• Loafer's Avatar

    Loafer posted an update

    It's been one year since diagnosis and feeling great! Mamo and blood work all normal. Not on any drugs or maintenance therapy. Hair growing in full and thick again. Hugs to everyone going thru this journey. Life is great on the other side!

  • Loafer's Avatar

    Loafer posted an update

    Had 30 day followup from Rads, everyone very pleased with skin condition, slight tan and swelling only. I've had swelling since surgery. I'm in a clinical study for accelerated rads - very pleased with results!! Have brows fully back now and lashes just starting to come back. The last hold out of cancer. I feel GREAT and have had no lingering SEs since about 8 weeks PFC.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Glad to hear your doing well and so happy your rads went well and worked. This is good news for those who will come after you. Your a pioneer!

      over 6 years ago
  • Loafer's Avatar

    Loafer posted an update

    It is so surreal... Tomorrow is my final day of treatment - I have my final Rad treatment - and have reached the end of this journey! After 6 long months , the end is here!!! I will move forward and be grateful to family and friends for their love and support and cherish each and every day!

    4 Comments
    • Beannie's Avatar
      Beannie

      Congratulations!

      over 6 years ago
    • fiddler's Avatar
      fiddler

      I am happy for you. You're free!

      over 6 years ago
    • cris' Avatar
      cris

      Yeaaaaa!!!! Congrats I am so happy for you!!!!

      over 6 years ago
  • Loafer's Avatar

    Loafer posted an update

    Started trial for rads. 3 of 15 days in and so far so good. Took 2 hours to drive to treatment due to snow on Friday. Onc will not let me use any creams or ointments on breast so I guess it will be a clean trial. I am surveyed, have blood drawn, and pics taken for up to two years following treatment. My scar is minimal and site of sentinel node removal under arm red and slightly irritated before rads.

  • Loafer's Avatar

    Loafer posted an update

    Finished last chemo and cold cap treatment today!!! Still holding onto hair with some bald patches on top. I did 4x T&C without a port, and don't have to have one removed. Veins held up well with no issues.

    3 Comments
    • Nellie's Avatar
      Nellie

      CONGRATULATIONS you did it!

      over 6 years ago
    • GregP_WN's Avatar
      GregP_WN

      Happy for you, the worst of it is behind you, you will breeze through radiation.

      over 6 years ago
    • Loafer's Avatar
      Loafer

      Thank you both! Just have to get thru that nasty nulesta shot on Monday...

      over 6 years ago
  • Loafer's Avatar

    Loafer posted an update

    Just finished 3 of 4 treatments - 75% of the way done - yea! Each treatment so far has been different. I had the achy muscles in legs and arms in the 3rd week which is supposed to be the recovery week. So far, so good...

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      glad to hear about it! Your on the downhill side of this thing now! Everything else from now on should seem easy since you can see the end in site. We wish you a smmmoooooooth roll to the finish line!

      almost 7 years ago
    • Nellie's Avatar
      Nellie

      So glad to hear you are doing good. Yes, for me each treatment was different also. Take care and your ALMOST done !!!!! AWESOME !!!!!!!!!

      almost 7 years ago
    • Loafer's Avatar
      Loafer

      This 3rd treatment is kickin my butt. Have never felt such pain from this neulesta shot. Every muscle from head to knees hurts. No relief from pain meds. TGIF

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Just got back from business trip to Florida. I did not wear a face mask (primarily because i couldn't breathe using it and it was pretty dorky) on the plane. Sunny skies and warm temps were great for the soul! Had a great trip and meetings with business colleagues - most of whom were not aware I had cancer - which is a benefit of hair. Don't be afraid to live your life to the fullest!!!

  • Loafer's Avatar

    Loafer posted an update

    Going on a business trip on Monday. Nervous to be away from home alone for first time for a week. I'll be at the mid point of chemo cycle with low immunities - guess I'll have to wear a face mask in airport to avoid getting sick - I will need a good story to share with passengers! Still have hair so no one will buy that I am sick...

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Take you a small bottle of antibacterial lotion that will help. Have a good trip!

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Second round of chemo seems easier than first with less side effects - I'm afraid to say it out loud and jinx myself! Going for genetics testing tomorrow -- nervous about the outcome of this -- which could present another decision point. For now, just enjoying how "normal" I feel.

    2 Comments
    • ticklingcancer's Avatar
      ticklingcancer

      My final round was the easiest for me. The nausea was worse but the "flu like symptoms" were minimal. I think those symptoms were the worst part for me. Not that the nausea was a walk in the park but it was a different kind of nausea...somewhat controlled by meds. Of course controlled means not sitting in front of a toilet for an hour at a time...

      almost 7 years ago
    • Loafer's Avatar
      Loafer

      I think everyone is different, as well as on different types and doses of chemo drugs. I asked for as little as possible. I have only popped 3 anti-nausea pills since last chemo treatment - this hasn't been a problem for me - so i'm very blessed. Work is a great distracter and way to feel normal again.

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Day 24 - still have some hair - I have a nice chin length cut - received compliments at work today - short & sassy!!

  • Loafer's Avatar

    Loafer posted an update

    Day 22 - excessive hair loss - all over the house, chair, floor and clothes. Broke down and got my hair cut to chin length today. Couldn't take the fistfuls falling out and full trash cans. Hairdresser had never seen anything like it - majority of hair loss primarily around ears and base of neck - probably where cap does not fit tightly. My helper has been doing this for 10 years and has never failed.... She thinks the hair loss will stop soon.

