• fulto11's Avatar

    fulto11 posted an update

    I am sorry for just now getting back to you all. A lot more family issues than just this darn cancer scare. Smile. After all the research, family meetings and fears...we decided to take the radiation of the brain. Upon our visit with the doctor...he said he wouldn't do it!!! Why even bring it up?!!!! It was like he forgot what he had mentioned to us.
    Where are we at now? The one and only chemo therapy removed it from the lung. It will be forever in the hip/spine area. As of Aug. 10th. We are told that it has not moved and we just have to be at a, "wait and see where it goes". It has not entered the brain or liver. He is taking Zometta IV drip once a month to keep bones strong.
    They changed our Oncologist to a Lung Cancer Specialist. She agrees with the first doctor. So I guess this is like getting a second opinion.
    One thing I have learned...we are blessed in these months. When a diagnosis is first made (Sept. 13, 2011) one can not think, digest the news or quit crying. Being we have a second chance to regroup...we will be stronger and wiser.

    I am updating on my home page because I am sure there are others beginning this journey with small cell lung cancer (or whatever kind) and would like to know of our journey and time line. Right? Smile.
    Question: Does this sound like par for course? Is there something we are not doing right? Any opinions? I can not stand this wait and see game. Some days I agree and some days I feel like we are not being told the truth.

  • fulto11's Avatar

    fulto11 posted an update

    Just got back from a report on the last CT scan. Nothing has changed!! Good news. We talked with our doctor, at length, of getting second opinion and will be doing so...while we are in a wait and see limbo. Doctor gave us some good advice. I feel lighter today. Hate waiting for these test results. Will repeat this in two months. For now, we have to go pick the green beans out of the garden. Smile.

    1 Comment
  • fulto11's Avatar

    fulto11 posted an update

    I have been silent for awhile. From last Sept. (my husband being diagnosed and beginning treatment) I would pray for 15 minutes of not thinking about cancer, not going to bed with a nervous stomach. He went thru chemo and in the last 3 months he has became his old self. It grieved me that he would not put in his beloved garden or be able to go fishing. BUT, this all took place and he is back to "normal" with his garden and normal life.
    Have to wait on a CT scan every two months to see if it is traveling in/or out of the bone. Today we go for the scan. On June 1st. we get the reading. WE WENT FOR A WHOLE 3 MONTHS NOT THINKING ABOUT CANCER.
    Here goes the "cancer thoughts" and fears. We are both trying to "act" normal...but I can even see it in him. Pray for us. I have a knot in my throat as I type this. What a roller coaster ride!!
    You all have a wonderful day!

    3 Comments
    • DaveWaz's Avatar
      DaveWaz

      Prayers and good vibes sent your way - we are in your corner!

      about 10 years ago
    • fulto11's Avatar
      fulto11

      Thank you, Dave. Will get the reading on June 1st. It just feels good when you know someone does care. And thank you for that. Smile.

      about 10 years ago
    • DaveWaz's Avatar
      DaveWaz

      Yes, we do care, absolutely! Please keep us posted =)

      almost 10 years ago
  • fulto11's Avatar

    fulto11 posted an update

    Such solid info on brain radiation. Don't know which to thank first. Smile. We do all watch, each other, to learn and support each other. Thank you so very much.

  • fulto11's Avatar

    fulto11 posted an update

    Hello guys. I have been so busy but wanted you all to know that I keep up with your journey. You educate me more than any medical field could do.
    I felt my husband was doomed to no more hunting, fishing or gardening. Well, a friend picked him up, sat him in a stand and he got a deer. (His guy friends have all stepped to the plate). What usually takes us a couple of hours...took all day to process. Smile. But, we got it done. Sausage links are smoked and in the freezer. What treasured days! Hugs and best wishes to you all.

    3 Comments
    • susie81610's Avatar
      susie81610

      Wow that sounds great nothing like lifting you spirits also. What good buddies you must have so glad you had fun. Bunch of full bellies around your house congrats on the deer. :)

      over 10 years ago
    • DaveWaz's Avatar
      DaveWaz

      This is great news. Thanks for sharing. I am glad things are looking up.
      David

      over 10 years ago
    • fulto11's Avatar
      fulto11

      Isn't it sad that you are scared to get too comfortable or days of happiness? I reread my "happy" post and the beautiful comments I got back. Thank you so very much. We just try, each day, to keep the pain and fears down. We are going back to normal so smoothly due to getting a good result. God, who wants to be blind sided again? Have to treasure each and every good day and wait for someone to push you into the freezing water, again. lol. Lifting our spirits. I like that, Susie. That's what needs to be done. That is what we try to do. We go on Jan. 13th for PET scan. They say chemo is working. What's after that!! I used this space to respond and say thank you. I am going to go to the question box and ask a question on this subject of "end result".

      over 10 years ago
  • fulto11's Avatar

    fulto11 posted an update

    Dec. 2, 2011 had report on X-Ray. Half way point of treatment; doctor decided on simple x-ray to compare with first x-ray. Saving Scans for end of treatment. Explained that this course of 6 treatments would continue, no matter what, and want to save the body from too many scans. Took my two daughters with us. Scared of the results. Doctor told us that there was no sign of mass in lung. IT IS GONE! Will continue with two more rounds of Chemo and then do a Pet Scan. That will put us first part of January 2012 to finish chemo and do scan. What elation/celebration!!!! I understand this will never leave his system and the Scan will still be a little scarey...but a 1/2 lung full of mass on xray versus None. Yeah! Treatment is working. Thank you, Lord.

