• Keephopealive's Avatar

    Keephopealive posted an update

    On a positive note...I started a new chemo, adriamyacin, which I have heard terrible things about but I am doing great so far. CA 125 scores are considered normal under 55 for cancer levels. Mine was 1000! After one treatment mine dropped to 450! I won't get real excited because it happened last time with Taxol on the first treatment but not to that extreme, so keeping prayers and healing powers going here and believing for the best! Good luck and love to all battling this dreaded disease that just doesn't go away.

  • Keephopealive's Avatar

    Keephopealive posted an update

    I think it's not fair that everything seems to be for 1st time cancer patients. I understand the first time is difficult, scary but how about the 2nd, the 3rd, and sometimes more?
    I just went to a make up class for women cancer survivors. I called last month to ask if I was eligible since I went 2 years ago. They checked their records and said it was fine.

    I got all settled in the class and then she says since you have been here before you will not receive a make up bag (all donated items) but you can enjoy the class! I was so embarrassed. I stayed for the video and asked if I could try on wigs while they did make up and she said it would be disruptive but come back in an hr. when they would be doing wigs. I left and did not go back.

    I also have that problem with other events in my town...new people only, well, wel "old" cancer victims need comfort too.

    Thanks for listening, I am upset right now.

    3 Comments
    • ttisme's Avatar
      ttisme

      I am so sorry that you had to be exposed to some heartless wench! Wondering, too, if those donated items were donated with conditions...thinking NOT! I would let the sponsor of the event know how your were treated and HOW they made you feel. Just saying, if it were me!

      Hang in there, not everyone we meet are total fools!

      almost 7 years ago
    • digger6218's Avatar
      digger6218

      SO sorry you were treated so badly. I went one to one of those. I am going thru surgery /reconstruction. I am not going thru chemo or radiation.I just wanted to feel normal and girly. They included me and I enjoyed it. So great to see how it helped us no matter where this journey takes us.

      almost 7 years ago
    • MichaelV's Avatar
      MichaelV

      I was outrage to read what you wrote. Some people just don't have much connection with others and when they are running an organization, like the one you just attended, they can cause a lot of unasked for pain and embassasment. I hope you can find groups that are more understanding and sensitive. All the best,
      Michael

      over 6 years ago
  • Keephopealive's Avatar

    Keephopealive posted an update

    Just learned the anti-hormone pill, Arimidex, wasn't working. I have to begin chemo again. I am quite depressed. This will be my 4th time with it within 13 years...3 in the last 3 years! I did fine with Taxol but it didn't work...a few problems with Cisplatin and 5FU but now it is adriamyacin and I hear that is terrible. Maybe depending on dosage of course but with a name like red devil.....what to expect? should you all scare me or let it come as a surprise?

  • Keephopealive's Avatar

    Keephopealive posted an update

    What are your experiences and results with Arimidex or any anti=hormone pill? One month of it didn't do wonders but Dr. said let's try it another month before starting a new chemo.