• LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Tough week

    14 answers
    • coco1101's Avatar
      coco1101

      It is always so sad when we have a bunch of things pile up on us. As I said, you have had a very tough time for a while now. I wonder if it is possible for a Mother to ever get over losing a child? I don't really think so, though as I mentioned, with time - lots of time - the pain is still there, but it isn't sticking you in the side twisting like a knife.

      This weekend was Mother's Day, and we buried my Mom, too early if you ask me, but it was 31 years ago on May 7th - it was on Mother's Day in 1988. Hence, Mother's day is always a bummer...but there is no where to go , I can't escape the facts... sadly most of us face this reality - or some other. For a couple of old broads fighting Cancer, we still have a laugh or two to share. Like I told you... you must never feel too down, I am always just a little bit away, make time to hug you, lend a shoulder to cry on, insult the s_ _ t out of you, and hopefully we will laugh again soon - loudly (if that shoe fits...) together again.

      You are strong LWC, and while there are many things weighing on your shoulders right now, I hope and pray they will become lighter in the weeks to come. I can't have you so sad, have you talking about some things which we have to hope never to experience in our lives... Life is too precious. Just think of the battle we have waged just fighting to stay alive. hugs, coco1101

      8 days ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm so sorry you are facing all this at once. I'm sorry about your the friend you lost and that another one has had a turn for the worse. Yes, you are strong, but even the strongest needs to have that moment when you scream into the night. Many hugs. And purrs from my kitty, Ruskin 'cause purrs help everything...

      8 days ago
    • Bug's Avatar
      Bug

      Sigh. When it rains it pours. I'm so sorry to hear this. It's a lot for one person to bear. Thinking of you and saying prayers and sending a warm hug.

      about 13 hours ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    What a Surprise

    • GregP_WN's Avatar
      GregP_WN

      Occasionally, they will vote for some things that help all people regardless of if they can get something in return for their vote. It's nice to see.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I ended up having a long conversation with her on Messenger. At least when it comes to cancer issues, she's a definite supporter! I am very impressed with her and will definitely use that mode to get in touch with her the next time I hope to get her to vote for something I support!!

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Po18Guy and BoiseB

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thanks, Greg.

      about 1 month ago
    • po18guy's Avatar
      po18guy

      Oh, I'm still around. Thank you for asking. Had the normal 2-3 simultaneous viruses. Some sort of pneumonia. Pronounced anemia. Being a walking experiment, I had to discontinue Ruxolitinib (Jakafi) as it was killing my marrow's production of red cells. Hematocrit fell to about 60% of my normal unacceptably low level. So, three ER visits, two hospitals, three units of blood and eight specialists later, many heads are scratched, but no answers are forthcoming. Every blood panel known to medical science came back negative.

      GvHD was once again becoming somewhat intolerable, so we decided to re-start the Jakafi at a low dose. All of my post-transplant care being palliative in nature, we are hoping for a tolerable balance between GvHD symptoms and red cell production.

      Nevertheless, as always...

      I am delighted to be anywhere.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      po18guy ... I'm really glad you're still with us ... but sorry to hear what you've been through. Dang!! You're tough!! Praying for better health for you!

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Blog post from my cancer clinic - deals with head-neck cancer

    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting, April is Oral, Head, and Neck Cancer Awareness Month

      26 days ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    I got to talk to researchers today

    9 answers
    • Shoeless' Avatar
      Shoeless

      BTW I have tried several times to comment on another page unsuccessfully. You said people often ask the difference between Hodgkin's lymphoma and Non~Hodgkin's lymphoma. The main difference between HL and NHL is the presence of an abnormal cell called the Reed-Sternberg cell, or Hodgkin's cell. This type of abnormal cell is only present in Hodgkin’s lymphoma.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I agree, @Shoeless. I think they need to test on living beings before taking the tests to humans. I've always thought so. I don't want frivolous testing done and I don't want to the animals treated cruelly, but I think the testing is necessary. Sometimes, the cures they find benefit animals, too ... so there is that :) :)

      I think testing on lawyers is a fine idea :) :) (But better by far would be Congress - Democrats and Republicans.)

      about 1 month ago
    • wmsavs' Avatar
      wmsavs

      @LiveWithCancer, very interesting information. Most times these seminars are recorded and can be accessed for your review. The review can allow you to follow along at your own speed, raise questions you may not had during the original seminar, and potentially rewind if you want to hear anything again.

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Excited!

    10 answers
    • Journey's Avatar
      Journey

      Hope you have a wonderful time! It is good to see old friends again.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thanks, everyone! We had such a great time. It was as if not a day had passed since we last saw each other! We only live only a couple of hours apart ... and we are going to try to get together once a month or so from now on. It is such a shame that we let so much time and life pass us by, but it was fabulous to reconnect.

      about 1 month ago
    • Dianem's Avatar
      Dianem

      Aha! I knew you would have a great time...

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    What Would You Prefer? To Be Told You Have a Nodule or that You Have Cancer?

