• legaljen1969's Avatar

    legaljen1969 asked a questionBreast Cancer

    Friendships/Camaraderie

    16 answers
    • JaneA's Avatar
      JaneA

      This is a place where we can say what we really feel and know that someone understands.

      about 13 hours ago
    • Bug's Avatar
      Bug

      I really appreciate being able to express a fear or concern here because no one tells me not to think that way, that I'm being too negative or being ridiculous or looking too far ahead, etc. When I have expressed fear or worry to some family members or friends it felt like they invalidated how I felt. I've actually stopped talking to them about such things. I have not felt invalidated here - just supported.

      about 7 hours ago
    • Carool's Avatar
      Carool

      I agree with what everyone said. I saw a WhatNext post on Facebook. Because I’d been ten years out of treatment, I didn’t know if I should join. Greg encouraged me to join. I feel I’ve made some good friends here and have been helped and have helped. It’s a very personal cancer site on which people can get to know one another if they want to. I’m very grateful for WN.

      about 7 hours ago
  • legaljen1969's Avatar

    legaljen1969 asked a questionBreast Cancer

    Hot Flash Help

    14 answers
    • legaljen1969's Avatar
      legaljen1969

      @Jeallen- I need to get in with a therapist anyhow for anxiety and depression, I am trying to get a new referral. I had one written back in November and, shame on me, taking care of my mind and mental health seemed like just "one more appointment" when all I was trying to do was stamp out the fire most in danger of burning me (cancer). I had so many doctors appointments, that taking time to see a therapist seemed the last thing I could afford to do. Now that my body seems in order, it is time to focus on getting my mind back in order. I may discuss the effects of some of the medications and see what I come up with.
      I think the anxiety just escalates the hot flashes.
      @cllinda, I will check out the cooling pillows with a refrigerated section. Sounds amazing.
      @debbien507- I definitely sleep with a fan pointed at me. It is about to drive my husband crazy because he has like 10 blankets on his side of the bed and is under threat of bodily injury if any of those layers of blankets come my way. My poor husband is freezing. If I am having a really bad night, I sleep in the guest room with a ceiling fan and a floor fan. It's like a polar vortex.

      3 days ago
    • petieagnor's Avatar
      petieagnor

      I didn't have hot flashes when I went through menopause. Everyone hated me. I've made up for it with my hormone inhibitor shot for Ibrance. I've found that if I put my bare feet on ice packs, I cool down quite well. Ice water helps & staying away from any caffeine & alcohol. We shouldn't be drinking much anyway, BUT, I do love a very cold lager after working in the yard. Thanks jeallen & centered1 for your suggestions. Now, I have something new to discuss with Dr.

      2 days ago
    • legaljen1969's Avatar
      legaljen1969

      @petieagnor, thank you as well for suggestions. I definitely need to cut back on the caffeine. I am not a big drinker anyhow but do like an occasional glass of wine. I find that red wine definitely makes it worse than white wine, but I have pretty much sworn off all wine.
      On days like today (when I was so stressed out I was shaking most of the day), I would have given almost anything to have a glass of wine with my dinner and later had a whine party with a friend. I am still "vibrating" and I have been home for 4 hours.

      2 days ago
  • legaljen1969's Avatar

    legaljen1969 asked a questionBreast Cancer

    Life Planning

    9 answers
    • JaneA's Avatar
      JaneA

      Before my first chemo, we updated our wills, got durable power of attorney set up, and did medical directives. I communicated my wishes about life support and DNR. That was almost six years ago, and I'm still here. But all of the paperwork is still applicable and takes care of unforeseen medical emergencies.

      4 days ago
    • legaljen1969's Avatar
      legaljen1969

      @beachbum- please do make it a priority. I am gathering from your first line that your children are no longer minors. I feel certain that some of your provisions have changed. One of those being that I strongly suspect your wills listed each other as first choice executor for one another. Are all of your alternate executors still alive and willing to serve?
      For what it's worth, many states now recognize a pretty universal power of attorney that covers healthcare decisions, end of life decisions and such as that all in one document. I know for many, they had (and may still have) a Power of Attorney, Medical Power of Attorney, Living Will, DNR all as separate documents.

      This is the last I am going to say unless people ask me specific questions. I do think it's a worthwhile discussion so people do think about these things. It's worth thinking about even if you don't have cancer.

      3 days ago
    • beachbum5817's Avatar
      beachbum5817

      @legaljen, The alternate people are still living, but I do plan to get it redone. The ironic part is that my daughter-in-law is an attorney, so I have no excuses not to get it done. I appreciate your post to bring this to the forefront of my mind. This is one example of what I like best about WhatNext. Take care.

      3 days ago