• JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    Have you had your flu shot yet?

    25 answers
    • alivenwell's Avatar
      alivenwell

      Yes, I had my flu shot. I have been ordering everything online. Our grocery store is delivering groceries in paper bags with only the handle touched. The outside of the bags is presumed to be dirty. I also drove to the store, masked, showed my id, and had a store employee load groceries into the trunk of my car.

      about 1 month ago
    • TanjaTuna's Avatar
      TanjaTuna

      I want to get it but my Dr. doesn't want me to come into their office until Covid is gone. So I'm not sure how I will have access. I'm a NHL patient with a long history of rituxan infusions. Apparently I'm ultra high risk for severe Covid. My husband will get it and I will continue to quarantine here are home. I guess if I'm not in a public setting I won't get the flu.

      about 1 month ago
    • meyati's Avatar
      meyati

      Can you call up a pharmacy and make an appointment.-drive-thru flu shots-visiting nurse?

      Call the state-my state, NM, has drive up flu shot facilities. I've caught tetanus, hospitalized . for pasteurella multocida, and I caught Whooping Cough (2017) that kept me in bed for almost a year-that was in a long pharmacy line.

      Call your insurance rep-Call hospital administration-Ask pharmacies if they can do a drive through or know of one.

      A visiting nurse.

      I've said this to specialists--You know your specialty-no complaint, but you don't know administration.

      With Whooping cough, I had to research and make my own proposals for care and support. I had a so-called Mystery Disease last year- I finally got diagnosed and the proper meds the second week this March-2020. I got help from specialists, ER and Urgent Care staff and my family doctor.

      Somethings worked, and some didn't. The break through in getting care was when an Urgent Care NPA took pictures of me swollen and with rashes. So medical staff could see this was a constant condition, and they kept taking pictures for my medical record.

      We have to be our own advocates. Start calling and ask- then ask if they'd make an appointment.

      Your doctor is probably swamped----exhausted worried- so talk to him -his office about getting a flu shot at a drive through--an appointment early in the morning. One reason might be that he doesn't want you to have a shot.

      Wear a mask in the house when people are around-you know the drill better than I do. Good luck and God bless.

      about 1 month ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    Did you know that drinking coffee improves survival in colorectal cancer?

    16 answers
    • legaljen1969's Avatar
      legaljen1969

      I had never heard that particular study, but it's definitely interesting.

      2 months ago
    • po18guy's Avatar
      po18guy

      @LiveWithCancer It is said that two of the most alluring aromas are that of fresh baked bread, and of roasted coffee.

      p.s. was ready to post when I saw the typo "fresh baked brad" - what? A crematorium??? :-D

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @po18guy - glad you caught that typo :) :) Might have been confusing :)

      2 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    How many of you know the symptoms of ovarian cancer?

    • andreacha's Avatar
      andreacha

      Thank you, JaneA. Very informative article.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      Sorry for the delay in posting a blurb about this Ms. Jane, I got behind with all of my problems getting in the hospital today, I bot behind. Thanks for covering that for me!

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thanks for posting this article. Too many women think a negative Pap test means no cancer- period. Although many inroads have been made in recent years, with genetic testing, PARP inhibitors and immunotherapy, ovarian cancer remains the fifth leading cancer caused death in women.. The key is education and discovering this cancer at its earliest stages.

      2 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    Do you have an emergency evacuation plan?

    5 answers
    • GregP_WN's Avatar
      GregP_WN

      About all I can say about that is that I have thought about it. As a matter of fact, we have a blog post on the WhatNext site about this somewhere.

      It's a great plan to have especially if you are in an area that is subject to natural disasters.

      We live out in the country, 10' deep in the ground, right next to a natural creek that you can drink out of right now. We are sort of in the place where people would be trying to come to if there were serious things going on somewhere. I guess I should mark our borders better and be sure we have a few things

      On a related note, my sister lives out in the far western part of Nebraska. There are missile silos all over out there. Occasionally they will decommission one and auction it off. One family bought one years ago and started remodeling it to live in. It's 12,000 sq. feet underground, enough water storage for 7 months, if I remember right. It has it's own well, solar panels, solar wind turbine, back up generator. Much more interesting stuff that I can't remember.

      They give tours of the facility when someone calls and asks. I think they paid 150,000 or so for the property then I believe at the time they had put more than 200K into it when we were there.

      This place was/is the perfect example of being prepared for something terrible.

