• Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: impact of faith/spirituality on your cancer journey

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Reunion Tour -- welcoming old friends and new and looking forward to the future.

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Resource guide for saving our health care

    16 answers
    • BoiseB's Avatar
      BoiseB

      American's are so polarized that I believe a sensible result is almost impossible. And a culture of hate has been whipped into a frenzy (both sides have fed this) The result of this is the election of Trump. Trump is a loose cannon at best (as are many of his cabinet). It is now the time for cooler heads to prevail. I do not place myself in the category of "cooler head) Thank you for the links. I noticed one of my congressmen (well not my congressman he is from the other district) is on one other committees, I will get a letter out to him. I know out senator refused to endorse Trump until a bunch of bullies began removing campaign signs from the yards. He then caved and endorsed Trump. One can see where this insanity has gone.

      25 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, Ejourneys!
      I don't know the background of this story at all, read the article, but don't know what to make of it. I always "consider the source" when reading editorials because so much is embellished.

      1. The author says in the last paragraph that "some reporters who cover this beat don't agree with my read of these remarks." He doesn't explain why not or make a case for his remarks, so that makes me wonder if we should agree "with his read."

      2. The author doesn't explain to someone like myself who isn't that familiar with the topic why in the world there would be a previous law on the books preventing negotiating drug prices or what the presumed objective was then---I have no idea what the law is about, but if it's a law, wouldn't Trump HAVE to stop or change the law?

      3. The author doesn't explain why the new HHS Secretary is against negotiating drug prices, unless it's because of the law, which would be reasonable.

      Can you tell me what the original purpose of the old law was? Trump must have just learned about it also.

      25 days ago
    • Ejourneys' Avatar
      Ejourneys

      Sure thing, @BarbaraBham! Please view this CBS News report on the cost of cancer drugs. Among other things, it discusses that law.
      http://www.cbsnews.com/news/the-cost-of-cancer-drugs/

      25 days ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Live ePatient chat on 2/7 10am PDT - Impacts & management strategies for Affordable Care Act repeal

    • Ejourneys' Avatar
      Ejourneys

      UPDATE: The time on the website has been corrected to 8:30 a.m. PDT. The organizer confirms that 8:30 is the correct time.

      25 days ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Highlights of the ASCO 2017 Cancer Survivorship Symposium

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: this week's ASCO (American Society of Clinical Oncology) Survivorship Symposium

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#BCSM) chat: Open mic

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Resources for breast cancer and for cancer in general

    4 answers
    • Ashera's Avatar
      Ashera

      Ejourneys - Thanks much for listing this site! This girl did a fantastic job compiling so many places on one list.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I think it is awesome what she did!

      about 1 month ago
    • Jesse0218's Avatar
      Jesse0218

      Thank you Madison! This will be really helpful.

      about 1 month ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Building a more collaborative community

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Year-end wrap up and goals for 2017

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Breast cancer college scholarships

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Learning about Cancer Clinical trials

    • GregP_WN's Avatar
      GregP_WN

      I was curious, how many people participate in these Tweet Chats? Or do you have any way of knowing? They are interesting from a content delivery point of view.

      3 months ago
    • Ejourneys' Avatar
      Ejourneys

      Participants are listed at
      http://www.symplur.com/healthcare-hashtags/bcsm/
      which also provides transcripts.
      You can get analytics for any time period. I called up the analytics for last night's chat, which had 340 tweets from 51 participants.

      2 months ago
    • GregP_WN's Avatar
      GregP_WN

      Wow, that's impressive, we have been tossing around doing something like that as an extra means of support. Thanks for the information.

      2 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Community Oncology Alliance Patient Advocacy Network (CPAN) call series on Tues., Dec. 13 8-9 PM ET

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: a holiday grab-bag of topics

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Good advice if you need lifesaving cancer drugs that insurance won't cover

    7 answers
    • Whitey61's Avatar
      Whitey61

      I think the key is to go directly to the drug company..not the middle man.

      3 months ago
    • jujurrr's Avatar
      jujurrr

      Yes we learned that the hard way Whitey61. You are right and we paid with it with loss of time. As happy as I was when we heard the good news a part of me was mad at myself for not going directly through the company. That's why this site is invaluable so we learn from others. Thanks.

      3 months ago
    • Molly72's Avatar
      Molly72

      If big drug companies REALLY cared about patients, they would not try to charge thousands of dollars for their products!
      No one can afford to pay that much for a drug except the few 1%'ers. So why bother to charge that outrageous amount? That makes absolutely no sense.
      Perhaps spending less on advertising might help the financially strapped Big Pharma companies.

      Here is my experience with a patient advocacy group: One drug I am trying to get had a co-pay of $1000 per month in October & November, then upped it to $1200 in December. Since there is no way I can afford even a eighth of that, I applied for financial help way back in October. They lost all my paper work, including my Federal Tax Returns, with of course my S.S. number. Then they lost it again!
      At the end of this month, if everything is not completed, I will have to start the entire process again for 2017. I MUST go through my drug insurance company, my specialty pharmacy company, and the drug company itself.

      What a dog & pony show!

      3 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Coping with the holidays

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Inaugural chat of Advanced/Metastatic Cancer Social Media (#AMSM) on Mon Nov 21 4PM EST to discuss Lung Cancer Awareness Month support

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: Breast Cancer - what's luck got to do with it?

  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: breast cancer as a second cancer diagnosis

    • GregP_WN's Avatar
      GregP_WN

      Thanks for mentioning WhatNext on your chat. We appreciate the shout out.

      4 months ago
    • Ejourneys' Avatar
      Ejourneys

      I appreciate you all being here! :-)

      4 months ago
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Tonight's breast cancer social media (#bcsm) chat: When you heard "you have cancer," what was your FIRST question?

    • janec0488's Avatar
      janec0488

      Totally expected to hear that I had BC (I was diagnosed in 1996 at the age of 42) since my mother @ 32 died from it. I am now 61 and thankful.

      5 months ago