• LiveWithCancer's Avatar

    LiveWithCancer posted an update

    I wrote a blog that was posted recently called, "What's Fatih Got to Do with It?" http://hopeandsurvive.com/whats-faith-got-to-do-with-it/

    I loved a poem that was posted in the comments by a caregiver wife who read the blog on LungCancer.net.

    Letting go of every single dream
    I lay each one down at Your feet
    Every moment of my wandering
    Never changes what You see
    I try to win this war
    I confess, my hands are weary, I need Your rest
    Mighty warrior, king of the fight
    No matter what I face You’re by my side
    When You don’t move the mountains
    I’m needing You to move
    When You don’t part the waters
    I wish I could walk through
    When You don’t give the answers
    As I cry out to You
    I will trust, I will trust, I will trust in You
    Truth is, You know what tomorrow brings
    There’s not a day ahead You have not seen
    So let all things be my life and breath
    I want what You want Lord and nothing less
    When You don’t move the mountains
    I’m needing You to move
    When You don’t part the waters
    I wish I could walk through
    When You don’t give the answers
    As I cry out to You
    I will trust, I will trust, I will trust in You
    I will trust in You
    You are my strength and comfort
    You are my steady hand
    You are my firm foudation
    The rock on which I stand
    Your ways are always higher
    Your plans are always good
    There’s not a place where I’ll go
    You’ve not already stood
    When You don’t move the mountains
    I’m needing You to move
    When You don’t part the waters
    I wish I could walk through
    When You don’t give the answers
    As I cry out to You
    I will trust, I will trust, I will trust in You
    I will trust in You
    I will trust in You
    I will trust in You
    Songwriters: Lauren Daigle / Paul Marbury / Michael Farren

    1 Comment
  • LiveWithCancer's Avatar

    LiveWithCancer posted an update

    Rather than continue to flood the thread about stem cell therapy for knees, etc., I'm going to post the following information from Medscape here. I am copying and pasting from
    https://www.medscape.com/viewarticle/893665

    (Please note, I am picking and choosing what to include below. This is not the entire article and it will be disjointed to read...)

    "People's expectations have gotten ahead of the science," said investigator George Muschler, MD, from the Cleveland Clinic, and orthopedic surgeons must be prepared to help their patients evaluate these claims.

    In a previous study that Muschler was involved in, investigators conducted a systematic review of stem cell treatments for knee osteoarthritis and focal cartilage defects of the knee, and found only four randomized controlled trials and two well-designed controlled trials without randomization (J Bone Joint Surg Am. 2016;98:1511-1521). The other 420 reports they identified were not well-designed trials. Although the results from the six trials were positive, the placebo effect could not be discounted, the team concludes.

    At the 65 centers that provided pricing information for a same-day stem cell unilateral knee injection, the mean cost was $5156, but prices ranged widely — from $1150 to $12,000. Muschler and his colleagues interpreted this to mean that the prices were not related to fixed costs, but rather to the amount that the clinics wanted to charge for their labor.

    In a related study, researchers from the Cleveland Clinic presented an assessment of social media reports of stem cell treatments for musculoskeletal treatments (Cytotherapy. 2017;19:1392-1399).

    Although 94% of posts were positive in tone, most were from businesses advertising their services. Of the messages posted by patients, 60% were positive and 40% were negative. A 60% success rate is about what would be expected from the placebo effect alone, explained Muschler, who was also involved in this study.

    That does not mean that such products do not have benefits, said Nicolas Piuzzi, MD, from the Cleveland Clinic, who was involved in both the studies presented. But the benefits are more likely to be derived from other effects, such as anti-inflammation, than from the repair of damaged cartilage. "It's not what we think about as the primary function of stem cells," he said.

    Piuzzi explained that his own laboratory offers these treatments for knee osteoarthritis. However, it does not exaggerate the evidence for efficacy. It measures outcomes, attempts to profile the cells involved, studies whether the cells are rejected, and follows patients for at least 6 months.

    The FDA is formulating vigorous plans to enforce rules against unproven biologic treatments and easing the path to approval for those with strong evidence. "There is a sense that they do need to police this better," he told Medscape Medical News.

    "There definitely is great potential here," he said. "We just need more data. We need to figure out what works and what doesn't."

  • LiveWithCancer's Avatar

    LiveWithCancer posted an update

    NCCN Offers Free Webinars for Patients with Non-Small Cell Lung Cancer
    http://www.nccn.org/about/news/newsinfo.aspx?NewsID=445

    1 Comment
    • geekling's Avatar
      geekling

      Ran across a site which claims to be specific for lung cancer, that may or may not be of interest to you, called patientslikeme.com I thought it might be another way for you to be active and vocal. Happy holidays. Best wishes.

      over 3 years ago
  • LiveWithCancer's Avatar

    LiveWithCancer posted an update

    When My Mom Had Breast Cancer
    http://www.marieclaire.com/_mobile/health-fitness/when-my-mom-had-cancer

    Written by a 12 year old. Interesting read.

    2 Comments
    • Dianem's Avatar
      Dianem

      Wow, what a wonderful young man. So on point with the reaction of a child to a parents diagnosis. I have two children who were young adults when I was diagnosed but much of this boys observations resonate with how they felt. Keep strong and God bless

      over 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting, interesting.

      over 4 years ago
  • LiveWithCancer's Avatar

    LiveWithCancer posted an update

    Interesting trial going on in Louisiana for lung cancer patients. The "new treatment specifically targets the genetics of each tumor." Participation is free.

    It is so encouraging to see scientists making such inroads into late-stage cancer! I never thought I would still be living a full life almost 2 years after diagnosis!

    http://www.wwltv.com/news/local/Doctors-test-new-genetically-targeted-lung-cancer-drug-271454401.html

  • LiveWithCancer's Avatar

    LiveWithCancer posted an update

    I just received notice that my $200 check is on its way! How did I earn the $200? By participating in a research study through my WhatNext connection! I had a lot of fun visiting with my researcher and, hopefully, my responses will have an impact in the future on how information is relayed to cancer patients.

    Thanks, WhatNext, for giving me the opportunity to earn a little money and participate in the study! I'm hoping more opportunities will come my way!