      3 months ago
    • andreacha's Avatar
      andreacha

      I live alone in a double wide manufactured home about an hour North of Atlanta. I carry all my PRN meds in my purse which looks more like a duffle bag with everything in it. I have a separate clasped container which has my back up meds (new refills, 2nd epi-pen, etc.) and that has room for my daily meds which I keep in a gallon Ziploc. I don't have a vehicle. My biggest concern would be my 4 cats. Only 1 is an indoor-outdoor, the others couldn't survive outdoors. I have a 10 lb. weight limit because of my back so I couldn't carry them. I have enough kennels but, again, can't carry any of them. I have a storm closet in the middle of my house which is outfitted with flashlights, extra batteries, a dozen bottles of water for me along with a gallon to put in the cat's bowl first aid supplies, cat food and treats, and some canned food for me. I have extra large and small o2 tanks there as well. It has a chair, thick waterproof jacket, pillows for the top of my head and a blanket. I have a small litter box stashed in there along with pea pads. My guess would be 5x15. I would have to wear the heavy waterproof jacket because the indoor/outdoor cat and my youngest have their nails. And I very easily get skin tears. I always keep a full large tank with regulator ready to wheel into the closet if things get dicey. I regularly charge my phone. I think that's all I can do unless any of you can think of something else. Don't hesitate to chime in with any suggestions.

      3 months ago
    • KB2013's Avatar
      KB2013

      I used to live in a state with guaranteed tornadoes every year; they terrified me because there isn’t really any truly safe place to run to and hide. In the state before that one, the threat was hurricanes but, you can flee one of those days before they hit. I live in the frigid region of PA now and in winter my goal is to stock up on food, beverages and gas for the the emergency generator. It’s remote here so you need a 4-wd vehicle or else you’re trapped here for weeks. I don’t have a 4-wd so, I prep for extended isolation. I really hate the cold of winter but, I managed one year, to survive three weeks without electric by keeping a bonfire going, cooking in cast iron and consuming mre while melting snow for animals drinking water. We should all prepare for the unexpected and now more than ever.

      3 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    How many of you are prostate cancer survivors?

    • GregP_WN's Avatar
      GregP_WN

      Well, shoot, I was going to whip off a list for you and I went blank. I'll claim chemo brain. We have several that are doing great. Whitey is one, I'll look at our list and tag them.

      3 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    How is everyone doing with the pandemic?

    30 answers
    • BoiseB's Avatar
      BoiseB

      I was raised in the woods, so insects are more natural to me than humans. Social distancing is about two feet shy of my personal bubble. When I go to places like fairs I am very uncomfortable. As for shopping malls, I used to only go the anchor stores I could shop then leave without going into the mall proper
      Carool you would definitely not like the Murder Hornet was about 4 times the size of a yellow jacket. .

      3 months ago
    • Carool's Avatar
      Carool

      Bengal, I so agree. And I agree with you, andreacha, re your governor (I was so disappointed when Stacey Abrams didn’t win, though she’d have had to be superhuman to win such a tainted race).

      BoiseB, I certainly wouldn’t like those jumbo hornets! Until we got rid of the huge cockroaches (waterbugs, we call them here) we had in the bathroom, I was scared to go to the bathroom at night, and those insects are harmless. A few squirts of Combat in targeted areas, no more giant roaches!

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Hi all from Northern California. Hubby and I are doing ok although like everyone else getting tired of being housebound. We did escape up into the mountains for a week in the RV. It was like a different world at the campground we went to. Sites were spaced far apart and even though the campground was full social distancing was no problem. Children playing with scooters and skates and both children and adults riding bikes. No one was wearing masks and you were briefly able to forget about the pandemic. Both Paul and I wore masks when in the small local store but we were the exception, not even the store clerks had masks on. Currently , the county I live in is on the cusp of being placed on the governor’s watch list which would mean closing back up hair and nail salons, gyms , and other businesses. For the most part inside dining has been closed after opening briefly a few weeks ago although there are several restaurants thumbing their noses at closing and the employees are not wearing masks. Whoever thought that a trip to the grocery store would be the highlight of my week. Of course I take all precautions. My daughter in Fresno still orders her groceries delivered. I tried that but got tired of the substitutions. Additionally this week , I am wearing my mask when out for walks around the neighborhood. Guess everyone has heard about the California wildfires. Even though the fires are to the South and to the West of where we live the smoke funnels up through the valley making unhealthy levels of air pollution and an orange sun.
      Hope everyone is staying safe

      3 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    Have any of you tried Zoom for exercise?

