• hoosierboy's Avatar

    hoosierboy asked a questionColorectal (Colon) Cancer

    I'm coming up on a year out from treatments being over, why does it feel like "it's not over"?

    5 answers
    • JaneA's Avatar

      I am a 4 1/2 year Stage IV rectal cancer survivor. I still see my oncologist every 3 months for CEA and bloodwork. I still have scans every six months. I have been NED ever since my treatment ended, and I have good quality of life. But my oncologist wants to help ensure that I stay this way. So vigilance is critical.

      Cancer is, unfortunately, a sneaky snake. So it is prudent to follow the recommendations of our oncologists and the NCCN (National Comprehensive Cancer Network).

      It takes a while to learn to live a "full" life as a cancer survivor. I attempt to help others who face cancer. I am proactive about doing what I can do to help prevent a recurrence - I take high dose of Vitamin D3, a daily aspirin, and exercise. I limit my red meat and processed meat consumption.

      Best wishes to find peace of mind as a cancer survivor.

      6 days ago
    • BoiseB's Avatar

      Nine years ago I was diagnosed stage IV esophageal cancer. Stage IV cancer is not a death sentence but it is a life sentence. That means scans every year. Six years ago I got uterine cancer it was one of the more agressive kind. I thought after five years I could say Bye Bye to that cancer . Not so fast. I now have to have a MRI because something showed up on the scans that might be uterine cancer. I also got skin cancer last summer and at the six month check up, the Dr. found something suspicious I am awaiting the biopsy.
      I refer to my life as being in the 11th inning (waiting on results may be the 12th) Life for me is different but I am thankful for that life. I am still making plans for the future.
      Mark the date April 26, 2042. Everyone is invited to my 100th birthday

      6 days ago
    • medale's Avatar

      I was diagnosed with stage IIIC colon cancer with a partial colectomy followed by six months of FOLFOX ending October 2017. The scars and the numbness in my fingers/toes are a somewhat daily reminder. But I try to eat well, exercise, enjoy nature and live each day for the present it is.

      Today I walked in the same park where I restarted moving after surgery and during chemo. It was the same time of year and that really brought on some flashbacks. I found that meditation helps to feel better and is a powerful tool against anxiety.

      As a very wise woman told me: "None of us are making it out of here alive." Humor and not taking myself too seriously is also good but often hard to do. The other week I overheard one of the older gentlemen at the gym replying to a "good to see you" with "it's better to be seen than viewed." That still makes me chuckle.

      "Scanxiety" is very real (now every 6 months) and anything out of the ordinary does raise the heart rate. Also a little bit of survivor's guilt? But as time progresses the memories seem to recede. Hope you can find your peace as you move on in health!

      4 days ago
  • hoosierboy's Avatar

    hoosierboy asked a questionColorectal (Colon) Cancer

    Who is using an approved Doctor administered form of Immunotherapy as part of their treatment?

    12 answers
    • NanaL's Avatar

      Thanks for the info. I will definitely check out the website kj7lo! Best Wishes to everyone!

      over 3 years ago
    • LiveWithCancer's Avatar

      I have been getting immunotherapy since July 2013. My scans have consistently shown no progression since the day I started the trial. It has given me.my life back. I.can't say enough positive about it. I feel like the luckiest person around.

      If you respond to Opdivo, it is awesome. I do have to say I am the only person still in my trial in the Dallas area. Everyone else has had to drop out.

      over 3 years ago
    • fancynancy's Avatar

      I have metastatic kidney cancer. I've been on Opdivo for a little over a year now. My first scan wasn't good, but they have been since. I am having a scan tomorrow. I've been pretty much free of side effects with Opdivo until the past 6 wks or so. I'm dealing with extreme itching, mostly at night. My oncologist has prescribed an allergy med, somewhat like benedryl.....but it's not doing the job. Anyone else have itching with Opdivo?

      27 days ago
  • hoosierboy's Avatar

    hoosierboy asked a questionColorectal (Colon) Cancer

    Since your diagnosis do you get catalogs and flyers in the mail selling things that cancer patients use?

    10 answers
    • Skyemberr's Avatar

      No, I get things in the mail asking me for money for cancer causes, cause we are so rich after paying medical bills.

      3 months ago
    • BuckeyeShelby's Avatar

      Mostly only from companies I've purchased from. Although after I had a fender bender, the chiropractors and ambulance chasing attorneys crawled out of the woodwork!

      3 months ago
    • BoiseB's Avatar

      It is most frustrating to me that they pop-up on when I make out my grocery order. I have to clear my computer of cookies so often it is maddening. I subscribe to several cooking newsletters and I think it might be where they sneak in.

      3 months ago