• KarenG_WN's Avatar

    KarenG_WN posted an update

    Fabulous Friendly Friday!

    Have you made a friend on WhatNext who has made a difference in your life? Perhaps this person shared a new treatment with you, gave you some tips that made a difference, or helped you to make an important decision, or something else?

    How about you give that person a shout-out below and let them know how he/she made a difference in your life. What a way to start the weekend!

    6 Comments
    • mgm48's Avatar
      mgm48

      I've come to really appreciate MichaelV. He's in the same boat as I though we've followed different paths through treatment. His experiences could one day be mine and it's always nice to have some limited as it might be incite into what may be coming. Michael has also shared many a joke with me on private emails. I treasure the chance to laugh and smile whenever I can. Thank you Michael!

      over 6 years ago
    • bec55's Avatar
      bec55

      Not yet, fairly new to this site. Very glad to have found it!

      over 6 years ago
    • Jade's Avatar
      Jade

      I have read many of the summaries people have posted and some resonate my own experiences to some degree. I have not made contact with anyone though as I am not always in an area where I have internet connections. I am not sure what my next step will be treatment-wise as I am on my third cycle of a clinical trial that may or may not be taxol alone... CA125 coming down very slowly. Thanks for this site though as it has been very helpful, though I do wish patients and survivors would post more details of their experiences.

      over 6 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Welcome friends of the American Cancer Society! We have an incredibly supportive group here. So please don't be shy to reach out if/when you are ready.

    If you have any questions about WhatNext, please be sure to click on Help up on the top right. If you'd like to ask a question of other cancer fighters, click on Questions in the purple bar above.

    Also - you can add/change your picture by clicking on the avatar next to your name on the top of your wall/home page. We'd love to see you!

    Thank you for being here and sharing your story.

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    WHAT"S YOUR GOOD NEWS? FEEL GOOD FRIDAY!

    How about we kick off the holiday weekend with some GOOD news! SHARE your GOOD news below! Whether it's about your health, someone you love, plans for the weekend, etc. SHARE IT NOW!

    Thanks!
    Karen

    15 Comments
    • cinnamonsmile's Avatar
      cinnamonsmile

      I ruined my transitional sunglasses and needed to get another pair. They are so expensive and I am only on disability. I was going to save up all my change (I only use cash for purchases, bills are paid with a check) and get a pair of regular polarized sunglasses next year. Found out the eye clinic I go to has a buy one pair, get the WHOLE second pair 1/2 price (lens plus frames, the total bill is 1/2 price). So...I took advantage of it and got a pair of regular sunglasses for 50% off. I love getting a deal.
      That is my feel good Friday moment.

      over 6 years ago
    • RMR's Avatar
      RMR

      i hope it's still a good time to post this. My good news is that I had what should
      Be my last reconstructive surgery on Aug 20th. Now I feel like I can
      Start putting this ordeal behind me. It's been a long process about six surgeries
      In the past year and a half.

      over 6 years ago
    • kulaken's Avatar
      kulaken

      Good friday news : i just had my 5 th MRI in the last yr , a couple weeks ago , the tumor ha-sent grown , nor has it shrunk, I have relocated to the seattle area and said Aloha to hawaii, family support is here , and better care , im now working with the Fred Hodgkin's center along with the university of washington
      So im off the hook for now ( cept the steroids and a few other drugs ) but they wont do another MRI for 2 more months ,, all i can say is i will make my 50 th birthday ,, WHOOOO HOOOO ,

      over 6 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    TIP FOR TUESDAY!

    Looking to exchange emails with other WhatNexters? You can do that! Here's how:

    1) Click on the name of the user you want to follow.
    2) To the right of their name, click on "Exchange Email."
    3) Add any additional notes to the text box and click on send.

    That's it!

    Please let me know if you have any questions.

    Thanks!
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Wonderful News Wednesday!

    Did you get some good news lately? It could be super amazing good news about your health, or the health of your loved one...or something totally off topic. Let's create some positive vibes and good karma by sharing any good news you'd like to share. Just click "comment" below and tell us your good news!

    9 Comments
    • mgm48's Avatar
      mgm48

      well, yes, PSA went down with today's test 4 (that's good) Planning a trip this weekend to see Grandkids (that's good) Today is 43rd wedding anniverasry and had lovely after chemo midday dinner with my wife (that's great) Cancer sucks but there are definitely good things along the way.