    15 answers
    • legaljen1969's Avatar
      legaljen1969

      @Lynne-I-Am, do you still go to your gym? Do you think someone at your gym would be gracious enough to give you the number or help you get re-enrolled. Maybe its somewhere in your membership information. Or maybe AARP could help you get the number. My guess it that maybe because you were signed up before, it won't let you sign up again because perhaps the program thinks you are a scammer (not saying you ARE). Surely there is someone that can help you access this. Maybe even someone with your doctors office that monitors insurance and eligibility.

      4 months ago
    • Jayne's Avatar
      Jayne

      I feel very fortunate that our community pool is open, by appointment, and only 4 people at a time. I don't swim well but really enjoy the weightlessness of the pool and it's kindness on my body and joints. If not for the pool, I probably would turn to zoom since walking in 95 degree heat and humidity in NC is just too much!

      4 months ago
    • SandiA's Avatar
      SandiA

      I have been doing some pt for my shoulder, after my neck surgery this past April. So I decided I kind of liked doing the exercises so I decided to try some chair exercises on line. I googled and basically pulled stuff up on my phone. I told my sister not to laugh but I got a pretty good workout.

      4 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    What are planning for 4th of July?

    9 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @po18guy, I sure am sorry to hear about your friend. That's tough news.

      @JaneA, thanks for the recipe on the flatiron steak! I need to see if I can find one and try it one of these days! It sounds really good!

      @GregP_WN, I'm sure sorry to hear how badly your throat is hurting. I hope it is temporary and a sign that you've got some real healing going on in there!

      5 months ago
    • GregP_WN's Avatar
      GregP_WN

      @Bengal, yes, I have been eating jello a lot lately, since this started. Years ago after one surgery I woke up in the recovery room and a nurse wanted to know how I was and did I want anything to eat or drink. The guy in the next bed had some milk and a jello cup. I don't know why, but I had to have it. I've been eating lots of jello and drinking lots of milk ever since then.

      Live, I am convinced it's related to the treatment working. This morning I have nowhere near the pain I've had in the last couple of weeks. Maybe, just maybe, this stuff is working already like I've seen reports of from other people.

      5 months ago
    • Bengal's Avatar
      Bengal

      Kudos to the St Regis Falls, NY Volunteer Fire Department! My sister and I went about noon to check out the chicken bar-b-que. I expect to find hoards of unmasked locals crowding around the serving area. We were pleasantly surprised to find a drive - up only, curbside service, no one gets out of their car, EVERYONE in masks , smoothly run operation. All the service people were masked, polite and when I asked how much we owed was informed that everything was free, their thanks to the community. Awesome job folks. That's how it's done.

      5 months ago
  • JaneA's Avatar

    JaneA asked a questionColorectal (Colon) Cancer

    Have you ever gone to urgent care?

    11 answers
    • meyati's Avatar
      meyati

      Back to Urgent care. $10 for my co-pay. They say Presbyterian's Urgent Care is the only consistent saving grace for patients and doctors.

      I woke up one morning and my eye itched. I rubbed it and had incrediable pain. My grandson pulled my lid down and found a loose eye lash. I had to hold my eyelid shut to keep it from hurting-BAD HURT BAD. Levi took me to Urgent Care, my cornea was cut by the eyelash. $5 plus a prescription. I usually go twice a year-sinus. They have taken care of medical side effects-didn't diagnose it-treated the symptoms and documented it, A bad sty popped up, Whooping Cough-month after month-2017, ear infections, bad steroid rage side effect of Singular,Insane itching from Singular, sprained my back from moving a full freezer-I couldn't urinate and I thought I had a urinary infection. You know-things like that.

      I've been there when they were taking care of a broken arm. The person went in, and they set it, put on a cast- and tho the person had insurance, this was cheaper than co-pays. I like most of the ER and Urgent Care doctors better than the regular practice doctors. Urgent Care were the doctors that started taking pics of my face and recommended that other clinic/doctors do the same. It improved my care, because they could see it was ugly and miserable week after week. That I wasn't snubbed by a neighbor aaand I wasn't in a snit from that.

      6 months ago
    • Carool's Avatar
      Carool

      My partner and I went in November when he had an ear infection. Right near our apartment. Got seen quickly and he got ear drops. Very nice doctor. And I went to my hospital’s Urgent Care the night of my first chemo, because my temperature had gone up. In the middle of the night. Got seen right away and they reassured me that I was fine.

      6 months ago
    • cllinda's Avatar
      cllinda

      I have used urgent care with my kids. They would come home from school and it was too late to try to get an appointment with their doctor. So off to urgent care we went. For things like sore throats, minor accidents, etc. They usually were not crowded and I was pleased with the care my kid received.

      6 months ago