• Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Weekends?

    4 answers
    • JaneA's Avatar
      JaneA

      You should call to make sure. But when I was having radiation combined with chemo pills (Xeloda), I DID NOT take the chemo pills on the weekends. 5 days on with the radiation. Weekends free of radiation and chemo pills to allow our body to rest.

      5 days ago
    • MelMom's Avatar
      MelMom

      My treatment is monday - friday.

      5 days ago
    • Gizz's Avatar
      Gizz

      Thanks for all your responses. I agree with you that I stop on the days of no radiation. I will still call and make sure this is correct.

      5 days ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Girlie parts from Radiation

    5 answers
    • Skyemberr's Avatar
      Skyemberr

      This is actually great info and helps me too. Thank you ladies. Thank you @Gizz for asking this question.
      Do they have help for women who have had vaginal reconstruction that makes the canal very short? I have asked my OB/gyn, but he didn't have an answer, and with everything else going on with my body nobody wants to do anything aggressive or comprehensive on any of my body parts. There is always the future though!

      11 days ago
    • carm's Avatar
      carm

      @Skyemberr,
      That is the beauty of cool water cones. They come in a three pack and you start with the smaller shorter one, then you work your way into the second and finally to the larger one. The link is as follows:
      https://www.coolwatercones.com/

      9 days ago
    • Gizz's Avatar
      Gizz

      Thank-you for all your sound advice.

      6 days ago
  • Gizz's Avatar

    Gizz asked a questionLung Cancer

    Surgery

    8 answers
    • Shoeless' Avatar
      Shoeless

      I had a lobectomy ~ removal of the upper lobe of my left lung ~ due to stage 2A Adenocarcinoma18 years ago. It worked out fine. I'm still here.

      2 months ago
    • Kerrieliz's Avatar
      Kerrieliz

      OMG shoeless that post has really given me hope! On my first 6 month checkup they found something on the right lung now but PET says no uptake! How do you deal with the anxiety through the six months checkups. I will say I did not do well and am now trying to deal with it until the next checkup in December. Anxiety has taken over my life this summer and it is my favorite time of year.

      2 months ago
    • Shoeless' Avatar
      Shoeless

      How? Prayer & a positive attitude plus rather than sitting around dwelling on the possibility that the checkup could maybe show something I won't like, I got off my butt & lived ~ spent time doing things with my family & working on my hobby. Kept so busy I didn't have time to worry about it. It's surprising how well that works. I decided that I was not going to allow worry to interfere with living.

      2 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Smoking

    10 answers
    • Gizz's Avatar
      Gizz

      Thank-you all for your response. You have had the courage to quit and I hope to follow. I can't afford to buy over the counter or a prescription as I have a high co-pay for my Chemo pills. But having a bronchoscopy, my throat was really sore. So I am trying my hardest to quit. I have been sucking on hard candies and trying not to smoke more then 5 cigarettes a day. I think when these packs are gone ,which I have only two packs left. I am not going to buy anymore and just deal with it. Besides I will be starting my treatments and feel that it will take away from wanting a cigarette as I'll have other more important things to deal with.

      2 months ago
    • andreacha's Avatar
      andreacha

      Correction -- My first surgery for RCC was in 2006, not 16.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I used to think i loved to smoke too. That was my addiction talking. You cannot imagine the freedom you feel when you are no longer answering to the nicotine god.

      I quit by finding something that i liked better than smoking. I LOVED playing agility with my dogs. I told myself that i could smoke or I could play agility, but that i could do only one (both are expensive habits). Every time i wanted a cigarette, i would ask if i wanted it more than i wanted to go play agility.

      I was a heavy smoker for many years. I was so addicted that i kept cartonS in my freezer so that i would never run out. I went to Israel in January. I was so glad that i could get on that plane for a long International flight knowing that i wasn't going to be going crazy because i wanted/needed a cigarette so badly.

      Good luck!!! My only regret is that i didn't quit long, long ago.

      2 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Just dropping in

    5 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Praying for good results, Gizz.

      3 months ago
    • Gizz's Avatar
      Gizz

      Thank-you all for giving me some good thoughts. But the procedure didn't happen, the machine broke down, and now I am waiting for a call to reschedule.

      3 months ago
    • JaneA's Avatar
      JaneA

      Gizz, I am so sorry that you have suffer yet another delay. I had an 11 mm lung nodule - it shrank a little bit with chemo so my treatment team "assumed" that it was cancerous (based on its appearance on my scans) and zapped it with SBRT radiation. That was 4 years ago.

      Is your nodule extremely large or near your airway so that surgery is the only option? SBRT radiation is frequently used for solitary lung nodules.

      3 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Does Cancer Progress?