    22 answers
    • banditwalker's Avatar
      banditwalker

      #BarbarainBham, that is exactly what I've been told. Also in 3013. I rarely even think of mine anymore.

      about 1 month ago
    • macfightsback's Avatar
      macfightsback

      Hi Everyone,. I am arriving late to this discussion but it certainly is of interest to me. Today my Oncologist told me my CT scan revealed 2 pulmonary nodules which had doubled in size since December. In December my Oncologist told me how the radiologist had interpreted the scan. The Oncologist disagreed. One spot was visible on only one slice of the CT scan (he showed me) and then it was literally almost too small to see. The other one was unchanged in size from previous CT scans. He was unsure what to believe. That is why he ordered this CT 4 months later to see if there was any change. I have had no symptoms. Since I am diagnosed late stage Ovarian Cancer and I just had a reoccurrence last year, it is likely metastatic cancer. (I hope I am wrong) I am going to have a CT guided needle biopsy soon. So he went through the typical song and dance "it could be just inflammation or infection." I believe the docs mean well. Last year my Gynecological Oncology Surgeon did the same thing about enlarged lymph nodes on my CT but I finally asked him "What do you really think?" and he told me he thought it was a reoccurence, which was correct. Even my primary doc, who gave me the CT results when I was first diagnosed in 2015 tried to sugar coat it. When I actually heard the actual CT report, it was shocking. So my opinion, be honest. Be kind. Give the person in the situation all their options. I welcome any comments. I am a little anxious about all of this so anyone who has been in my shoes, feel free to speak up and share. Oh My!!!

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      macfightsback, wishing you the best. Please update us after your biopsy. I assume your nodules have grown to over 1 cm.

      Some of my CT scans have shown inconsistent results, not in my lungs, but in swollen lymph nodes/tumor. They commented to me that it appears that the scan caught them at a different angle on the picture. (One time they appeared to be gone, and a few months later they were back and big.)

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Olivia Newton-John Talks about her 27-year Battle with Cancer

    • Paperpusher's Avatar
      Paperpusher

      Cannibis must be easier to get hold of in Australia. I wish it was more available here and that people really understood the benefits.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      My son had to move out of state so that he could get medical marijuana. It made all of the difference in the world for him with his PTSD. Slowed his brain down just enough so that he could think and react. It worked FAR better than all of the psychotropic drugs he was prescribed by the VA. Our state still doesn't allow for medical marijuana ... I keep hoping that one of these days they'll recognize its benefits.

      about 1 month ago
    • Paperpusher's Avatar
      Paperpusher

      NJ has 3 dispensaries but the doctors are very reluctant to prescribe the medical marijuana. My husband was given Marinol during treatment which is a marijuana derivative. It didn't work at all for hubby. I talked to my brother about it and he told me that the dosage the dr prescribed was so tiny. He is a doctor working in a LTC facility and he said they give the patients 2-3 times the dose my husband was given.

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    MSK Webinar: CancerSmart: In the Kitchen with MSK

    • Bug's Avatar
      Bug

      Thank you for posting this. :-)

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Important Partnership between CSC and Airbnb

    6 answers
    • Bug's Avatar
      Bug

      Wow - this is wonderful.

      about 1 month ago
    • banditwalker's Avatar
      banditwalker

      Yes, this is great. Now, I bet I can think of a dozen other organizations that have the resources to do good things like this.

      about 1 month ago
    • MsMarty's Avatar
      MsMarty

      Wonderful news, a much needed resource. Thanks for posting.

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Hot tea may raise esophageal cancer risk

    7 answers
    • BoiseB's Avatar
      BoiseB

      Now when people ask me about "my drinking problem" I will say I no longer drink my tea so hot. Most people seem to think esophaeal cancer is caused by alcoholism. I have never liked alcoholic drinks but tea on the other hand I love but I always let it brew at least 3 minutes more often 5 minutes.

      about 1 month ago
    • JaneA's Avatar
      JaneA

      There's a Dana-Farber study that shows that drinking the equivalent of 4 cups (counted as 6 oz. each) helps reduce the risk of colorectal cancer recurrence by 42%. That's pretty dramatic. I drink that amount of coffee daily with the blessings of my oncologist.

      https://www.dana-farber.org/newsroom/news-releases/2015/drinking-coffee-daily-may-improve-survival-in-colon-cancer-patients/

      about 1 month ago
    • Paperpusher's Avatar
      Paperpusher

      I love my tea VERY hot. Luckily I have a GI doctor who scopes me every two years to check for ulcers so that should pick up anything in my throat early.

      about 1 month ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    We've Discussed the HPV Vaccine Before ... Here is more info for why it is a good idea

    • GregP_WN's Avatar
      GregP_WN

      January is Cervical Cancer Awareness Month, and our Blog Post from last week talks about the HPV vaccine and the risks of a diagnosis involved for younger people predominantly, and how the vaccine can prevent it. Here is a link to that article>> http://bit.ly/2F1v5Ah

      4 months ago
    • carm's Avatar
      carm

      ...Not a fan.

