (HHS) Ofc on Women's Health has removed Breast Cancer pgs; Internet Archive has them

    53 answers
    • BarbarainBham's Avatar
      BarbarainBham

      ChicagoSandy, you don't know what I believe.

      There are people on this site who've said they are stressed and can't sleep after hearing about political news---furthermore, it's not necessary or appropriate on a cancer support website. People have left the site because of it, and everyone should respect the fact that this is a site for PATIENTS. (ACS)

      Any cancer news is welcome without the extraneous political digs.

      9 days ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      This site is for cancer patients and their caregivers seeking cancer information and guidance from fellow patients. "Support" isn't just about "feeling good." Anything that impacts our cancer treatment and survival is germane--and if certain leaders with the power to influence health care policy do so in a way that affects us cancer patients adversely (while paying only lip service to their Constitutional duties), we should not be forced to shut up about it.

      9 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      It's previously been discussed that others go to political websites to discuss political views. Interested cancer patients can go there also, but cancer patients who don't want to be around POLITICAL ANGER AND INSULTS shouldn't have to be subjected to it.

      The negativity is the issue, and we don't want it.

      7 days ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Call to action: Submit public comment to oppose HHS Secretary Alex Azar's plan to flood the health insurance market with junk insurance.

    6 answers
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Psychosocial Impact of Pre-malignant conditions (PIP) Study looking for participants

    • Ejourneys' Avatar
      Ejourneys

      Medical Conditions such as:

      Blood related: Monoclonal B cell lymphocytosis, MGUS (monoclonal gammopathy of undetermined significance), Preleukaemia/Preleukemia, SMM (smouldering/smoldering multiple myeloma).

      Breast and Gynaecology related: Cervical dysplasia, CIN (cervical intraepithelial neoplasia), DCIS (ductal carcinoma in situ), LCIS (lobular carcinoma in situ), Uterine cervix carcinoma in situ, VAIN (vaginal intraepithelial neoplasia), VIN (vulvar intraepithelial neoplasia).

      Gastric conditions: Barrett's Esophagus/Oesophagus, Colorectal polyps, Gastric conditions (gastritis, atrophy, intestinal metaplasia, Autoimmune metaplastic atrophic gastritis).

      Male-Specific Organs/Urology: PIN (prostate intraepithelial neoplasia), Testicular intraepithelial neoplasia.

      Oral related: Erythroplakia, Leukoplakia, Erythroleukoplakia, OLP (oral lichen planus).

      Other conditions: Actinic Keratosis (skin), Dyskeratosis congenita (bone marrow).

      about 1 month ago
    • geekling's Avatar
      geekling

      Nobody ever seems to care about a woman's ASSets.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    FYI Prostate cancer: Large, robust study on screening gets very little media coverage

    • geekling's Avatar
      geekling

      Wow, Ejourneys, this website is a phenomenally marvelous resource.

      Thank you.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Have you read your medical record?

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Resource for natural cancer strategies - Thought of @geekling and @barryboomer especially when I saw this

    5 answers
    • BoiseB's Avatar
      BoiseB

      Thank you E Journeys for the links. I am a great follower of "integrative medicine" I have bookmarked Annie's site and signed up for newsletters from the both sites. I noticed the article about Idaho. My brother has been fighting this bill in its many incarnations for several years not. We were discussing this a few days ago. It seems that my brother will not get his three minutes to address the legislature this year.

      2 months ago
    • Lola27's Avatar
      Lola27

      Don’t forget this is natural combined with conventional therapies!

      about 1 month ago
    • BoiseB's Avatar
      BoiseB

      @Lola27 Natural + Conventional = Integrative. I am so glad my medical system is committed to Integrative Medicine several Dr.s have that listed as their first interest.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Free webinar on Feb. 20, 2-3:30 PM Eastern: Cancer as a Disability: Your Rights in the Workplace

    • LiveWithCancer's Avatar
      LiveWithCancer

      This should answer lots of questions people have!

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      This is a common issue, should be valuable information.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: What does advocacy mean to you?

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Developing a practice of mindfulness

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Metastatic Prostate Cancer Project launched

    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting!

      3 months ago
    • Skyemberr's Avatar
      Skyemberr

      I can't wait to see whay other solid cancers they go after! Good luck to everyone in this study!

      3 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    FDA patient engagement collaborative call-in on Jan. 12 at 2PM ET

    11 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @Ejourneys, I have participated, as you know, in some of the Twitter chats at #bcsm ... but boy, do I have trouble keeping up. I don't know when to retweet, like, follow ... just plain comment :) :) :) I was doing the lung cancer chats, too, but i just got lost. Things move sooooooooooo fast!!

      I listened to a book by Greta Van Susteren that I enjoyed - All You Need to Know about Social Media (without having to call a kid) or something like that. It was good. She loves Twitter, too. I think maybe she loves it so much that she feels like everyone knows what she knows so she didn't spend an inordinate amount of time on how to use it ... or I make it harder than it is, which is entirely possible.

      I love the description that Jay Rosen uses ... I have forsaken FB over the last 6 months or more. One day, I got tired of it. And, I didn't go back until my mom said I just had to go give a health update because people were starting to contact her and my brother for information :) I would enjoy the mindcasting far more than the lifecasting.

      3 months ago
    • Ejourneys' Avatar
      Ejourneys

      @LiveWithCancer, if you haven't done so already, I recommend following the chats using
      http://www.tchat.io/
      Once you sign in, you can choose a "hide retweets" option. You can also pause it if you need to catch your breath.
      Another chat tool is
      http://tweetchat.com/
      Both make the chats much easier to navigate than just using Twitter alone.

      3 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I do use tchat.io. I couldn't do Twitter at all :)

      3 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    ProPublica article: Seven Ways Patients Can Protect Themselves From Outrageous Medical Bills

    11 answers
    • BarbarainBham's Avatar
      BarbarainBham

      Thank you, Ejourneys. Corporations like Tenet that own hospitals have previously been in trouble for billing practices. I again recommend going to a large medical center run by the local government, such as university-affiliated.

      4 months ago
    • cllinda's Avatar
      cllinda

      I recently had a health scare that sent me to the hospital. I didn't have any choice of what tests there were, and the doctors that saw me. And I didn't think of all these questions to ask. It sounds good to have this list,but not always practical to put in use.

      4 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      As the face of a medical TPA... For most of our groups, our CSR's do NOT have access to the CPT (medical procedure) codes. They quote benefits from description, not code. And the caller is not going to get an exact "this is how much you owe", as in our instance, we "rent" pricing networks from the big boys, like Aetna or Cigna, so we don't hold the contracts. We don't know that code 99212 = $xx. We can tell you the % coverage after deductible is met, how much your ded is and how much your maximum out of pocket for the benefit year is. Granted, that is only one of the 7, but I thought I'd point that out. Thanks.

      4 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    9-year-old cancer patient asks for cards to celebrate 'last Christmas' early

    7 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thanks for the info. Will share and get a card off to him.

      6 months ago
    • Tobysmom's Avatar
      Tobysmom

      Thank you I will be send a card to this child and his family at this unfortunate time.

      6 months ago
    • andreacha's Avatar
      andreacha

      I'm in as well. Will buy a special card for him and send.

      6 months ago