    4 answers
    • carm's Avatar
      carm

      Generally it depends on the grade, but as an oncology nurse I can tell you that it does not progress that fast. A lot of cancers take 10 years before they are found. Better to wait until all the data is in. Best of luck to you.

      4 months ago
    • po18guy's Avatar
      po18guy

      You can always ask your oncologist to contact the pulmonologist for an expedited appointment. Every doctor has slots set aside for urgent referrals. Also, you can ask the scheduler at the pulmonogist's office to be placed on their cancellation list.

      Lymphoma is different, but I went from stage I to stage IV while waiting for a correct diagnosis. All that was 11 years ago now.

      4 months ago
    • Gizz's Avatar
      Gizz

      All your answers has me a little more at ease. I just want the testing to be over and to start kicking butt.

      4 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Lung Biopsy

    • KathyMarie's Avatar
      KathyMarie

      I have had 2 lung biopsies at 2 different facilities. At one I was completely awake and had a local anesthetic. It wasn’t painful but I had to be completely still and try to keep my breathing steady. I went in and out of a ct scan machine while my the diagnostic radiologist guided the needle in little by little. It took about 30 minutes. Then I had to stay at the hospital for 2 hours and had 2 chest X-rays to check for a collapsed lung. I was fine .
      The second one I was put into twilight sleep and woke up when it was all over. I only had to wait 1 hour then and had 1 X-ray.
      Hope this helps you know what to expect. They weren’t pleasant but not painful either. Good luck!

      4 months ago
    • Gizz's Avatar
      Gizz

      Thank-you KathyMarie. This was helpful, I am hoping they put me into twilight sleep.Either way this has to be done. I am hoping this will tell me what type of cancer that has popped up in my left lung and if it is malignant or benign.

      4 months ago
    • KathyMarie's Avatar
      KathyMarie

      Good luck to you! Hope you hear good news.

      4 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Silly Question?

    8 answers
    • Gizz's Avatar
      Gizz

      All your answers are sound advice. I guess I could start with the pharmacy with the cancer specialist and see how they can help me. I 'm sure that if they are to expensive I could look at local pharmacy's.

      4 months ago
    • cllinda's Avatar
      cllinda

      I would call both places and ask. A lot of places that are in hospitals or medical centers will be competitive for your business. I would have liked this available while I was going through treatments. It would make things easier on both you and your caregivers.
      My hospital started a program so that you can have your prescriptions filled before you leave the hospital. I think it's a great idea.
      I had my lumpectomy surgery and was released from the hospital at 7:30 pm. So my husband had to drop me off and get to the pharmacy before it closed that night. That would have made life easier if the prescription was filled right at the hospital.

      4 months ago
    • Throatless' Avatar
      Throatless

      My cancer center is way higher priced than my local privately owned pharmacy.

      4 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Sores?

    • carm's Avatar
      carm

      Hello, I am an oncology nurse. Just keep them clean and covered and you will do fine. Use bacitracin on the wounds as well. Best of luck to you.

      4 months ago
    • Gizz's Avatar
      Gizz

      Thank-you for the advice. On my list to get.

      4 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Radiation and Chemo Pill?

    5 answers
    • Skyemberr's Avatar
      Skyemberr

      I had the pill with the chemo and had radiation at the same time. It did a good job shrinking my tumor and I didn't get very sick from it, just nausea and a tender behind. My girly parts did get tight from it too, but cancer had invaded there, so most of that was taken out in my case.

      Everyone is different though. My mom just finished capecetibine/Xeloda, and had a very hard time with it. Part of the reason for it being tough on her though is that her doctor refused to prescribe anything for severe abdominal cramping and diarrhea she was having.

      If you start having any side effects call the chemo nurses or your oncologist and tell them you need medication or some kind of care for the symptom. Most oncologists will either prescribe something or send you into a palliative care program off your hospital has one.

      5 months ago
    • Gizz's Avatar
      Gizz

      Thanks to all of you who took the time to answer my question. It was good to hear about your take on this procedure. It has easy my mind. Again Thank-you. You always have good advice.

      4 months ago
    • KancerKiller's Avatar
      KancerKiller

      I have not, but I have a cousin with breast cancer who is taking a chemo pill with radiation every day. It's a common treatment plan.

      4 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Alone or with them

    7 answers
    • alivenwell's Avatar
      alivenwell

      No scribe existed for my oncologist or my initial surgeon, but surgery was observed by several medical students. Approximately 5 appointments with my surgeon had no scribe, but subsequent appointments had medical scribes. I went alone and when we were alone, I thanked him for saving my life. If there is a scribe, you could compare notes with what your friends heard.