  • Loafer's Avatar

    Loafer posted an update

    Day 21 - still have hair - it's thinning and greying at roots - but still there! Still coming out in handfuls... but I'm grateful it's growing in.. Promise to take a pic at the end - I'll be half grey with a couple of strands of hair still left.

  • Loafer's Avatar

    Loafer posted an update

    Finished second treatment today - half way there - yea! Onc said I was doing great, minimal and controllable side effects. Total treatment 2 - 3 hours for pre-treatment (anti-nauseous meds & steroid) and T&C chemo. Cold cap extended the day until 5Pm. Still shedding a lot of hair.... Took tylenol which alleviated ice headaches this time. Feel good, just tired from the nine hour combined treatments...

    2 Comments
    • ticklingcancer's Avatar
      ticklingcancer

      Congrats I being half done!!

      almost 7 years ago
    • SpunkyS's Avatar
      SpunkyS

      Hurray for you! 1/2 way is almost as exciting as finished. So now you are one "cool" lady, right? Happy Thanksgiving.

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Day 16. Hair is falling out all around me. It's on my clothes, floor, hands, and back. Not exactly clumps, it's all loose, and detached. I was prepared for thinning, but this is ridiculous. Have not purchased a wig or scarf - so i'm not prepared for this. Still holding out hope that this cold cap treatment will work. Next chemo & cap treatment are Wednesday with shot on Thanksgiving. Cold cap works 80% of the time.... Hmm, I've been generally falling into that small 20% category so maybe I should start playing the lottery.

    1 Comment
    • kbkms' Avatar
      kbkms

      Had to have mine shaved day 18. Didnt do the cap - wasnt given as an option either

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Thanks everyone! I'm actually between treatments and generally run slightly below 98.6, just not this low. I'll chalk it up to another side effect.

  • Loafer's Avatar

    Loafer posted an update

    1st chemo treatment down and 3 to go! Five days post treatment, i think i'm past the side effects now. The anxiety and build up was so much worse than the actual treatment itself. The best advise I followed was to drink 8 - 12 ounces of water every hour the first couple of days, , walk/exercise over the weekend, eat small meals, take the anti-nauseous med at the first sign of rock gut, and take Tylenol for effects of nulesta shot ( I had the joint pain in hips, elbows). I was also lightheaded and passed out in the bathroom (first time ever!) so I try to get up slower and drink OJ. I had treatment on Friday, nulesta shot on Monday (the shot itself completely painless) and worked from home on Monday and back to full work day on Tuesday. I am fortunate and blessed to have few and very manageable side effects. So far, so good! You can do it too!!!

  • Loafer's Avatar

    Loafer posted an update

    I was scheduled to start chemo today and it didnt happen. Its been rescheduled for next Friday so the anxiety and anticipation continues. Who knew it would be difficult to coordinate scheduling the special chemo room and the cold cap process. This cold cap process is going to be interesting. It begins two hours before chemo and ends two hours after chemo. I will need to have a new cap changed out every 20-30 minutes, which is about 14 cap changes which makes for a very long chemo day! Don't think dear hubby understands what he's in for.

    1 Comment
    • teddyfuzz's Avatar
      teddyfuzz

      What a pain that they had to reschedule you. But you are correct that the cold cap process is going to be interesting and I think we're ALL curious to hear about it. I hope your week goes by quickly and you don't have to much anxiety:)

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Met with Onc yesterday. He had both tumors retested since one was a triple negative and other estrogen positive. Tumors were tested at different facilities and the estrogen positive was negligible and with retesting did not warrant this classification (less than 2%). So now both tumors are triple negative and chemo unavoidable. How often do errors occur - i could have been on a hormone drug for 5 years unnecessarily - ugh. This cancer has the likelihood of recurrence in first 3 years which is where the chemo option ended. Chemo scheduled for Thursday and I'm moving forward with cold cap therapy lets see if I can save my hair.

    1 Comment
    • teddyfuzz's Avatar
      teddyfuzz

      I'm so curious to see how the cold cap therapy comes out. I've heard of it but heven't known anyone who's done it. Good luck with that and keep us posted!

      almost 7 years ago
  • Loafer's Avatar

    Loafer posted an update

    Thanks all! Appreciate all the great insight! I'm in the limbo state - recovering from a lumpectomy ( with three incisions) - and my follow up appointment with surgeon to review the pathologist report in detail for next steps. I'm very concerned about the prospect of chemo treatments so my surgeon is cautiously preparing me each step of the way. Have not been given an onc yet. My margins are clean and lymph nodes clear which I' m celebrating this weekend. Two sites had grade 2/3 aggressive cancer, which was thankfully caught early!! Have not been given a stage yet.

  • Loafer's Avatar

    Loafer posted an update

    Ugh, the hair thing. I have long dark hair which I often get compliments on - even by the nurses yesterday - which will be my downfall. My self image is very much tied to it- so I will definitely feel the psychological loss of it! I told coworkers I was going to shave it off and wear a headscarf. They told me I was too vain and they would take me wig shopping. We'll see where this goes. Thanks for the naturopath referral too - I will need her too!!

    2 Comments
    • ticklingcancer's Avatar
      ticklingcancer

      I was already balding when I started treatment so it was nice to not have to shave for a while. I asked my Oncologist about the rest of my hair and he said I'd probably only lose my facial hair and what little I had on my head. Boy was he wrong. Good Luck on your treatments. Stay Positive!!

      about 7 years ago
    • Modern's Avatar
      Modern

      I know what you mean I had almost two foot long ectreamly dark and very curly hair and I am still missing it. I got a wig and lots of colorful hats but i still really miss it. I hope things go well for you and I'll tell you what my dad told me. It will always grow back ;) good luck

      almost 7 years ago