• mgm48's Avatar

    mgm48 posted an update

    I was willing to wait for the results of today's blood tests until Thursday's appointment and chemo, but my nurse couldn't wait. It's great when your nurse is as excited as you are. My PSA dropped another 23 points to 149.8 - nothing has ever worked this well. I certainly hope we can continue this treatment beyond the 10 cycles that were supposed to be the limit. Only negative is that I need another transfusion on Thursday because of the low Hgb and shortness of breath. Another positive is that my calcium has recovered after only 6 weeks, so I may be able to have my Xgeva shot.
    When good news comes, it's time to celebrate. I'm going to have an ice cream cone!

    Keep it positive and smile :)

    2 Comments
    • BELLA2013's Avatar
      BELLA2013

      congrats on that news ..... enjoy the ice cream cone

      over 6 years ago
    • Ladykarla's Avatar
      Ladykarla

      Yay! I am so happy for you!

      over 6 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Scans today. Oh boy, This gets old as I sit and wait. I'm also tired of the continual treatments but the alternative is not what I want at the moment either. It's not that meeting my Maker wouldn't be nice but I have a few things to do here first.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Well last Thursday would have been perfectly wonderful if I had simply dropped 10 or so points, was hoping to get below 200 or 14 points. Imagine my surprise (and the doctors) when it dropped 40. I'm down to 173!!!!!. Don't know what to give the credit to Chemo or Tasquinimod, maybe it's the combo. No way I can explain the way this is working big drop, little drop, big drop, etc... But hey, I don't care how it goes down, as long as it does. They were ready to do another transfusion but decided that I could wait. My body seems to do OK with a lower than normal Hemoglobin, so probably will do it again in 3 weeks. As I said in an earlier post the transfusion was a wonderful improvement in quality of life. End of month will be scan day again and the schedule is again an all day affair. I'm sure I'll get a bit anxious for those results later this month, but for now I'm wildly happy about the progress on this treatment regime so far.

    Weather yesterday was great and I rode my bicycle to and from work for the first time. Felt like a million. Planning to get some more rides in as weather allows. Hope the hemoglobin doesn't sideline me too much. I have found exercise, particularly on my bicycle out of doors top be a wonderful stress reducer and moosd enhancer.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Eight days to go. Until the next chemo that is. It is this part of the cycle that gets me. I'm more than just a bit curious about just how much my PSA has declined in cycle 5 and wanting to kick butt again with cycle 6. It's also at this point that 3 weeks seems to be a very long time. Just realized that I'm at the half way point for chemo as they have said I'll only go 10 cycles. But I'll stay on the Tasquinimod and see what it does on it's own. Maybe after a while off I'll go back on the chemo. We'll see...

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Just a note. I attended an US TOO meeting on 3/11 and received a book "Reclaiming Sex and Intimacy After Prostate Cancer" by Dr. Jeff Albaugh. I've seen many questions on WN about ED and intimacy that just might be helped by this book. Just thought it was worth mentioning.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Feeling great after the blood transfusion. Now wish the weather would cooperate. I'd like to get back on my bike and enjoy it. Yup, I'm a fair weather rider. I like to enjoy the out of doors not challenge it. Here's to spring, come on!

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Yes!! Down another 23.1 points in the PSA maybe I'll get below the 200 mark in the next time or so. Transfusion went well and I feel better. Bring on the world, I'm ready.

    Keep it positive and smile :)

    1 Comment
    • Ladykarla's Avatar
      Ladykarla

      I am so proud of you!!!!! {{{{{big hug}}}}}.

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Had a great morning at the Cancer Wellness Center. Tai Chi was nearly a private lesson. Boy how nice! I still can't do the moves quite right but at least now I know what to try. The Stress Reduction (guided meditation) was a "safe/happy place" meditation. During the intro, I thought I'd be on an island watching the sunset. But the mind can do funny things, I wound up in a place from 50 years ago that I haven't thought about for 49 or so years. I was really "there", smelling the smells, feeling the brick wall, and being warm all over. I've never "gone" there when someone suggested I think about a happy place. I may return to check it out again one of these days. It made me happy.

