Hi JMS,
I am glad that you have been in touch with PanCan. I just wanted you to know the response from the person I contacted as soon as I read your message "posted update." Here is her response:
Hi Russ,
It is a pleasure to hear from you. You were correct in referring her to the website, as there is a wealth of information there. Additionally, so that she can receive information personalized to her needs, I would suggest that you have her contact one of our PALS Associates. She can reach a PALS Associate by calling our toll-free number,[phone number redacted], between 7 a.m. and 5 p.m. Pacific Time or emailing [email redacted]. The PALS Associate would be able to run a personalized clinical trial search based on JMS’s diagnosis and treatment history and provide a list of trials she may qualify for. As JMS mentioned in her post, most clinical trials do require measurable disease, however there have been a handful of trials that I have seen in the past that do not have that requirement. The PALS Associate can also provide her with links to information on managing her neuropathy, as well as a wealth of other information including, but not limited to treatment options outside of clinical trials, diet and nutrition, lists of doctors specializing in pancreatic cancer, symptom and pain management, risk factors and genetic studies, and links to support resources.
The other way to reach a PALS Associate, if JMS is specifically interested in clinical trials, is to fill out this form on our website:
http://www.pancan.org/section_facing_pancreatic_cancer/learn_about_pan_cancer/clinical_trials/find_clinical_trials.php, provide her email address or phone number in the form, and a PALS Associate will reach out to her to complete the clinical trial search and discuss any other questions she may have.
I hope this is helpful, Russ. If you have any other questions or need additional resources, please do not hesitate to contact me.
Sincerely,
Cassadie
JMS, Hopefully there is something in Cassadie's email that you haven't tried yet. My best to you and please be sure to keep us up to date.
Russ