• Jayne's Avatar

    Jayne asked a questionColorectal (Colon) Cancer

    Room for improvement feedback

    9 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I like how a lot of providers now offer a patient portal, where a patient can go online and pull up medical notes & test results. My oncologist didn't have this while I was in active treatment, but they do now. So I can go in and check my things like results from my bloodwork.

      24 days ago
    • GregP_WN's Avatar
      GregP_WN

      Carm, there is a saying in the cancer advocacy world that says "Cancer never sleeps, and neither do we". I think that includes you. Thanks for what you do.

      24 days ago
    • carm's Avatar
      carm

      Thank you kindly Greg and there is no place I would rather be or any other career I could ever do...it is truly an honor.

      24 days ago
  • Jayne's Avatar

    Jayne asked a questionColorectal (Colon) Cancer

    WhatsNext app question

    4 answers
    • Jayne's Avatar
      Jayne

      Sorry, hard to explain, i'm using a computer...i was looking for an icon that says 6 new messages - or something like that from the landing page.

      about 1 month ago
    • Jayne's Avatar
      Jayne

      Greg...it's no big deal, don't spend any cycles on this!

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      If you are getting emails from whatnext, you should be getting a notification each time someone answers your question or comments on a photo, etc. You can click on those and go right to that post. But, there isn't a link on your landing page as you describe. It sounds like a helpful tool. I will as our tech guru if it's something that can be done on the next site upgrade.

      about 1 month ago
  • Jayne's Avatar

    Jayne asked a questionColorectal (Colon) Cancer

    mucinous adenocarcinoma of appendix, pseudomyxoma peritone of appendiceal origin

    7 answers
    • carm's Avatar
      carm

      In 2010, the WHO proposed a 2 tier classification that classified PMP as either low grade or high grade based on the presence of mucin, cytological and architectural features, so intermediate is kind of passe. However the treatment given to date is consistent with the NCCN guidelines. Just curious, was the chemotherapy mitomycin?

      about 1 month ago
    • Jayne's Avatar
      Jayne

      I will ask...

      about 1 month ago
    • Jayne's Avatar
      Jayne

      Hi, Carm. He ended up in the hospital with vomiting. Drain inserted and obstacle due to a tumor to a tumor on his small intestine that is inoperable. Finally home now, will try to get more details but for now, I think the clinical trial is the next step according to his docs.

      about 1 month ago
  • Jayne's Avatar

    Jayne asked a questionColorectal (Colon) Cancer

    Primary care doc

    7 answers
    • andreacha's Avatar
      andreacha

      Jayne - I had to look up LARS to understand. What about an Gastroenterologist? Wouldn't he/she be better versed than a Primary? Only a thought.

      2 months ago
    • JaneA's Avatar
      JaneA

      A pelvic floor physical therapist might be able to help you with exercises for your sphincter muscles. However, if you had pelvic radiation for rectal cancer, the radiation damage is probably the cause of LARS. I have a permanent colostomy because my tumor was quite low and I had radiation. Best wishes.

      2 months ago
    • rene2's Avatar
      rene2

      As @JaneA mentioned, pelvic floor therapy can be extremely helpful. I did not have colorectal cancer; however what I did have was a very large fast growing lymphoma on one of my kidneys which became enlarged and caused me to be practically incontinent during my treatment. My GYN told me about pelvic floor therapy and it made a huge difference for me. It's simple and quick and last about 8 weeks or so, depending on your issues and it includes both vaginal and rectal exercises. It is covered by Medicare so many insurance plans cover it as well.

      2 months ago