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Ever heard vitamin D will reduce chances of cancer? This study looked at the claim

    5 answers
    • JaneA's Avatar
      JaneA

      There is rather compelling evidence in regards to colorectal cancer - that low levels of Vitamin D are causal in colorectal cancer. Several studies specific to colorectal cancer have been showing that supplemental to get Vitamin D levels to high normal helps prevent recurrence.

      https://www.dana-farber.org/newsroom/news-releases/2015/new-study-shows-high-vitamin-d-levels-increase-survival-of-patients-with-metastatic-colorectal-cancer/

      On the advice of my my oncologist and colorectal surgeon, I take 4,000 units of Vitamin D daily as part of my survivorship program. I am 4 years out from a Stage IV rectal cancer diagnosis.

      4 months ago
    • Bonecrusher's Avatar
      Bonecrusher

      I have always been a heavy milk drinker, since a child. And take a multi-vitamin every day. And I still got bone cancer. I guess there's room for error in every case.

      4 months ago
    • SandiA's Avatar
      SandiA

      Mine was also low. I took a supplement for a while. I am also not sure why I quit, but it’s funny I started back yesterday.

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Gilda Radner special tonight

    8 answers
    • po18guy's Avatar
      po18guy

      Interestingly, throughout her sickness Gilda was married to Gene Wilder. In 1999, ten years after Gilda died, he was diagnosed with non-Hodgkin's lymphoma and treated at Memorial Sloan Kettering Cancer Center in New York. In 2005, the disease relapsed and he underwent a stem cell transplant. Sadly, he eventually succumbed to the effects of Alzheimer's disease.

      5 months ago
    • Paperpusher's Avatar
      Paperpusher

      I knew about the show's premiere from a newsletter that I received. I also recorded it. I was nice to hear all her history and see the SNL clips from that time. We were regular watchers when that group was together. It was touching and so sad at the end. She fought like a trooper even doing some off the books treatments that she discussed in her book. I had forgotten her appearances with her short hair. What a great biopic!

      4 months ago
    • KB2013's Avatar
      KB2013

      I imagine it would have been a really good thing to have had Gilda Radner in your life as she seemed so sweet, just a nice person and so very funny.

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    NCI Post Regarding Early Stage Breast Cancer and Radiation

    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting this. I read lots of NCI articles, most of them are always full of good information.

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Right or wrong, I trust what the NCI publishes. I take it by spells how involved i get in what they publish, but the last newsletter was full of things I found interesting :)

      4 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    RIP Barry Boomer

    18 answers
    • HOBO's Avatar
      HOBO

      When someone passes that has walked this walk it always hits my core. Certainly some sadness, but it is the guilt that I survived that gets me. I always feel the need to take stock and say a few prayers of gratitude. RIP Barry Boomer.

      5 months ago
    • Terri's Avatar
      Terri

      I am so sorry.

      5 months ago
    • alivenwell's Avatar
      alivenwell

      Wow. His outlook has been a positive force for me. I am grateful for knowing him.
      And I found his straightforward philosophy inspiring.
      He is alive with no more cancer.

      5 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    RIP President George H.W. Bush

    7 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @LuvinSis, i thought he was going to die then, too.

      He seemed to always have a smile on his face.

      6 months ago
    • andreacha's Avatar
      andreacha

      He and his wife were truly a couple very much in love with each other.

      6 months ago
    • cllinda's Avatar
      cllinda

      In case you didn't hear, the United States Postal service will close the post offices and suspend mail delivery in honor of George H.W. Bush on wednesday. I think this is quite an honor for our 41st President.

      6 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    There are worse things than cancer

    12 answers
    • banditwalker's Avatar
      banditwalker

      I suppose writing this article was cathartic in a way. Dark read but eye opening for me. Thanks.

      6 months ago
    • andreacha's Avatar
      andreacha

      LiveWithCancer -- Your article was so beautifully written. Thank you for sharing yourself with us.

      6 months ago
    • wmsavs' Avatar
      wmsavs

      LiveWithCancer, that was a very heartfelt article. Sometimes letting it out in this manner helps to alleviate some of the pain. You have a real gift of helping others while also helping yourself. Nobody but you can truly understand the burden carried by this tremendous loss. You did give us all a glimpse into the struggle and I thank you for sharing.

      6 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Julia468 ... Wondering if anyone has heard from her recently

    • GregP_WN's Avatar
      GregP_WN

      I can check. Sometimes I never hear back from people that drop off, it always makes me wonder about what happened to them.

      6 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thank you! I really worry about them. I can't imagine being so young and both fighting awful cancers.

      6 months ago
  • LiveWithCancer's Avatar

    LiveWithCancer asked a questionLung Cancer

    Free Kindle Book

    4 answers
    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting. I think it helps anyone to read what others have been through so they can see that they are just like them, and they can do it too.

      6 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Dann has a great sense of humor and loves life. It has been awhile since I read his book, but if I remember correctly, he includes exercises at the end of each chapter for readers to do. It is a worthwhile read, especially while it is free!

      6 months ago
    • JaneA's Avatar
      JaneA

      Thanks. I just downloaded it.

      6 months ago