• lynn1950's Avatar

    lynn1950 posted an update

    I am wondering if anyone is being treated with Zometa as a drug to PREVENT metastases to the bone. I asked my onc nurse about its use, who was going to ask my medical oncologist, but I never received a reply. My oncologist is very conservative about treatment regimens.

    1 Comment
    • Ydnar2xer's Avatar
      Ydnar2xer

      Lynn--am doing OK, but having more side effects the farther I get into treatment. Have done 6 of 18, so I'm almost 1/2 way there. But bloody nose, occasional neuropathy in fingers & toes, itchy itchy DRY skin everywhere. Have been practically greasing my face up everyday to keep it from cracking! How are you doing? Any more thoughts about coming to Seattle for reconstruction?

      over 8 years ago
  • lynn1950's Avatar

    lynn1950 posted an update

    I am wondering if anyone is being treated with Zometa as a drug to PREVENT metastases to the bone. I asked my onc nurse about its use, who was going to ask my medical oncologist, but I never received a reply. My oncologist is very conservative about treatment regimens.

  • lynn1950's Avatar

    lynn1950 posted an update

    I don't know how to recommend something for Resources. How do I get Casting for Recovery in there?

    5 Comments
    • Brooklynchele's Avatar
      Brooklynchele

      Yes, I know about the organization. I was just wanting to hear feedback from someone that actually attended. I've never been fly fishing before but have been fishing. I was curious as to what some of the ladies have gotten out of the program and if they had any thoughts about it for a "newbie".

      almost 10 years ago
    • lynn1950's Avatar
      lynn1950

      My CFR retreat was in beautiful Challis, Idaho at a small, very comfortable resort. I think there may have been twenty survivors and almost as many volunteers there in all.

      Most of the women there hadn't fly fished before. I have fished sporadically throughout my life and mostly have no idea what I am doing. I was a real klutz at the fishing part, but that didn't matter - someone was there to help me each step of the way.

      Most of the time was spent learning about what the fish like, how to cast, how to tie flies, catching fish and most importantly bonding and sharing our stories. Some of the time was spent eating and sleeping, and I must say that the eating was gourmet excellent.

      Trust me, this is something you WANT to do! : )

      almost 10 years ago
    • Brooklynchele's Avatar
      Brooklynchele

      It sounds like it was a great experience. Thanks for sharing your time there. I had some concerns about being the only one not capable of fly sihing (after all, you can't learn how just by watching A River Runs Through It!) I've already missed the event for this year. I will most definitely look for it again next year. Again, thanks so much!

      almost 10 years ago