    3 Comments
    • susie81610's Avatar
      susie81610

      Very Happy for you what a way to end a year and begin a new one. Plus your Christmas will be so much more blessed this year. What wonderful news. Lets wish this type of out come for everyone.
      Susie

      over 10 years ago
    • DaveWaz's Avatar
      DaveWaz

      Great news. Thanks for sharing.

      over 10 years ago
    • fulto11's Avatar
      fulto11

      Thank you for your well wishes for us. Will always have a pit in the stomach. It is strange how you can (in your numbness) remember every little detail the doctor said. We were told 70% on first cancer treatment. 30% on next treatment. And, 20% (with sad face and arched eyebrows) on the next. How many years, months, days are we talking here? I have also heard that each time...it comes back with a vengence. True? No calendar for these appointments. But, we will shake off the fears and enjoy our days (YEARS). Thank you all so very much. My motto: One Day at a Time.

      over 10 years ago
  • fulto11's Avatar

    fulto11 posted an update

    I went into a panic attack to see my husbands arms/shoulders shrink to nothing. Lost 45 pounds in matter of weeks. Asked you all what to do. Stored all the wonderful information that I received and talked to the doctor. Put him on higher protein/calories and Ensure. Celebration for us!! He is maintaining his weight, looking stronger, on his feet and I see a little pudge back in his belly. Smile. He just drove around the corner to have coffee this morning. Thank you. Thank you. My prayers and best wishes for all of you. Keep praying for us.

    4 Comments
    • fulto11's Avatar
      fulto11

      What humor!! Right after I posted this celebration moment...he called me and truck wouldn't start. It is storming, truck broke down in friends yard and we laughed. (probably weak battery from sitting so long). Oh well, life goes on. LoL. Thank you so very much for your acknowledgement.

      over 10 years ago
    • susie81610's Avatar
      susie81610

      I'm so happy to hear things are going well with him. Also I'm sure it is a great feeling for hubby to be able to be on his own doing his own thing. Holding his weight is great all in all sounding good for you guys I'm so happy for you.
      Sorry your truck wont start but glad you could just laugh it off thats what you have to do sometimes. Good luck and enjoy you day! xoxo

      over 10 years ago
    • DaveWaz's Avatar
      DaveWaz

      I love hearing things like this. I am glad he is doing better. Thanks for sharing.

      over 10 years ago
  • fulto11's Avatar

    fulto11 posted an update

    My beautiful daughter has had her best friend (since childhood) in her home for two years fighting breast cancer. She had insurance under Cobra Plan. MD Anderson picked up balances. The Insurance expired Oct. 1st. She is on SS Disability for one year and 45 yrs. old. Have to be disabled for 2 yrs. for Medicade to pick up. Medicare will not cover due to being over age of 44. Medicare will not pick up because she is receiving care under indigent care thru MD Anderson. We are ready for Hospice or Nursing Home. My daughter can not take care of this level of care due to IV Bags and totally bed ridden. What does a person do?

  • fulto11's Avatar

    fulto11 posted an update

    Got first round of chemo in hospital and yesterday went to second treatment. No one told us that we had to have lab work first. Got lab work done and will go back Friday. Wind up being a good trip due to being able to sit (for the first time) and visit with the doctor (outside of the hospital and our hysteria/shock being put aside.)

  • fulto11's Avatar

    fulto11 posted an update

    Tomorrow is the second treatment for chemo. (21st). Gosh, I feel like there should be so many questions I need to ask, but can not think of one; except that while in the hospital they said he would have chemo and radiation. When the Cat Skan came back showing nothing in the brain...nothing was explained (and I didn't think to ask) but there was no mention of radiation??? Just to come back in 21 days for chemo and go home for another 21 days with two pills taken in between. Total of 6 trips for this every 21 day treatment. What should I be looking for?

  • fulto11's Avatar

    fulto11 posted an update

    I am so sorry. Thank you from the bottom of my heart for this report. Don't think I won't ask you a question. Smile. I hear everything you are saying but can not comprehend. It's like one stores the information obtained and then it comes forward as needed. I am sure it helps you too; to be able to talk about it??? About the brain MRI...that is valuable info. I do worry about loss of appetite. Thank you for that, also. You are so correct. I am use to being able to talk about an illness or surgery and get a time frame from others...I am fast learning that this changes by the meds and tests. There is no rhyme or reason. There is noone that can tell you the outcome. Wow! If you have a random thought...please feel free to throw it at me. If I step out of line just correct me gently. Smile. Take care.