    Keep it positive and smile :)

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sounds nice mr. MGM, glad you had a good day. They are a treasure to have, each and every one.

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    I've been told to expect a transfusion next Thursday. Never had one before. Most tell me it's no big deal. Hope it helps me with the shortness of breath and makes me feel just a bit more energetic. I'm getting a bit anxious for chemo, transfusion, and the PSA news that's only four days away now. I am doing fine and hope that bodes well for the PSA results. Only bother is the shortness of breath and that should be fixed with a transfusion. Now only question is whether Hgb will hit 8 or lower by Thursday. Doctor seems to think so as I have been told to plan for a full day. Here's to a great week.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Saw Dr S yesterday and no transfusion, yet. Hgb was above 8 (slightly) so we'll wait. Guess that's good news as my body is doing a slight bit better than they thought. Being my analytical self and looking at prior responses to the chemo, there is no way to make it to the April 10 chemo above 8, so I'll be getting the transfusion soon enough anyway. Saw an article in the January Us Too HotSheet about some success they are having with Tasquinimod. Sure hope it works for me as well. Seems to have very low side effects though it may be adding to the toxicity of the chemo, I don't know. Next week is chemo and we'll see how the PSA is, can't wait. I could use some good news.

    Keep it positive and smile :)

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      I hope your news is better than you hoped.

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Guess who's back! Yup Mr. Positive here. Saturday was a good day and realized just how good things are. I have a wonderful doctor! Wednesday I went out to run the snow blower over the driveway. Not a particularly strenuous activity but I became very short of breath. I sent an email to my doctor and in less than an hour, he called me! And the first thing he said was "Are you OK?" Somehow, I never really expected such a personal relationship with a doctor at such a large clinic. I'm just so lucky. Saw the Mr. Peabody and Sherman movie and brought back all the FUN of the pun in my childhood. Spring break is coming up so my son will be home from college next weekend for a week. And I'm looking forward to the next chemo (only 10 days) when I'm sure PSA will have gone down some more. Find out Thursday about transfusion. Maybe that will give me a bit more energy. I read about a man who died recently. The quote from him was "I'm not afraid of death, but I really don't want to leave." It's not fear of death but love of life that guides us.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    Mr. positive here not feeling so positive today. I know I should be what with the current treatment working as well as it is and all. But as with most things in life something hit me just a bit wrong this morning. The CBS interview was with the author of "The Mission is Remission" and while I'm happy for him, it brought to mind that there's no remission for my cancer, at least not yet. And another book that I just finished "The Emperor of All Maladies" was filled with hope, but it also noted just how unique each cancer can be and just how difficult it is to target cancer's unique form in each of us. So for today, I'm just going to allow myself to be a little low and when I awake tomorrow I'll take a deep breath and be my same old positive self. I figure that I'm entitled to take a day off and feel how ever I feel. So when you read my standard final comment it is not intended as a mandate but as a reminder that we all do our best when we are positive but it is ok to have a not so positive day once in a while.

    Keep it positive and smile :)

    1 Comment
  • mgm48's Avatar

    mgm48 posted an update

    Made it through the weekend Neulasta side effects and feeling good on Monday. Almost giddy after last week's news. Just knew something would work to slow the progression. It seems almost too good to be true. Nearly everyone has noticed my smile. Going to be celebrating for the next 3 weeks at least.

    Keep it positive and smile :)

  • mgm48's Avatar

    mgm48 posted an update

    OH BOY! Thursday's news was great. In addition to the PSA decrease of 63 points that I knew about on Tuesday, Scans came back STABLE. That's as good as it gets in this world. I'm excited. The Tasquinimod and Cabazitaxel cocktail seems to be doing the job and that means that my prognosis just took a decided upturn. Not looking forward to the next chemo with quite the excitement as before. Doctor has warned me that we will most likely have to do a blood transfusion and that's an additional 4 hours in the chair. I know the transfusion is not a big deal but being in the chemo chair for an additional 4 hours does not sound like any fun. However if it keeps the treatment going, I'm all for it.