      5 months ago
    • SandiA's Avatar
      SandiA

      My doctor talks to me first then exams me. So I always have my sister and or husband go in with me. He has a curtain he pulls when it is time for the exam. I have a couple friends that have taken me and I was not as comfortable bringing them in so I went in alone but I always felt fine having my sister or husband in the room.

      5 months ago
    • Gizz's Avatar
      Gizz

      Hello, I liked all your answer and I chose to go in first. That was a mistake. I sat there in front of my Surgeon with a dumb look on my face as he explain what he planned to do and showed me were this cancer is and started me on my plan with radiation oncologist, medical oncologist ect… Asked me if I had any questions, which I left out front and husband and sister in-law too. No, couldn't think. That's O.K. next appointment they are coming in with me. If he needs to check me and I have to get undressed they can just step out the door for a minute. I'll fix him, hahahahaha1

      5 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    What's up?

    6 answers
    • meyati's Avatar
      meyati

      Around here, the doctor would not have talked to your family, because it is illegal-HIPAA-unless you gave him specific permission to do so. I would tell the doctor this left you scared and mistrustful of him. I have medical proxies-son and adult grandson--and the doctors don't tell them anything.

      I would talk to the doctor about all of the above--Just why did he talk to the family?? Just how bad off were you?? and you don't want this to happen again.

      5 months ago
    • meyati's Avatar
      meyati

      Oh, 2017- i had a colonoscopy-endoscopy--i had anesthesia-and you know that they wouldn't have had put me under if I had a fever, odd blood pressure. Anyway I woke up with stroke symptoms.- no voice-getting weaker quickly-etc. My family was told that I needed to go to the ER to find out what was wrong with me. After the scans-IVs-exams- etc. The doctors told my family in front of me that I didn't have a stroke, but I could have one later.. They gave us a print out of how to care for me-and what to look out for- which included-not getting better. They also were given a print out from the GI clinic about food- stomach gas, etc. This is the legal way to do this- and you should point this out to your doctor---

      Several weeks before my procedure, I went to the pharmacy, and a woman coughed on me---She said-- Oh no, people will get sick-- her man hugged and and said- there aren't any babies here----

      It took 7 months for all of the specialists, ER and Urgent Care doctors, and my family doctor to realize that the city had a senior Whooping Cough epidemic, and I was part of it. From feb 9 to late July, I couldn't speak. Obviously 70 years and cancer caused my childhood shots to wear out, so My family doctor gave me the MMR, pertussin, and whatever else a modern child should get.

      Anyway---don't let the doctor off of the hook because you were under anesthesia-- Anyway-- good luck--set up your legal independence now-

      5 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Gizz, with all of the above in mind, I DOUBT that your doctor told your family anything you don't know----however, the easy way to start finding out is by asking your family what he said to them, if you haven't already. Even if it was said in front of you, with anesthetic or pain killers in your system, you may not remember details.

      5 months ago
  • Gizz's Avatar

    Gizz asked a questionColorectal (Colon) Cancer

    Depression

    • po18guy's Avatar
      po18guy

      Sorry to hear this. What, do you think, is the cause? Is it some factor in your immediate life that can be addressed, involuntary feelings, or dealing with diagnosis/treatment? Oftentimes, when we suffer from simple depression, we have fallen into the trap of withdrawing into ourselves. If possible, it is good to go outside of ourselves. One way is to engage in activities that are especially meaningful, have friends visit or visit them; help those who are worse off than yourself, or other things that provide a sense of personal value.

      If, however, nothing seems to work, more serious intervention may be necessary. If this is not a persistent problem, there are short term medications that can improve things dramatically. If that is the case, a call to doctor could not hurt. Contact with your treatment center's social worker is another option.

      I hope that you quickly pull through this and emerge beyond it as your good old self.

      5 months ago
    • Gizz's Avatar
      Gizz

      Thank-you po18guy. you kind of hit it on the nail of the cause. Usually these feelings have been happening just these two days and by the afternoon I am feeling better. I do go out side and sit in the yard in the sunshine and listen to the birds and just breath. This helps.

      5 months ago
    • cllinda's Avatar
      cllinda (Best Answer!)

      It is quite common when going through a major illness or treatment to feel depressed. We are taken out of society so we can do what is needed to survive. Medications can escalate the feelings. Friends can step away because they can't handle what you are going through. Plus many other reasons.
      If this lasts longer than a week or so, call the doctor.
      During treatments, I saw a counselor who helped me talk out what I was feeling. It helps.
      Also, exercise can help. Walks outside, yoga, and other things can help with depression.
      Eat healthy if you can, drink lots of water, rest and take care of yourself. Hugs.

      5 months ago