      Keep it positive and smile :)

      over 6 years ago
    • Bashiemn's Avatar
      Bashiemn

      When I was diagnosed with ACLC, I had just completed the pre-requisites for an RN nursing program and submitted my application. In January I was diagnosed, and in April I got my acceptance letter for an August 2012 start. Not knowing what the future held, I worried every day that my plans were going to have to be put on hold, or worse. What better news is there than "You're in Remission"? How about "Yes, I think your immune system will be back to functioning by the time you start clinicals". I start nursing school Monday - and I'm very nervous about my mental processes, but this just goes to show you that Cancer can just be a roadbump in the course of our lives. I like to look at it as training for my future career! I had always thought I'd be a good Hospice nurse. Now I may look into Oncology. Funny how life works.

      over 6 years ago
    • kbarkley's Avatar
      kbarkley

      Congrats to you Bashiemn!!!! Best of luck in your career. It is a great choice! 26 years ago my husband was diagnosed with brain cancer and was given 3 - 5 years to live. At age 23(me) and 24(him) it was quite a blow. We had only been married for 8 months and were in the process of buying our 1st house. We decided at that time that we were not going to stop living our lives. We went a head and bought the house. Six months after his last radiation treatment we got pregnant with our 1st child. Two years later we had our 2nd child. At that time his tumor began to worsen. We had a lot of faith and through out the whole ordeal we had fabulous nurses!! He out lived his prognosis and passed away 7 years after his diagnosis. The year before he passed I had decided to change my career to become a nurse. Unfortunately, my husband did not get to see me graduate. I was hired to work on the hospice/oncology floor where I had gotten to know several of the nurses due to my husband having been there several times. I so enjoyed working with the families and felt that I made a difference in their lives because I had walked in their shoes. Now, 19 years after the passing of my husband, I am the cancer survivor(thyroid cancer - minimally invasive follicular carcinoma stage II). It is very different being the patient and not the caregiver! In May I had my first ultrasound since treatment and it showed no growth in the neck area!!!!! My next scan will be in January and I expect that they will not find any more "hot spots"!!!

      over 6 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    ***WhatNext Undergoing Maintenance Today - TUESDAY AUGUST 21, 2012 12PM - 1PM Eastern Time***

    Hi everyone,

    The site is undergoing some maintenance TODAY, Tuesday August 21, 2012 from 12PM - 1PM Eastern Time. So you won't be able to access WhatNext during that time.

    We apologize for any inconvenience, but we will be up and running after that time. If you have any questions, please feel free to email us at contactus (at) whatnext (dot) com.

    Thank you,
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    TIP FOR TUESDAY!

    Did you know that you can syndicate your blog to WhatNext? This way, everyone who follows you on WhatNext can see all of your new posts. Here's how to do it:

    1) Go to your blog and copy the RSS FEED URL
    2) Go to WhatNext, log in and click on "Account" on the top right.
    3) On the right, click on "Add/Change RSS"

    Your blog posts should soon begin to appear!

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    July is bladder cancer awareness month. If you are affected by bladder cancer, what do you wish others knew about it?

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Tip of the Week!

    Want to learn more about the treatment decisions and experiences of others who share a diagnosis similar to yours?

    It's easy as 1-2-3!

    1) Go to your home page (click on "home" in the blue bar).
    2) In the right column, you'll see a box that says "Find Peers." Click on "see more" in the box.
    3) This will take you to a list of people on WhatNext who share a similar diagnosis. Click on their user name and then check out their journeys when you get to their home page!

    BONUS TIP!

    If you are newly diagnosed, you might want to see the journey of someone who is a few years ahead of you in terms of treatment. Click on "People" in the blue bar above. On the left of that page use the search filters to find people based on diagnosis, stage of tumor, stage of treatment, role (patient, caregiver, etc.), age, even state!

    If you need any help, be sure to email us: contactus (at) whatnext (dot) com.

    Thanks!

    2 Comments
    • Clyde's Avatar
      Clyde

      Where is the "find peers" box? Not seeing it.

      almost 7 years ago
    • DaveWaz's Avatar
      DaveWaz

      One of the updates to the site is that we changed "Find Peers" to "People Most Like You."Click on "Home" in the purple bar and you will see it on the right. Please let us now if you have any trouble.

      almost 7 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Check out What’s New with WhatNext!

