• Jade's Avatar

    Jade posted an update

    Thank you again, Carol,
    I did get a call back form the Dr's office and was told the doctor was aware of the scans and thoracentesis and would refer me to a thoracic specialist for a drain if the problem recurs or persists... I am not sure this is a solution since the fluid is also collecting in the abdomen. I am trying to find a support group as I really feel over-extended and stressed beyond my capacity. This hateful disease may be more than I can handle on many levels and i really hate to bother people with my pain or complaints.

  • Jade's Avatar

    Jade posted an update

    Thank you Carol,
    I took the disk and paperwork in from the thoracentesis and gave it to the chemo nurse on Thursday and when I called today, I was told that there was nothing in my records there about it and they would have the chemo nurse call me back. I do not have a copy of the ct and lab reports but I did copy the disk to my computer before I gave it to them...

  • Jade's Avatar

    Jade posted an update

    Not sure how to thank people who have responded but I do appreciate the input. I feel that I am not being taken seriously or that my cancer is too advanced to bother with. The surgeon said further surgery would be too difficult (for him, I guess) and that they would never get all the cancer... this leaves me completely dependent on chemo and with my intolerance of all opiates, there is nothing stronger than glorified aspirin for the pain, which is 24/7. I don't want to give up but cannot see much more of this struggle with constant and intolerable abdominal pain. The ascites around the lungs is keeping me from breathing well and thorecentesis seems to take the pressure off my heart and left lung but I do not know what it means when I read that there is infiltration into my right lung...perhaps I just do not want to accept what I think it means. I sent all the labs and er visit tests and procedures to the surgeon but I have not heard from him... should I call his office again? I feel so adrift with no one giving me definitive answers....