Hello and welcome to the site, we are happy to have you with us! If we can help you find any information please let me know.
If you will post this as a question, looking for others with your condition, everyone will see it. Just click the questions tab at the top of the page and fill in the information there.
give it a try and you will get lots of response. Also, you can go to the people page, then use the search feature on the left side of that page to search through the different diagnoses on the page to find somone like you.
Greg P
3x Survivor
Team WhatNext