    Keep it positive and smile :)

    1 Comment
    • Hopdog's Avatar
      Hopdog

      Congratulations!! After battling prostate cancer for 15 years I know the elation you're feeling.
      Keep up the positive attitude and look at the treatments as a part time job. That has a satisfying outcome.

      Hopdog

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Tomorrow is chemo day. Yea!!! and I really mean it. I like chemo. it seems to be one of the only things that work for me. Latest PSA was down another 63 points as of yesterday. Looking forward to hearing about the scans tomorrow. Expecting good news and continuing the trial. I'll keep you all posted.

    Keep it positive and smile :)

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Brother MGM, I'll have to say, I truly believe you're the only person I've ever heard say that they looked forward to chemo. Bless you my friend and I hope you have happy chemo bubbles flowing all through your body!

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Starting cycle 3 and all seems to go well. PSA dropped another 48 points, not as big of a drop I would have liked, but it is down and that's good. Still mild if any side effects from chemo, but Neualsta is a kicker. Makes me ache all over and I slept away most of the day on Sunday. Next cycle will include scans before chemo so I'll get to visit the Clinic Tuesday, Thursday and Friday. Guess retiring was a good Idea - the Doctors sure know how to fill up my time with things other than work. I'm finding the Yoga, T'ai Chi, and relaxation classes at Cancer Wellness Center to be helpful. m Still haven't ben able to get a good Blood Pressure reading at the clinic even with the breathing and meditation exercises. I've heard it called white coat syndrome, guess I've got it "in spades" I really don't want to add blood pressure meds to the mix if I don't have to - there's no drug that doesn't have a side effect and I have all of those I really want.

    Keep it positive and smile :)

    2 Comments
    • DaveWaz's Avatar
      DaveWaz

      Good luck with everything. I am glad you are finding something outside of treatment that is helping.

      almost 7 years ago
    • mgm48's Avatar
      mgm48

      Thanks Dave, I'm coming up on the 7 to 8 month prognosis in a few days and I'm just holding my breath to show the doctors that I'm going well beyond that date. I certainly don't feel like a guy with an expiration date stamped on my butt. I continue the fight and will beat the odds with as much positive energy as I can find. My Yoga instructor "breathes" positives into the entire class environment. Can't wait for the T'ai Chi class tomorrow for another dose of positive energy.

      Keep it positive and smile :)

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    OK, Mr. Positive here finally joined a flesh and blood support group. I was always one to think that I really didn't need that. I was strong and positive and groups, well, what could I get from that? I've been to two sessions so far and it has been more than worth the time. I have a to do list from our last session. Just addressing the first item on the list has improved things here at home. The group had several suggestions for dealing with my impending (unplanned) retirement. I appreciate being a part of the group and hope I can give back some of what I have received. If you're out there struggling with relationships and feelings, I'd suggest you reach out and find a group to join.

    Keep it positive and smile :)

    3 Comments
    • tspoon's Avatar
      tspoon

      Lucky you to have one nearby. I have always thought as a wife I would like a group but nowhere Arkansas has nothing nearby. Once we met a patient in the office and my husband was overjoyed to share stories. This man had leaned on his counter and broken 4 rib tips. Ouch.

      So sorry to hear Zytiga didn't help. We are on month 7 and barely rising.

      KEEP SMILING.

      almost 7 years ago
    • BigCWife's Avatar
      BigCWife

      Good for you! We all need to find what works for us!

      almost 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      Glad to hear it. The groups are for different people, some like them, some don't, I'm glad it's working for you!

