• LMM's Avatar

    LMM posted an update

    I had doctors appointment on Wednesday to review blood work done the day prior. It was 6 weeks since ending treatment and having to see doc. He stated that white blood cell count was good red was a little low but the test they take for liver didn't look good. To quote him he said the cells do not appear to be happy. I just looked at him and asked him to please cut to the chase and explain the results. He said the cells in/on the liver appear abnormal. So, the pet scan that was going to take place in January is now being moved up ASAP. So I ask him, ok so if the scan shows it has moved to liver? He said then we are in trouble. I remained calm and said ok, so what will the plan be next if that is the case? He looks at me and says "I don't know" I have given you the most aggressive chemo treatment (9 months of it). So I am sitting there just numb to his response. He says let's see what he scans reveal. I want this out of body, I want it to leave, I want to be here along time for my kids and my hubby. I want/wish cancer would disappear from this world.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sorry you're in a scary spot right now. Just because he doesn't know what the next step would be if this is the worst case scenario, doesn't mean other doctors and centers don't know. Someone has a plan, you may need to search out second opinions if they are stuck on this. I am wishing you good luck, clean scans, and I also wish cancer was gone.

      almost 8 years ago
  • LMM's Avatar

    LMM posted an update

    Starting another round of chemo today along with starting radiation this afternoon (28 days). Anyone have suggestions on dealing with side effects of both treatments @ same time? What to eat what not to eat... I really could use some advice from those of you who have done rad. Thank you.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hi LMM, sorry you haven't gotten response here. Just a tip for you, when you have a question like this, post it on the questions page, there everyone will see it and be able to answer it. Here, as a status update only those people who are following you will see it, and you may not get answers. Try reposing this on the questions page, and you will get a ton of help.

      about 8 years ago
  • LMM's Avatar

    LMM posted an update

    Today has been another hard day. My pump wasn't working correctly so they took it off, hadn't finished all medication yet. The days are so long while I am here all alone. Husband working, kids working and school. How I long for my life before this nightmare. Being a stage 4 and docs only offering chemo because of the amount of lymph nodes involved is so hard, no surgery to remove the tumor because of stage. All I think about while I sit here is my family. How Much I want to be here to see them finish school and watch them grow into their career fields. How much I want to grow old with the man I love and married 25 years ago. How I pray to God day and night for a healing, for only He can save me.
    I see the worry in the faces of my husband, kids and parents and I am powerless to help them cope. It is so hard when reality slaps you in the face and let's you know you can't protect the ones you love. I had to let this out today. It doesn't make me feel any better, I just had to say it all. The weight is getting too hard to carry.

    3 Comments
    • Lirasgirl33's Avatar
      Lirasgirl33

      I'm sorry Lisa. I was there just a few days ago. Your feelings are justified with what you are having to go through. But please don't let them bring you down to a point that you can't see the blessings in your life. Concentrate on those. I admit this last breakdown I had really opened my eyes at how our mind can be our worst enemy if we let it. Take control of those thoughts and for whatever negative thought your mind thinks, beat it with something positive. The fact that you are still with us and with your family is a huge blessing. I know it hurts to see your family in pain. You have to be strong for them my friend, and you have to ask them to be strong for you too. Together you will beat this. Love you. Hugs. Don't let cancer win, kick it's @ss.

      over 8 years ago
    • ticklingcancer's Avatar
      ticklingcancer

      Sorry you're having a rough time but that's what we're here for. To get you back on your feet. This reminds me of a saying:

      When something bad happens you have three choices, you can let it define you, let it destroy you or let it strengthen you.
      Cancer and chemo are difficult things to deal with. Really makes you stop and think about life. Put’s things in perspective. It’s important that you take time out to think of these things. It’s ok to cry about them as well but it’s equally as important for you to focus on YOU. Have you looked for a cancer support group in your area? This may be something you can do during the day to help get you out of the house. If you occupy your mind with other activities I think you will find it easier to help keep some of these emotions under control.

      over 8 years ago
    • geekling's Avatar
      geekling

      It sounds as though you have lost all hope. There is no reason for that because you hold life as long as you are breathing. Don't let a diagnosis lessen your happiness or make you immobile in the face of doctor treatments or non treatments.

      Be proactive. There are worlds of alternative treatments available. Many of them simply can't hurt you and there are testamonials for many of them. Do you really believe the Entity to which you pray would want you so desolate and hurting? Don't you remember the expression of helping those who help themselves?

      Look up Gerson. Look up Optimum Wellness. Look up Hippocrates Health Institute and Ann Wigmore and start juicing for better nutrition. Ingesting 2 pounds of leafy greens per day doesn't leave you a lot of time to be sad and feel sorry for yourself.

      Look up Chaga mushroom extract. Look up nigella sativa. Look up apricot kernel foods. If you feel well enough, get out of the house and take a walk or sign up for a therapeudic exercise class. Lay down and meditate. Do a lymph cleanse. Get a lymph massage.

      From the Latin, the word "doctor" means "teacher". If your teacher has nothing more to show you, it is time to find a new professor, don't you think? It certainly does not mean there is nothing more to learn.