    We are so excited to announce our new look and feel, we hope you like it, too! In addition to the new colors and style, we’ve listened to your requests and have included some new functionality to make your WhatNext experience a lot more user friendly. Here are some highlights:

    1) Sorting Questions – There are now several ways to do this! On the Questions page you can enter a word in the search box to see other related questions, such as “financial.” You can also check out questions that need answers, most popular questions and questions that are trending. Exciting stuff!

    2) Bug Fixes – We resolved some of the quirky issues, such as posts appearing multiple times. Yes!

    3) Laid the Ground Work for New Functionality – We’ve been keeping the pulse on the “wish list” of things that would make for an even better experience on WhatNext. Now, we’ll be able to move forward with more enhancements that we’ll be rolling out over the upcoming months.

    4) New Look and Feel – We’ve added a bit more color, changed some fonts, and hopefully have made the site more aesthetically pleasing for you all.

    We know sometimes folks need to adjust to new site changes, but our wish is to make it easier for you to share your journeys of living with cancer, access the experiences of others or help someone who is also going through it.

    Have any thoughts or ideas you want to share? Please comment below or email us: [email redacted].

    Thank you for your support!
    Karen

    5 Comments
    • DaveWaz's Avatar
      DaveWaz

      Thank you for the feedback, keep it coming. @Lirasgirl33 - that is a terrific idea and we'll start looking into doing that in the short term. @Ivy We'll reach out to you via email to get a better understanding of what is missing and how we can fix that.

      And please let us know if you see any other hiccups. Thanks!

      almost 7 years ago
    • cranburymom's Avatar
      cranburymom

      love the color theme - soothing and soft. much needed impact. geat job.
      the icon images in patient jouney look a but blurred. but this is intentionally done?

      almost 7 years ago
    • DaveWaz's Avatar
      DaveWaz

      @cranburymom you have such a good eye! Yes, we see that too and are getting it fixed. Thanks!

      almost 7 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Have you joined us on Facebook and Twitter?

    If you are on Facebook and/or Twitter, please be sure to follow us! We share a lot of news, helpful tips, inspirational quotes, terrific support and funny images =)

    Here's how to find us:

    Facebook - http://www.facebook.com/whatnextcancer

    Twitter - http://twitter.com/whatNext_Cancer

    Thanks!

    7 Comments
    • tspoon's Avatar
      tspoon

      I agree with brown dog. By connecting with fb, and all their privacy issues, this disappoints me. For some, we are here for info, for sharing what we can.

      almost 7 years ago
    • DaveWaz's Avatar
      DaveWaz

      Absolutely, we agree. Facebook is not for everyone. If you are there and want to check us out, you are more than welcome to do so. If you just want to steer clear, we totally get it. Just wanted to let everyone know that we are available elsewhere in cyberspace. Thanks!

      almost 7 years ago
    • Clyde's Avatar
      Clyde

      I'm not comfortable with FB having any connection to my information.

      almost 7 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Tip of the Week!

    There are three places on WhatNext where you can post. Here's a quick overview of each:

    1) EXPERIENCES - What you include here paints a picture of your journey - treatment, surgery, celebrations (birthdays, finished treatment, remission!), loss (your hair, your mind, someone you love, etc.), decisions you have made or need to make and more. This can be an informative timeline for you to record your progress. Also, the more information you share, the more it could help others seeking perspective. You can access this from your home page underneath your picture.

    2) STATUS UPDATE - Much like a Facebook wall, this is where you can share what's going on. This is only seen by people who "follow" you or go to your wall. You might post about your weekend plans, something weighing on your mind, a funny joke you heard, etc. You can post an update by going to your home page and typing in the box (click on update).

    3) QUESTIONS - If you need anything (e.g., emotional support, help finding support/care resources, insights,) you can post in our Questions section. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help.

    Please let me know if you have any questions about these features.

    Have a great day!
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Wednesday's WhatNext Tip!

    Are you looking to find a support group in your area? Or curious where there might be a wig salon that specializes in helping cancer fighters? Or just want to know what resources are available to you?

    Click on "Resources" in the blue bar above. You'll be taken to a page that offers you local, regional, and national resources based on the zip code and diagnosis you entered when you joined us at WhatNext. These resources have been vetted and approved by the American Cancer Society. We hope this helps!

    Thank you - and hope everyone has a great holiday!
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Join WhatNext on Facebook and Twitter!

    If you are looking for a laugh, to watch some entertaining video clips and look at funny/motivating pictures, read some inspirational quotes and hear from others who get it, be sure to join us and nearly 4,000 others at our Facebook page and our 1,100 followers on Twitter!