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Well when your PSA is at 548.6 there is admittedly a lot of room to go down but when I found a 200.1 point drop on Thursday, I must admit I was pleased and rather happy. Second round of chemo seems to be going well with minimal side effects. Even the last cycle's reaction to the Neulasta seems to have been somewhat muted. I'm hoping that the direction of the PSA continues while I do not expect quite the magnitude. I find it interesting that what works for others doesn't seem to work very much for me and what doesn't work all that well for others seems to work rather well for me. Guess that 's why we try all this different stuff.

    As I take time to celebrate just a little bit, I hope all are being even more successful than I.

    Keep it positive and smile :)

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Wow! That's a big drop brother Mike. Hope you still stay on that route and get it down where it needs to be!

      almost 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    1/3/14 Humm.... As I write this I am contemplating yet another offer to purchase my CPA practice. Though it may seem unlikely, It's somewhat harder to face the sale of my practice than my cancer. My practice has been where I spent the vast majority of the last 25+ years of my life. The thought of not going to work just blows my mind.
    Chemo seems to be agreeing with me yet again. Hope it does something to the cancer while we're at it. Prior to start of chemo and Tasquinimod new PSA numbers showed another 90+ point rise in 9 days. I'm at almost exactly 50% of my 1125 peak. Sure wish the Zytiga had worked for at least a few months, but at least so far the Cabazitaxel and Tasquinimod have given me only minor observable side effects (fatigue and upset stomach).
    The increased dose of time release morphine has the pain pretty well in check and I'm having what my wife calls "good days". Only wish the weatherman would cooperate. 17 inches of snow and forecast highs of -6 are not what I had in mind for the start of 2014.
    Wishing all a very happy new year!!!
    Keep it positive and smile :)

    3 Comments
    • DaveWaz's Avatar
      DaveWaz

      Happy New Year.

      I hope you are having more good days these days.

      As it relates to your consulting practice, all I can say is that I have never heard of anyone wishing they had worked more in their life. In fact it is usually the opposite. Change is hard because of the unknown.

      As a relatively young guy who once too a year off, I would highly recommend it. Just remember your profession does not define you. You are still the same man with or without it.

      Wishing you the best.
      DW

      about 7 years ago
    • MichaelV's Avatar
      MichaelV

      Happy New Year, Michael. You didn't ask but I'm going to give you my thoughts anyway. Sell the business while you still have something to sell. I was not able to do that with mine, the clients just went away when the word got out that I had cancer. I thought, like you, that I would go nuts not having anything to do. I am attempting to write three books (if I can hold on that long) to my daughter so she will know who her father really was. We have a great line of communication but you know when you are one on one you can't remember things as well as you can when you sit alone and think.
      Don't want to write a book, you are a talented guy and I am sure you can find some interesting things to do to occupy your time.
      I hope the chemo works for you, you seem to tolerate it way better than I and I wish you the best with the new treatment. As you always say to everyone else, keep that positive attitude and not just towards the cancer ####.
      I think and speak of you often. Michael

      about 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      I can understand your mixed feelings about the practice. After my 2nd diagnosis and treatment was over, I was going to be a "bum" for as long as I wanted. I didn't have to go back to work at the time so I could take as long as I wanted to figure out what I wanted to do. That lasted 2weeks. Retirement didn't take with me. Hope you find what you want.

      about 7 years ago
  • mgm48's Avatar

    mgm48 posted an update

    Jevtana (cabazitaxel) on 12/26 has yet to give me any tough side effects and the Tasquinimod (experimental) is also being kind. The Neulasta injection on 12/27 made me very achy all over on Sunday. Thank goodness for Morphine. I'll be back for blood work on 1/2 and every week thereafter. Chemo is every 3 weeks so my dance card is rather full these days. I'm working to get ready for tax season and trying to find an appropriate CPA firm to merge with. My Christmas wish to be included in the CATCH Clinical Trial was granted and now I'm moving forward to beat the heck out of the most recent prognosis.
    May all of you fighting the fight have success and the best in quality of life in the new year. And may the researchers find more arrows for our warrior quivers.
    All the best in 2014!
    Keep it positive and smile :)