• LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Missing Greg's Posts and Praying He's Okay

    39 answers
    • DeanaBeana's Avatar
      DeanaBeana

      Hello everyone I'm Deana, Greg's sister in law and Donna's sister. Our Superman is still fighting the fight ❤ He is still at Vanderbilt Hospital. I'm here with him tonight. Our brother stayed with him last night to give Sissy a much needed break again. Our goal is to get him back home and in his recliner soon. We thank you all so much for the prayers and well wishes. Please keep them coming. Goodnight and God bless you all!

      about 1 month ago
    • Journey's Avatar
      Journey

      Thank you Deana, for keeping us up-dated on Superman, Greg. You are so kind to be there for Greg and to give his "Sweetie," Donna, a well deserved break. We all are sending our best thoughts and prayers to Greg and his family. He is a warrior and a hero.

      about 1 month ago
    • Carool's Avatar
      Carool

      DeanaBeana, thank you for updating us. We are all thinking of Greg and rooting for him.

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    RIP Ruth Bader Ginsberg

    10 answers
    • Bug's Avatar
      Bug

      Very sad indeed.

      2 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I admit, I teared up.

      2 months ago
    • legaljen1969's Avatar
      legaljen1969

      As someone who works in the legal field, the loss of Ruth Bader Ginsberg has hit me pretty hard. I think of all this woman accomplished and all she was committed to accomplishing for the rights and betterment of women. She was a brilliant jurist and a beautiful person. As others have said, always a lady. Not just a female. Not just a woman, but a lady. A person of grace, kindness, humility and strength.
      May her legacy of civil discourse be one that guides this nation in the future- whether that be the next few weeks or the many coming years.

      2 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Greg - We're all pulling for you!!

    35 answers
    • 2943's Avatar
      2943

      UCSF had chairs that made into beds. Not wonderful but son did just fine. This journey involves many. Hang in there. Our positive energy coming your way!

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      My husband's room had a recliner that made into a bed of sorts and a couch that looked like it would have made a pretty good bed. But, they wouldn't let anyone stay overnight; I guess because of COVID (like everything else - EVERYTHING was blamed on COVID). I had to follow visiting hours, which was a pain because they started at 11 AM - after a lot of the doctors and therapists had already made their rounds.

      4 months ago
    • 2943's Avatar
      2943

      My husband went into hospital, dropped him at front door and picked him up a week later. Not good but covid. My surgeries (5) were pre covid and fortunate that someone was able to stay with me. Nervous Nell here slept so much better. Hugs to all as we navigate these choppy seas!

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    As caregiver do you have to get pushy sometimes ?

    22 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      He's home now so that's a huge relief! On the discharge papers, I see that they have some dosages wrong on meds, but they gave him too little, not too much ... or actually, in some cases, they were doing something different. For instance, he takes Metformin but they were giving insulin.

      I didn't have to worry much about them doing anything wrong - they were never in there. It was ridiculous how little care he got while in there, running up who knows how big a hospital bill. Everyone's excuse: COVID. I didn't get your discharge papers done in a more timely fashion because of COVID. Hello? Is our nurse just the nurse on our floor? Where there is no COVID? Crazy. I think it is becoming a very convenient excuse to deliver poor service. I'm not happy about it. They certainly didn't give us a discount because we would not be getting any service because they are so busy with COVID. And, what makes a COVID patient's life more valuable than my husband's life? A life is a life. And everybody has the same desire for THEIR loved one to leave the hospital in the car and not a body bag.

      I am certain that some COVID patients require a lot of care but I'm just as sure that some of the less severe cases are not getting much more attention than my husband got. Not everyone with COVID is on the verge of dying.

      With all of that complaining and soapboxing out of the way, I am VERY grateful that I was allowed to visit my husband for most of every day. So many people can't see their loved ones who are in the hospital or in other facilities. And, I'm especially grateful that despite the lack of services, he is recovering nicely (we could have easily NOT taken him to the hospital and had the same results). He is regaining his ability to speak and slowly but surely is regaining the use of his right arm/hand. Surprisingly, that's one therapy (occupational) the doctor did not recommend for his outpatient care and it is an area of great concern. The reason the doctor didn't recommend it? He had no idea. My husband has adequate strength in his arm, hand, and leg .... but the fine motor skills are lacking severely ... and no one bothered to even look at that.

      4 months ago
    • Bug's Avatar
      Bug

      Oh, LWC, I'm so sorry about your husband. You'd think the health care system would help us at times like this, not make things harder. Many prayers and best wishes for both of you.

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thanks, @Bug! He had a neurologist that was exceptional and who came when I was there. I asked him everything: can I get a meeting with a dietician, will we be sent home with insulin and if so, who will teach me to give shots (i can give myself shots, not sure about someone else), rehab questions... And he patiently and thoroughly answered everything.When he came in for final visit before we left, he brought me paperwork on diet (different info than the dietician gave us). In other words, he went FAR beyond the call of duty, but he was the only person who did, by far.

      I will be able to accompany him to rehab which is a relief on many levels! I am somewhat surprised that I am being allowed to do as much as I am during this pandemic. I feel fortunate for it.

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Interesting video - 9 parts. Part 1 was tonight

    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting. I am always interested in series like this to see what are sometimes underlying motives, (like you said, what are they selling) or what's in it for the people producing the series. Sometimes they are strictly for educational purposes, other times not.

      6 months ago