    Here's how to find us:
    Facebook: http://www.facebook.com/whatnextcancer
    Twitter: https://twitter.com/whatNext_Cancer

    Hope to see you!
    Karen

    1 Comment
    • vickbuck's Avatar
      vickbuck

      that is how i found this site from facebook!!!! glad your there!!!

      almost 7 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Update on the $250,000 Grant: First a HUGE thanks to everyone who's voted so far...you are AWESOME! We are at 217 votes and we would love to get to 250 by the end of the day today. If you haven't voted, please, please take 30 seconds to vote.

    Here's how you can help:
    1. Go to: https://www.missionsmallbusiness.com/, click Log In & Support button
    2. When the window pops up, click "Log In with Facebook"
    3. Under “Vote Local” enter: WhatNext then hit search
    4. Once you see WhatNext listed click VOTE
    5. Share your pledge on Facebook!

    Many thanks! If we win this grant, the money will go toward making WhatNext an even more incredible experience, and will help us to reach others who are dealing with cancer.

    THANKS!

    1 Comment
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    WhatNext Up for a $250,000 Grant - We Need Your Vote!

    We just submitted an entry for a $250,000 small business grant. If we win - we can use this money to reach more people who are dealing with cancer, and also collect more patient and caregiver insights to give you more meaningful perspectives.

    Please vote - I promise it's super easy!

    1. Click on this link: https://www.missionsmallbusiness.com/
    2. Sign in with your Facebook account (click of a button!)
    3. In the search box, enter WhatNext. Then VOTE for us!

    Thank you!!!

    2 Comments
    • KarenG_WN's Avatar
      KarenG_WN

      We just need 153 more votes to get to the 250 required to make it to the next round. And we need them in 3 DAYS - by June 30!!!!

      I know time is precious, but PLEASE take 30 seconds if you can to follow the directions above and give us your VOTE! All the money will go toward making WhatNext better for you and all other people dealing with cancer.

      THANK YOU! And THANK YOU to those who already have given us your vote!!!

      almost 7 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      We did it! YOU made it happen, thank you so much! We got to 250 and have made it to the next round! We will know by September 15th if we are one of the 12 winners.

      You can STILL vote for us! The more votes, the better. Voting ends the end of the day on June 30th.

      Thanks again for all of your help - you are the best!

      almost 7 years ago
  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Tip for Tuesday! Getting insight from others who've been in your shoes....

    Did you know that you can instantly access the experiences of others on WhatNext who are most similar to you in terms of diagnosis?

    Sometimes it helps to see the decisions made by others who share your similar medical situation. What treatment choice did they make and how did it work out for them? Here's how to get perspective from others:

    1. Look to the right of your logged in home page (click "Home" in blue bar)
    2. See the box that says "Find Peers" and click on "see more" in that box
    3. You will see the people on WhatNext who most closely share your medical situation. Click on the names that interest you and read!

    Please let me know if you have any questions!

    Have a great day!
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    New breast cancer drug halts tumor growth better than standard therapy

    A new cancer treatment that links chemotherapy with an agent that homes in on specific breast cancer cells was significantly better than the current drug regimen at keeping patients' advanced tumors from progressing, according to results from a Phase III clinical trial led by Kimberly Blackwell, M.D., of the Duke Cancer Institute.

    Participants with invasive breast cancer who took the investigational drug, called trastuzumab emtansine, or T-DM1, also had fewer and less harsh side effects than study participants who received a standard treatment.

    To read more, click the link below...
    http://bit.ly/L4cM8F

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    TUESDAY TIP!

    Did you know that you can instantly find the people on WhatNext who most closely share your specific diagnosis? Here's how:

    1) Go to your WhatNext home page by clicking "Home" in the blue bar up above your picture/avatar.
    2) On the right, see the section "Find Peers." Click on "see more" in the bottom of that box and you'll see who else on WhatNext is going through a similar situation.

    That's it! You can follow them, reach out, or just look at their journeys and see the decisions they made or are looking to make.

    Have a great day!
    Karen

  • KarenG_WN's Avatar

    KarenG_WN posted an update

    Can you tip us over the edge???

    We are only 11 likes away from our first milestone of getting 1,000 Likes on FACEBOOK!

    If you haven't liked us already, would you please take a moment to do so? I promise we share great content =) This helps us reach more people and provide more support to others who need it.

    http://www.facebook.com/whatnextcancer

    THANK YOU!