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Dept of Health and Human Services (HHS) Ofc on Women's Health has removed Breast Cancer pgs; Internet Archive has them
ChicagoSandy, you don't know what I believe.
There are people on this site who've said they are stressed and can't sleep after hearing about political news---furthermore, it's not necessary or appropriate on a cancer support website. People have left the site because of it, and everyone should respect the fact that this is a site for PATIENTS. (ACS)
Any cancer news is welcome without the extraneous political digs.
This site is for cancer patients and their caregivers seeking cancer information and guidance from fellow patients. "Support" isn't just about "feeling good." Anything that impacts our cancer treatment and survival is germane--and if certain leaders with the power to influence health care policy do so in a way that affects us cancer patients adversely (while paying only lip service to their Constitutional duties), we should not be forced to shut up about it.
It's previously been discussed that others go to political websites to discuss political views. Interested cancer patients can go there also, but cancer patients who don't want to be around POLITICAL ANGER AND INSULTS shouldn't have to be subjected to it.
The negativity is the issue, and we don't want it.
Psychosocial Impact of Pre-malignant conditions (PIP) Study looking for participants
Medical Conditions such as:
Blood related: Monoclonal B cell lymphocytosis, MGUS (monoclonal gammopathy of undetermined significance), Preleukaemia/Preleukemia, SMM (smouldering/smoldering multiple myeloma).
Breast and Gynaecology related: Cervical dysplasia, CIN (cervical intraepithelial neoplasia), DCIS (ductal carcinoma in situ), LCIS (lobular carcinoma in situ), Uterine cervix carcinoma in situ, VAIN (vaginal intraepithelial neoplasia), VIN (vulvar intraepithelial neoplasia).
Gastric conditions: Barrett's Esophagus/Oesophagus, Colorectal polyps, Gastric conditions (gastritis, atrophy, intestinal metaplasia, Autoimmune metaplastic atrophic gastritis).
Male-Specific Organs/Urology: PIN (prostate intraepithelial neoplasia), Testicular intraepithelial neoplasia.
Oral related: Erythroplakia, Leukoplakia, Erythroleukoplakia, OLP (oral lichen planus).
Other conditions: Actinic Keratosis (skin), Dyskeratosis congenita (bone marrow).
Tonight's breast cancer social media (#bcsm) chat: Have you read your medical record?
This was appropriate topic since we were just discussing it here :)
Transcript at
https://www.symplur.com/healthcare-hashtags/BCSM/transcript/?hashtag=BCSM&fdate=02%2F26%2F2018&shour=18&smin=00&tdate=02%2F26%2F2018&thour=19&tmin=15
@LiveWithCancer I included that thread in the discussion :-)
https://twitter.com/Elissa_Malcohn/status/968312437182214146
Resource for natural cancer strategies - Thought of @geekling and @barryboomer especially when I saw this
Thank you E Journeys for the links. I am a great follower of "integrative medicine" I have bookmarked Annie's site and signed up for newsletters from the both sites. I noticed the article about Idaho. My brother has been fighting this bill in its many incarnations for several years not. We were discussing this a few days ago. It seems that my brother will not get his three minutes to address the legislature this year.
FDA patient engagement collaborative call-in on Jan. 12 at 2PM ET
@Ejourneys, I have participated, as you know, in some of the Twitter chats at #bcsm ... but boy, do I have trouble keeping up. I don't know when to retweet, like, follow ... just plain comment :) :) :) I was doing the lung cancer chats, too, but i just got lost. Things move sooooooooooo fast!!
I listened to a book by Greta Van Susteren that I enjoyed - All You Need to Know about Social Media (without having to call a kid) or something like that. It was good. She loves Twitter, too. I think maybe she loves it so much that she feels like everyone knows what she knows so she didn't spend an inordinate amount of time on how to use it ... or I make it harder than it is, which is entirely possible.
I love the description that Jay Rosen uses ... I have forsaken FB over the last 6 months or more. One day, I got tired of it. And, I didn't go back until my mom said I just had to go give a health update because people were starting to contact her and my brother for information :) I would enjoy the mindcasting far more than the lifecasting.
@LiveWithCancer, if you haven't done so already, I recommend following the chats using
http://www.tchat.io/
Once you sign in, you can choose a "hide retweets" option. You can also pause it if you need to catch your breath.
Another chat tool is
http://tweetchat.com/
Both make the chats much easier to navigate than just using Twitter alone.
ProPublica article: Seven Ways Patients Can Protect Themselves From Outrageous Medical Bills
Thank you, Ejourneys. Corporations like Tenet that own hospitals have previously been in trouble for billing practices. I again recommend going to a large medical center run by the local government, such as university-affiliated.
As the face of a medical TPA... For most of our groups, our CSR's do NOT have access to the CPT (medical procedure) codes. They quote benefits from description, not code. And the caller is not going to get an exact "this is how much you owe", as in our instance, we "rent" pricing networks from the big boys, like Aetna or Cigna, so we don't hold the contracts. We don't know that code 99212 = $xx. We can tell you the % coverage after deductible is met, how much your ded is and how much your maximum out of pocket for the benefit year is. Granted, that is only one of the 7, but I thought I'd point that out. Thanks.
