• ElizaM's Avatar

    ElizaM posted an update

    Want to report the amazing news that up until this week my onc was telling me that, no matter what, I would be on chemo bi-weekly for the rest of my life, that my colon cancer now metastasized lung cancer was incurable - but, staggeringly, she told me on Tuesday that my 2nd scan in a row is clear and therefore no more chemo until another scan in 3 month and a review following. Makes one wonder why "incurable" has been the consistent diagnosis then suddenly it appears I am curable! I know all the alternative supportive protocols I've incorporated into the regime for myself have helped make the chemo as effective (if not as devastating) as possible, but no acknowledgment is made by the western medicine folks that anything has contributed to this fantastic outcome but the chemo. I really want to encourage everyone out there in this miserable cancer world to take charge of their own health and dig around as much as possible to find what works for each person. I feel very blessed and relieved, as my family and friend feel, to have had my death sentence lifted - just in time for the holidays. I have so much to be thankful for and next week will be a real celebration - Happy Thanksgiving to you all and I wish everyone the best outcome possible.

  • ElizaM's Avatar

    ElizaM posted an update

    I am thrilled that my scan shows all but one nodule in my lungs have been "resolved". Since it seems impossible to identify which of my self-created protocols have been the magical "cure" I have to give thanks for my combination of Mederi Foundation herbal lung and bronchial nebulizer protocol, plus the turkey tail mushroom combination Chinese herbal potions, plus the chemotherapy have succeeded to rid me of most of the potential nasties. I want to encourage anyone who has mets to the lungs to try this combination - it obviously is working for me. I realize we are all unique but I heard about the turkey tail mushroom right here on this priceless site, and thought I would report a similarly successful result. Trust yourself to know how to create the protocol for yourself that will work - add a positive attitude, sing and dance, and make the most of what there is out there that complements regular oncology medicine. Blessings to you all.

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Congrats to you for the good report! Thanks for sharing your "secret combination". I'm not a big advocate of alternative therapy, but HEY, whatever works, works! So what is the plan now? Scans in 6 months?

      almost 7 years ago
    • ElizaM's Avatar
      ElizaM

      Thanks for your feedback GregP - I understand so many prefer to go with the straight medical protocols. Having worked in hospice for many years I've seen so many different approaches and I don't believe that one answer fits all. I also think that belief and faith in the approach counts considerably towards the healing process. Since I have just one nodule left to deal with I am continuing with all the different protocols I have employed so far and trust I will rid myself of this last "uncureable" issue. I'm sure we will do another scan after another few treatments although I didn't get the timeline for that at my visit with oncologist. Will check that out next time. I thank you for creating this opportunity to exchange progress, ideas and all kinds of thoughts and prayers around the topic of cancer and dealing with it. What a blessing it is in my life.

      almost 7 years ago
  • ElizaM's Avatar

    ElizaM posted an update

    Heads up - those who have had your cecum removed - it took 18 months of constant diarrhea and not one professional, either oncologist, surgeon, nurses, you name them, could offer an explanation as to why other than to offer anti-diarrheal medications. Until I had my hernia repaired 2 months ago and upon my continuing to complain of this debilitating problem THAT particular surgeon offered the information that the cecum is the part of the colon that extracts the water as what we ingest passes through, so that what is eliminated is of a formed consistency. With that news, finally!!!!!, I took pysllium caps the following days and within 48 hours felt "normal" for the first time in 18 months. Why this information wasn't shared anywhere along the line I don't know, but the quality of my existence during chemotherapy would have been tremendously improved had I known this fact before I began treatment. 

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Wow! Glad to hear your doing alright. Kind of ticks you off though doesn't it to have something get fixed fairly easy.

      about 8 years ago
    • ElizaM's Avatar
      ElizaM

      Thanks GregP - I'm just so furious that I had to suffer and had absolutely no quality of life for such a long time, in fact contemplating quitting on any attempts to promote healing and to just give up - I don't know what to do with the information so others don't need to suffer as I did, or possibly in other areas, due to lack of almost common sense information. If I can get the word out to others to ask the most probing questions all the way along to get the accurate truth, I feel that's all I can do.

      about 8 years ago
  • ElizaM's Avatar

    ElizaM posted an update

    Just received the biopsy results from two polyps removed at my last colonoscopy, two weeks ago - Benign! yay - I'll take it. I must be doing something right and I'm thrilled. Now due to have hernia repair surgery on April 2nd and hope it holds. It is about the size of a melon and has my center of gravity off balance which has made exercising very uncomfortable, so can't wait to get back to hiking several times a day, which I know helps improve every system to combat this insidious disease. I appreciate so much having this great place to read other folks' questions and answers. A burden shared is a burden divided and lightened! Love it. Thanks to everyone.

    4 Comments
    • ElizaM's Avatar
      ElizaM

      Thanks so much GregP - I so appreciate this site and the positivity expressed here. I am just thrilled that I'm doing something right and want to keep this healthy attitude as my focus as opposed to battling the devil! LOL Maybe it will encourage others to be proactive and keep a good attitude that will help them too.

      over 8 years ago
    • GregP_WN's Avatar
      GregP_WN

      Yes Ma'am!! You can eitther go through life all hum drum and like the world is ending, and every thing is picking on you. Or you can take each situation and tackle it, put it behind you and look at the bright and positive side of it. Because EVERYTHIN does have a positive side! I've been through 3 dx's, and still fighting side effects, but I am still here, and that's just a little bit positive.

      over 8 years ago
    • ElizaM's Avatar
      ElizaM

      You bet Greg. Good for you. I look at these dx's as wake up calls to make significant changes in lifestyle - opportunities to change for the better. There has to be a silver lining but it takes courage to look for it and sometimes it's hidden discretely. I worked in hospice for many years and sometimes the gift was in the dynamics of the family and loved ones, not necessarily the patient him/herself. There's always something positive - of course it brings out the truth of so many that surround the patient, sometimes not so pretty, but it is a lesson worth looking at and taking as a "gift" although it may present itself in a sad way. It's opportunity for growth even if the side effects of treatment can dull the senses so it becomes unclear. I have side effects from chemo that inhibit my exercising the way I know I must to improve my immune system - as in major neuropathy in my feet which has me feeling like I'm walking on broken glass, even the sheets in my bed hurt! - but I shall have to overcome this hurdle after my hernia surgery gets my core of gravity back to where it should be. On and on it goes - I didn't ask for this (consciously) - but am trying to take the approach that it is here as a gift that I have to see the wisdom behind - I keep chanting to myself that God never gives us more than we can cope with even if we have to stretch to limits never dreamed of. :) Good luck to you - I'd say that the fact you are still here is VERY positive! More work to be done, but I have faith you can do it.

      over 8 years ago
  • ElizaM's Avatar

    ElizaM posted an update

    I have read some of the posts here and the term "markers" is used frequently. Could someone please explain what these markers are and how to keep track of them? Thanks.

  • ElizaM's Avatar

    ElizaM posted an update

    Really need to know if there is some way to monitor my condition without waiting for something to show on the pet scan, or relying on blood tests.
    Also if there is anyone out there who has ended up with neuropathy of feet and hands, if you have any suggestions as to how to relieve this painful condition, I would love to hear. them.
    Finally - if there is anywhere to help with the financial issues involved in co-payments for surgery, etc. I would love to heard of those too.
    Blessings to all who have to endure this devastating process.

    1 Comment