      It is OK to break down and cry as long as you remember to gather yourself up and keep to your purpose. If needs be, learn to meditate. It strengthens you with rest you may not be getting at current.

      Although pesky, reality is simply another illusion. Your attitude trumps it all.

      over 8 years ago
  • LMM's Avatar

    LMM posted an update

    Numbers are up. Waiting to hear from hospital for time to arrive for port procedure tomorrow. Pray for me that all goes well. Thank you all.

    7 Comments
    • Lirasgirl33's Avatar
      Lirasgirl33

      Praying all will be ok my friend. Sending tons of hugs your way.

      over 8 years ago
    • Mel's Avatar
      Mel

      Good Luck!!! :)

      over 8 years ago
    • little_fut's Avatar
      little_fut

      Will be praying for you. Good luck!

      over 8 years ago
  • LMM's Avatar

    LMM posted an update

    Tomorrow blood work to check counts, if they are good, port gets put in Wednesday. So chemo can begin again next week. Please say a prayer for me. Thank you so much.

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Wishing the best for you, the port procedure is pretty simple compared to most of the things we go through.

      over 8 years ago
    • mkjetset's Avatar
      mkjetset

      My thoughts and prayers are with you, LMM. I agree with Greg, above. The port placement is relatively easy and mine has been a partner in my fight.

      over 8 years ago
  • LMM's Avatar

    LMM posted an update

    No port for me tomorrow. White blood cell count too low. Have to get three shots one tomorrow,Sat, and Sunday then wait and see if they help boost count. Then maybe next Wednesday port surgery. No chemo until count is up. How many of you have had this happen?

    5 Comments
    • ticklingcancer's Avatar
      ticklingcancer

      My last round of chemo was put off a week because my counts were too low. My whites were "OK" but my red blood cells were shot!!!! I was pretty anemic and weak at this point and he was concerned that if he went with the last round, I would end up in the hospital. He gave me an extra week off to recover. The week before all of this happened I ended up with pneumonia. Postponing that last round was the right decision. Glad my Doc was looking out for me.

      over 8 years ago
    • Lirasgirl33's Avatar
      Lirasgirl33

      Yup, happened a few times. Things got back on track though. I'm glad to hear they gave you the Neupogen. Those medications are pretty good at getting those counts back up. Keep us posted. Love ya! Hugs.

      over 8 years ago
    • Mel's Avatar
      Mel

      I had to hold off a few times on Chemo. counts too low and they have me a shot to help boost up. And yes your right Ticklingcancer was some bone pain!. not to bad for me but they say different for everyone.

      over 8 years ago
  • LMM's Avatar

    LMM posted an update

    Hello everyone.
    First day down. Well, being hooked up at infusion clinic down. Still have my pump With me every day and night til Friday afternoon. Nurses were really nice. Anyone else have 5-FU hooked into them in pump? Home now but don't feel tired and ate chicken noodle stir fry my neighbor had waiting for me when I got home. I have been blessed with some good neighbors even b4 diagnosis they have always been awesome. Have a blessed week everyone.

    4 Comments
    • LMM's Avatar
      LMM

      Your right no crime in feeling good eating wise. Emotionally still on the rollercoaster. Never have been a fan of those things. I have those pills ready. My friend who is a survivor of breast cancer told me to drink fresh beet juice with a little fresh ginger. Haven't tried that yet. Bought a juicer, but havent mixed anything up yet kind of paranoid about drinking anything that may have something in that isn't good to mix with chemo. Dat two down talk with you soon. Take care my friend.

      over 8 years ago
    • geekling's Avatar
      geekling

      You need to do as you think best. How long will you be in the chemotherapy rig? Beets have a lot of natural sugar & ginger a lot of zing ... Hon, food is what you need, the chemo is poison. Its job is to kill the cancer but your job is to stay alive. The juicer is so you can get enough nutrition without needing to spend energy digesting ther nutrition. The juice goes right into your blood stream. Don't be afraid of it; use the juicer. In fact, don't be afraid. It at all.

      over 8 years ago
    • GregP_WN's Avatar
      GregP_WN

      How are you doing now? Still not so bad? Some people take it really well and don't have much side effects. Let us know.

      over 8 years ago
  • LMM's Avatar

    LMM posted an update

    Just received my copy of doctor's order for pet scan, but only that no date for actual appointment. It will have to be prior to Jan.10th some time because that is my first appointment with my oncologist. I am a teacher, and in education there are advocates for parents with children who have special needs to sit with them and explain all the educational codes, assessments etc. that the teacher and school pyschs have regarding their child. Can anyone tell me are there such advocates for us when we first sit down with the docs to hear all their findings?

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      HI LMM, I believe that will depend on your hospital, you should call them and ask if there is someone that can help you.

      As for your question, you will get lots more help on it if you will repost it in the questions tab at the top of the page. Everyone will see it there, here as an update only those who are following you will see it. give it a try and you'll get some input from others that have done this.

      Thanks for posting.
      greg

      over 8 years ago